Re: Adhesions

From: Annie Hawksley (monkopen@wn.com.au)
Tue Jul 9 22:38:40 2002


THANKYOU jO FOR REPLYING TO MY EMAIL. UNFORTUNATELY ALL MY SURGERIES HAVE BEEN NECESSARY BECAUSE OF THE SMALL BOWEL OBSTRUCTIONS. IN 1982 ATER HAVING HAD A TOTAL HYSTERECTOMY BECAUSE EVERTHING WAS STUCK TOGETHER IT WAS DISCOVERED THAT I WAS ALSO ALLERGIC TO GLOVE POWDER WHICH COMPOUNDED THE PROBLEM. AT PRESENT MY DIFFICULTY IS COMING TO TERMS WITH THE FACT THAT THE SEPRAFILM HAS NOT WORKED & THE PAIN HAS RETURNED. iWANT A NORMAL LIFE BUT TO ME WHAT IS NORMAL? i WILL JOIN YOUR GROUP & FEEL THAT HAVING SUFFERED SO MUCH FOR SO LONG I EVEN MAYBE ABLE TO HELP WITH SOME OF THE THINGS THAT IFIND HELPFUL WHEN THINGS GET REALLY BAD. iT IS A LONELY DIESEASE AS VERY FEW UNDERSTAND THE REAL RAMIFICATIONS OF WHAT CAN GO HORRIBLY WRONG SOMETIMES - EVEN WITH A SIMPLE APPENDECTOMY. MAYBE SOMEONE OUT THERE HAS SOME HINTS FOR ME. ONE THING I THINK I AM DIFFERENT FROM MANY SUFFERS IS THAT I HAVE A TERRIFIC DR WHO BELEIVES ME & THE PAIN I AM SUFFERING BUT THIS LUXUARY HAS ONLY BEEN SINCE ABOUT 1995. UP UNTIL THEN I WAS LABELED MANY THINGS & GIVEN THE RUNAROUND. ENOUGH FOR TODAY. HOPE TO CHAT AGAIN.ANNIE

At Tue, 9 Jul 2002, Jo Eslick wrote: >
>Hello Annie,
>
>My name is Joanne Eslick and I am the founder of the Australian
>Adhesions Support Group. I have been an adhesions sufferer for almost
>17 years and I started the Australian support group earlier this year.
>
>Our web address is: http://www.bombobeach.com and I invite you to register for
>our free online support including a regular newsletter that will include
>the latest information specifically for Australian sufferers. Currently
>I am in the process of acquiring government funding to formalise the
>group properly and to give me the funds to print information sheets and
>build a network of support people around Australia.
>
>On the ARD Support page (on bombobeach.com) you will find a list of
>volunteer support people with the area they live in to give you a guide
>to your closest contact person. We also have a "How to Cope" section
>which offers you a number of options you can use at home to help you
>cope with the day to day pain you experience with adhesions.
>
>You will find some excellent information here on the IAS board regarding
>adhesions themselves, with pictures of what they look like and the
>reasons they form. Both the Australian site and the IAS has a story
>area where fellow sufferers have recorded their story in an effort to
>provide comfort to others in the knowledge that you are not alone, but
>also to serve as a teaching aid to show you the results of too many
>surgeries can do..... which unfortunately appears to be what has
>happened to you.
>
>I look forward to hearing from you Annie,
>
>--
>Love and gentle hugs,
>Joanne Eslick
>Founder Australian Adhesions Support Group
>http://www.bombobeach.com
>NSW Australian Co-ordinator of
>International Adhesions Society
>http://www.adhesions.org
>
>--
>I am not a medical person, and all my messages are based
>on personal experience. I am a fellow adhesions sufferer
>reaching out to help others.
>

--
Annie H

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