-- ShaliAt Mon, 13 May 2002, Tami wrote: > >Thanks for the replies and the information. From what I have read about >adhesions is that alot of Doctors don't all believe that adhesions cause >pain and alot of them say it could be IBS....but do I need all the >testing if I don't have any symtoms of IBS?? I had a complete >hysterectomy in 1996 and it took 6 hours to complete because of all the >adhesions, bowels, bladder, ureters, etc. I have always gotten some >relief from the surgeries, it just always comes back. My doctor that >did my surgery on April 15, 2002 told me that there was no way he could >get the "ton" of adhesions with the laproscope this time. And he has >agreed to do the surgery on me. But before he does it he wants to rule >out anything else, so that is why I have to see the Gastro DR and also >the Urologist...I saw my PCP yesterday and he told me that I should have >the tests done just to make sure there is nothing else going on. He >also told me that they have used different types of radiation therapy >for adhesions...Have you ever heard anything like that before??? He also >gave me a RX for Neurontin. He told me that when people sometimes have >a limb amputated they still have nerve endings that make them think they >still have the limb...he said this medication is to desensitize >(Misspelled sorry) the nerve endings and hopefully help my pain >medication work better....So I'll try it!! >Sorry to just ramble on like this, I am just thankful to find people to >talk to about all this....you don't know how grateful I am...I truly >am....thanks > >At Mon, 13 May 2002, Shali wrote: >> >>I have to entirely concur with Cathy on this one and I'll tell you why >>in another point of view. Your doctor has mentioned IBS. Interesting. >>If you read my other post I mention this because I have the problem as >>well. Of course, Ive had two emergency surgeries for adhesions, but the >>IBS is whats underlying the whole disease thing anyway. I would see >>whats going on INSIDE the gut which is easily done with metabolic >>testing. You do not even have to go anywhere! Dr. Trent Nichols in >>Hanover, PA will do phone consultations and send you the kits to send to >>the lab! He is a gastroenterologist and took part in writing the book >>Optimal Digestion. Want the number? Let me know, I'll dig it up. The >>phone consultation runs between $77-110 depending on the amount of time >>spent. There are times when I DO feel improvement like yesterday. Other >>times not so much but that is the nature of IBS anyway and especially >>being sick for 8 years and 4 surgeries. A CDSA [comprehensive >>diagnostic stool analysis - NOT the ones the MD's run], will tell it >>ALL. Its about $225 and it will show dysbiosis, ph, vegetable >>digestion, protein digestion, yeasts,etc., metabolic markers and give >>the full picture. Think I would rule that out or in first. Thats my >>two cents. >> >>-- >>Shali >> >>At Mon, 13 May 2002, cathy:- wrote: >>> >>>Given that Person #1 can have insides that look like an explosion at the >>>glue factory and yet not be in any kind of discomfort, and Person #2 can >>>have relatively minor adhesions and be in agony, it would not be totally >>>crazy to think that someone would only have the pains where the >>>adhesions look "minor." It's all very much a matter of precisely what is >>>connected to what in a microscopic sense. Yes, it's mostly that where >>>there are a lot of adhesions is where you are going to find the >>>adhesions that are giving you the problems, but maybe you are just one >>>of the statistical outliers... I know that when it comes to endo >>>adhesions it is pretty common that women with just a few adhesions are >>>in a lot more poin than women with tons of them. (And no, nobody really >>>has a clue why.) >>> >>>I think that you really need to be listening to what the doctor is >>>saying "between the lines" here. It's possible that the reason that he >>>didn't see much over on the right is that he didn't really know what he >>>was looking for. Or maybe he couldn't get the scope over there very >>>well to look. I think laporotomy should be out of the question unless >>>you are in an emergency condition, like a bowel obstruction that they >>>can't clear. It's just going to make things worse. And if this surgeon >>>doesn't believe that he is skilled enough to do this with a lap, then >>>YOU sure don't want to be arguing with him, right??? >>> >>>I think that the idea of seeing other specialists in order to rule out >>>other stuff is a wise choice. I think that you should also be searching >>>for another adhesion specialist. After 11 surgeries, I think you should >>>really think about trying something else, or at least trying somthing >>>with another surgeon... >>> >>>At Sun, 12 May 2002, Tami wrote: >>>> >>>>Help............. >>>>I've been away for a long time but now I have returned. I am seeking >>>>advice and of course moral support. I just went thru my 11th surgery >>>>for adhesions. It was outpatient with the laproscope and my Dr did not >>>>remove any of the "ton" of adhesions that he saw. My pain is mostly >>>>right-sided with some on the left. Problem is the Dr saw the "ton" on >>>>the left and didn't see anything on the right. He states that my pain >>>>cannot radiate that far...and he states that it will require a laprotomy >>>>to remove the extensive adhesions on the left. Now I know from my pain >>>>and experience what I am feeling is adheisons on the right. But before >>>>he will do the Laprotomy he wants me to see a Gastro Dr and a Urologist >>>>to rule out irrital bowel, etc , of which I have no symtoms. Only pain >>>>meds I've been put on is Tylenol 3...which is doing nothing....just >>>>curious if anyone out there knows of a good surgeon in Las Vegas? or >>>>should I go ahead thru all the tests and more agonizing pain waiting to >>>>find out. My quality of life now sucks and I am so ready to just hang >>>>it all up....help >>> >>>-- >>>cathy :-) >>>