Shali
At Mon, 13 May 2002, Tami wrote:
>
>Thanks for the replies and the information. From what I have read about
>adhesions is that alot of Doctors don't all believe that adhesions cause
>pain and alot of them say it could be IBS....but do I need all the
>testing if I don't have any symtoms of IBS?? I had a complete
>hysterectomy in 1996 and it took 6 hours to complete because of all the
>adhesions, bowels, bladder, ureters, etc. I have always gotten some
>relief from the surgeries, it just always comes back. My doctor that
>did my surgery on April 15, 2002 told me that there was no way he could
>get the "ton" of adhesions with the laproscope this time. And he has
>agreed to do the surgery on me. But before he does it he wants to rule
>out anything else, so that is why I have to see the Gastro DR and also
>the Urologist...I saw my PCP yesterday and he told me that I should have
>the tests done just to make sure there is nothing else going on. He
>also told me that they have used different types of radiation therapy
>for adhesions...Have you ever heard anything like that before??? He also
>gave me a RX for Neurontin. He told me that when people sometimes have
>a limb amputated they still have nerve endings that make them think they
>still have the limb...he said this medication is to desensitize
>(Misspelled sorry) the nerve endings and hopefully help my pain
>medication work better....So I'll try it!!
>Sorry to just ramble on like this, I am just thankful to find people to
>talk to about all this....you don't know how grateful I am...I truly
>am....thanks
>
>At Mon, 13 May 2002, Shali wrote:
>>
>>I have to entirely concur with Cathy on this one and I'll tell you why
>>in another point of view. Your doctor has mentioned IBS. Interesting.
>>If you read my other post I mention this because I have the problem as
>>well. Of course, Ive had two emergency surgeries for adhesions, but the
>>IBS is whats underlying the whole disease thing anyway. I would see
>>whats going on INSIDE the gut which is easily done with metabolic
>>testing. You do not even have to go anywhere! Dr. Trent Nichols in
>>Hanover, PA will do phone consultations and send you the kits to send to
>>the lab! He is a gastroenterologist and took part in writing the book
>>Optimal Digestion. Want the number? Let me know, I'll dig it up. The
>>phone consultation runs between $77-110 depending on the amount of time
>>spent. There are times when I DO feel improvement like yesterday. Other
>>times not so much but that is the nature of IBS anyway and especially
>>being sick for 8 years and 4 surgeries. A CDSA [comprehensive
>>diagnostic stool analysis - NOT the ones the MD's run], will tell it
>>ALL. Its about $225 and it will show dysbiosis, ph, vegetable
>>digestion, protein digestion, yeasts,etc., metabolic markers and give
>>the full picture. Think I would rule that out or in first. Thats my
>>two cents.
>>
>>--
>>Shali
>>
>>At Mon, 13 May 2002, cathy:- wrote:
>>>
>>>Given that Person #1 can have insides that look like an explosion at the
>>>glue factory and yet not be in any kind of discomfort, and Person #2 can
>>>have relatively minor adhesions and be in agony, it would not be totally
>>>crazy to think that someone would only have the pains where the
>>>adhesions look "minor." It's all very much a matter of precisely what is
>>>connected to what in a microscopic sense. Yes, it's mostly that where
>>>there are a lot of adhesions is where you are going to find the
>>>adhesions that are giving you the problems, but maybe you are just one
>>>of the statistical outliers... I know that when it comes to endo
>>>adhesions it is pretty common that women with just a few adhesions are
>>>in a lot more poin than women with tons of them. (And no, nobody really
>>>has a clue why.)
>>>
>>>I think that you really need to be listening to what the doctor is
>>>saying "between the lines" here. It's possible that the reason that he
>>>didn't see much over on the right is that he didn't really know what he
>>>was looking for. Or maybe he couldn't get the scope over there very
>>>well to look. I think laporotomy should be out of the question unless
>>>you are in an emergency condition, like a bowel obstruction that they
>>>can't clear. It's just going to make things worse. And if this surgeon
>>>doesn't believe that he is skilled enough to do this with a lap, then
>>>YOU sure don't want to be arguing with him, right???
>>>
>>>I think that the idea of seeing other specialists in order to rule out
>>>other stuff is a wise choice. I think that you should also be searching
>>>for another adhesion specialist. After 11 surgeries, I think you should
>>>really think about trying something else, or at least trying somthing
>>>with another surgeon...
>>>
>>>At Sun, 12 May 2002, Tami wrote:
>>>>
>>>>Help.............
>>>>I've been away for a long time but now I have returned. I am seeking
>>>>advice and of course moral support. I just went thru my 11th surgery
>>>>for adhesions. It was outpatient with the laproscope and my Dr did not
>>>>remove any of the "ton" of adhesions that he saw. My pain is mostly
>>>>right-sided with some on the left. Problem is the Dr saw the "ton" on
>>>>the left and didn't see anything on the right. He states that my pain
>>>>cannot radiate that far...and he states that it will require a laprotomy
>>>>to remove the extensive adhesions on the left. Now I know from my pain
>>>>and experience what I am feeling is adheisons on the right. But before
>>>>he will do the Laprotomy he wants me to see a Gastro Dr and a Urologist
>>>>to rule out irrital bowel, etc , of which I have no symtoms. Only pain
>>>>meds I've been put on is Tylenol 3...which is doing nothing....just
>>>>curious if anyone out there knows of a good surgeon in Las Vegas? or
>>>>should I go ahead thru all the tests and more agonizing pain waiting to
>>>>find out. My quality of life now sucks and I am so ready to just hang
>>>>it all up....help
>>>
>>>--
>>>cathy :-)
>>>
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