Hello there-I'm not sure what I want to say, but I found this letter that you wrote about having hirschbrungs disease, and I needed to write to you. My son is 4 months old, and was born with HD, and had surgery, and the colostomy bag for 3 months, and a few weeks ago, had the reversal surgery. Within 1 week after being home, he went back to the hospital, mainly because he was dehydrated, and really wouldn't eat much, in fact we just got home from the hospital today, and he did fine in the hospital (while he had an I.V in his arm) but now that we are home he won't eat again, he hasn't since we left the hospital, and threw up tonite, and is looking dehydrated again (sunk in eyes)... Basically I guess I am just looking to find out about your experience with HD and do what I can to help my son get through this, We feel that we may have a long road ahead of us, him only being 4 months old, he really can't tell us anything about what he is going through.... after reading your letter I could just cry, because I can't picture this happening to our baby, especially since the Dr. told us everything should be ok, that most kids are very normal after going through this "somewhat common procedure" but it seems that your surgery at a young age proved to be a mistake for you..why? Please write back with your advice or knowledge about this disease, I know that it is passed on from us, but don't know about post surgery problems... I will be looking forward to hearing from you........Tracey
-- Tracey