Re: Interesting point Cathy

From: clare (
Wed Jan 9 13:37:01 2002

Hi Jayne:

I too have been diagnosed with IBS, but that was many years before I began this nasty spiral of pain that I'm currently living in. I have been able to control my IBS by religiously taking Metamucil and an anti-inflamatory medicine called Ultrainflavogen, as well as changing my diet. This worked quite well all along until I had my laparotomy almost 2 yrs ago. I am very sure that what I am experiencing now is not from IBS.

I'm in Toronto, Ontario. My gyn does believe that adhesions cause pain, and he does believe that adhesions may be the cause of my pain.

That said, as far as I can tell, there are no adhesion specialists here. For instance, any surgery that I would have for lysis of adhesions would be done by my gyn. Also, when I asked him for a referral to a pain specialist, he informed me that they are very backlogged (around a year) and that all organic and pathological causes of the pain have to be ruled out first. For me that means I have to have a diagnostic laproscopy, and at that time I decided to put another surgery off for as long as I could.

I'm with Nancy on the state of our health care system here. I know that I've put off having the diagnostic lap just about as long as I can, but I think it is unfair that I am denied help with my pain because I can't drop everything in my life to have a surgery. In fairness to the Dr., I must say that if I thought the surgery would help me I'd jump at the chance, but he's been quite honest with me about the fact that the surgery may not help and in fact may make my pain worse....

I wish you luck. If I find out any more info on anything Canadian I will let you know. Would you please let the rest of us know what you find? Best wishes.

At Tue, 8 Jan 2002, Jayne wrote: >
>Wow Jo, I was diagnosed with IBS too. I think I am really going to see Mark
>(GP) about this now.
>My past record of adhesions after appendectomy (medically proven after a
>barium meal X-Ray), severe adhesions after my total knee replacement which
>left me with a leg I can't bend, the medical report that states my gall
>bladder was full of adhesions when removing it and that I had my right
>fallopian tube removed during pelvic surgery due to them being riddled with
>adhesions must back me up surely?
>I would say I am a likely candidate for adhesion formation and especially as
>I have had 31 surgeries to date. If Mark doesn't do anything though I am
>not going to let this go. Does anyone know of anyone in Ontario, Canada
>(preferably the Niagara, Hamilton Wentworth, Peel or GTA area) who could
>help me with this?
>Thanks and take care
>> I believe that there are many unknowing adhesions sufferers out there who
>have been miss diagnosed >with IBS. My husband is one such example. He has
>had very severe bowel problems for as long as I >have known him (over 20
>yrs) and he had always experienced some problems with constipation. He
>>progressively got worse until he was finally diagnosed with extreme IBS.
>The only test that he hasn't >been submitted to is a diagnostic laperoscopy,
>which I believe would show that his bowel is somehow >affected by adhesions.
>What the doctors have failed to take into consideration is the fact that
>Shane had >is appendix out at just 18mnths old! He was then rushed back
>into surgery a short time later because of >adhesions.... he is now 40 years
>old with some of the same problems and pain that I experience... the
>>difference between us is, my doctors & I both know that adhesions are a
>major factor in all of my health >problems and Shane is still unaware ! of
>the cause of his.


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