JEAN
"Birthdays are good for you: the more you have the longer you live" -----Original Message----- From: adhesions@adhesions.org [mailto:adhesions@adhesions.org]On Behalf Of Kimmi&Dave Sent: Wednesday, November 21, 2001 12:13 PM To: Multiple recipients of list ADHESIONS Subject: Re: another update from Helen G
Helen, Pain management is an excellent place for any one suffer with chronic pain. Just have to make sure you go to a true pain management center. Many chiro's,homeopathic ect call them selves pain management. Pain management centers are primarily ran by anesthesiologists and doctors that specialize in treatments for pain relief. There are a variety of treatments that anesthesiologists can try some people get relief some do not. I am sorry that doctor did not remove those adhesions, you know that really ticks me off too. They should when they are in clean all adhesions that they see even small areas that are connected to anything eventually they will grow and attach to something and then you are twice as much pain. I suffer with nerve damage and nerve pain. I use neurotin for this, neurotin is an anti seizure type drug that they found out is excellent for nerve pain. And the dose of neurotin can go extremely high. Many doctors start at 300 and the drug can go up to 4800mgs I believe. I take 1600 mgs, it helps with my face alot. I have trigiminal neuralgia which is chronic head neck and facial pain. On days that aren't too bad the neurotin helps on really bad days no matter what I take it won't help. Vascular pain is the veins/vessels expanding and causing pain. Sometimes they bleed which is what they really watch out for.
I also suffer with excruciating back pain, they believe from the dye test they did that the adhesions are pressing on the spine and nerves there. The best doctor to see for this is a neurologist, that is the one I see for my nerve pain. He is also the one who prescribed the Neurotin you may want to ask him about it. Hugs hon sorry your having a rough time Kimmi
> ----- Original Message -----
From: Helen Gibson
To: Multiple recipients of list ADHESIONS
Sent: Tuesday, November 20, 2001 10:37 PM
Subject: another update from Helen G
Hi to all, I hope that your week has been going well, and welcome to all the new people on the board.
What a week I have had!!, and thankyou to everyone for their kind words. I went to see my surgeon on Monday for my post op appointment, and I told him that I was still in pain and that my leg pain had returned and my right hand sided pain hadn't gone away at all. We were talking about the operation and I'm sure that in hospital he had told me that their were no adhesions on my right side, so I said if there are no adhesions on my right side what's causing the pain?, he said Oh there are adhesions there, but I didn't remove those ones, I didn't think they would be causing you too many problems... this is after I told him before the surgery to make sure and have a good look on the right hand side because I was getting alot of sharp pain their!!! So what a big waste of time...he's left half the adhesions in their. So at least now I know that I'm not going crazy !! LOL, but I'm disappointed to know that he didn't remove them all. With the other pain that I'm experiencing still, he thinks it may be nerve damage or vascular pain, and he wants me to see a back specialist to see if my back may be causing some of the problems, he doesn't think that the adhesions would have formed enough in 3 weeks to be causing the pain that I'm experiencing. So I'm back to square one yet again, he did mention that perhaps pain management might be the way to go, and if it's nerve damage then there's not much that can be done. Has anyone heard of Vascular pain? Just interested to know, he said to take my pulse when the pain is bad and see if it's in sync with the throbbing pain that I get. Thanks for letting me get that off my chest
Love Helen G