Re: gross question

From: Rosie (
Wed Aug 8 12:40:41 2001

Lillian, that is so discouraging to hear that you are already suffering again so soon after your surgery. I'm scared of taking pain pills for fear it will slow my system down and make things worse. I had constipation after my Hysterectomy from all the pain meds I was on so think I can stand the pain more than the other. Do you think you will have to have another surgery or do you think it is worth it since the adhesions just come back anyway? I've heard mention of a substance they are working on that will help prevent adhesions from forming (some kind of barrier) - does anyone know more about this and when it will be available and approved for use in the US? Rosie

>----- Original Message -----
From: "Lillian" <> To: "Multiple recipients of list ADHESIONS" <> Sent: Wednesday, August 08, 2001 6:20 AM Subject: gross question

> Dear Rosie,
> In regards to your ribbon like stools and painful intercourse. I have just
> had surgery 6 wks ago because of this horrible pain from adhesions. I used
to > take 2 Darvocet before intercourse and 1 after. Now after surgery I am no
> longer taking pain pills and my bowels had cleared up but they are now
> getting ribbony again.Intercourse is tolerable although I have up 5 bowel
> movements for 2 days after intercourse.Although I know they could not
remove > all the adhesions. I am starting to get the ripping pains in my sides and
> wake up with pain in my left side again.But I can still tolerate the pain
> without taking pain pills at this time. My husband is leary when it comes
to > sex but I can't deny him pleasure because he takes such good loving care
of > me. And my needs are just as great, as I am still young also, at least I
want > to think I am and I will make the best of the time I have. Sorry to hear
you > are having these problems but just wanted to let you know you are not
alone. > And I do look pregnant sometimes too.
> Hugs {{{{{{{{{{{{|}}}}}}}}}}}}}
> Lillian
> ----- original post ------
> Hi! I haven't posted in a long time as I feel I haven't really had
anything > to contribute as I only suspect that I have adhesions - I've never had a
> surgery for them as of yet. I had a Hysterectomy almost 2 years ago (I've
> told everyone my story before so I won't bore everyone by repeating it)
but > it was a nightmare complete with Staph infection, 2nd surgery, etc. etc. I
> have had pain everyday since the surgery (which I didn't need to begin
with > (IMO) - 20/20 hindsight. Anyway, my GYN (the 3rd I have consulted) says I
> "probably" have adhesions on my bladder and intestines. I have had bladder
> pain for almost a year now and have been to a Urologist who did tests,
etc. > and said it was probably adhesions but all he had to offer were pain meds
> which I refused. My new GYN's only recommendation was that I go to the
Mayo > clinic. After reading on this list about how that clinic doesn't really
> acknowledge that adhesions cause pain, etc. I really don't want to waste
the > time and money. I have another rather new symptom that I want to ask you
all > about. It's rather gross, but here goes - over the last few weeks I have
> noticed that my bowel movements are looking different - more flattened and
> sometimes I have pain (rather a deep ache) far up into my rectum. I have
> this same pain sometimes after sex and I don't know why I would have pain
in > that particular part of my anatomy after sex. Anyway, I was wondering just
> what my options are. I don't think any doctor wants to do surgery as long
as > there is no obstruction and I have regular bowel movements - just the
change > in appearance and a little more pain. Is this something that can stabilize
> and maybe never get worse than it is now (I could live with that) or do I
> have something horrible to look forward to and this is just the first sign
> of worse things to come soon. I'm hoping to hear something encouraging. I
> don't know if an obstruction is just around the corner (my sister in law
had > a Hysterectomy the week after me and already had to have a foot of
> intestines removed due to adhesions last year). When I ask my doctor about
> it, he never has much to say about it and just suggests pain pills and
> vaguely says something about how it probably wouldn't get any worse. I'm
> really hoping he's right - what do you all think and have any of you had
the > same symptoms? Sorry for the long post.
> Rosie

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