I wish I could come and take all your pain away. I totally understand. I spend alot of time in bed as well. I hate that my kids have to take care of their mom. I hate the fact that I have to take pain meds. I hate that I will have to rely on someone to drive me to the doctor. It really does stink! I know that the only thing that keeps me going is my beautiful children and my precious husband. ANd also my wonderful ARD friends who have given me so much love and compassion and support.
I really think you should get to see a doctor. Are there any other doctors in your area that you could see? I can understand your fear of having the surgery again after what you went through before. But remember too that it doesn't always happen like that. The percentages of those types of things happening is very low. And if that is what is going to bring you relief from your pain then you should consider it. If you are not comfortable with the same surgeon doing your surgery try to get another one. Sit and talk with him/her about your fears and what happened in the past. Maybe talking to a counselor about your fears would help as well. You are right though. There is more to life than suffering from ARD. We need to do what we can to enjoy that. I am really praying for you. Remember all of us here on the board will do what we can to get you through this. Just let us know what we can do to help you or give you peace of mind.
Love and great big bear hugs! Jenny
>From: "charlene" <charlene@prtc.net>
>Reply-To: adhesions@adhesions.org
>To: Multiple recipients of list ADHESIONS
><adhesions@mail.medispecialty.com>
>Subject: Fw: I cant carry on like this anymore!!!!
>Date: Tue, 27 Mar 2001 22:00:31 -0600
>
>>----- Original Message -----
>From: Eileen Rivera To: adhesions@adhesions.org
>Sent: Tuesday, March 27, 2001 10:05 AM
>Subject: Re: I cant carry on like this anymore!!!!
>
>Dear Jackie B,
>
>Hi...I'm also with a lot of pain after my surgery almost 8 weeks ago and my
>adhesions are back ! I thought yesterday I wasn't going to make it because
>of my desperation. It even came to my mind taking my car and driving 120
>mph and hitting a wall ! ........I tried placing ice bags on my abdominal
>area, heating pads...everything. It hurts so much that I couldn't hardly
>walk nor move. Even when I'm sleeping (if I manage to sleep a little) if I
>move the pain strikes me.
>
>I know what you are going through, try to go to a doctor ASAP, I know where
>you live there is more hope and medication than were I live. God bless and
>hope you can find a doctor to help you soon. Keep in touch.
>
>Eileen
>Puerto Rico
>> ----- Original Message -----
> From: jackie burgess
> To: Multiple recipients of list ADHESIONS
> Sent: Tuesday, March 27, 2001 7:34 AM
> Subject: I cant carry on like this anymore!!!!
>
> Hi everybody,
>
> I feel i cant carry on like this anymore, i'm constantly in bed for
>20hrs or more per day, can only manage to eat sandwiches anything bigger
>comes back up.
> I even phoned my priest this morning, so he came round to visit me and i
>told him how i felt.(If i go to sleep and not wake up then, i'll no longer
>be in agony).
>
> Dont think i am suicidal, as i'm not, I would NOT contemplate that.I
>just want some kind of relief from this nightmare situation.
>
> I havent been out of the house for ten days, except for an emergency
>visit to gp, (BUT) I'm really SCARED of going back into hospital, because
>of the accident that left me like this.
> If I go to hospital, then i have to go back to the same one, the
>thought petrifies me, even now i still have nightmares and flashbacks.
> As you all know the only way they can diagnose adhesions properly is by
>'keyhole' laparascopic surgery.It was this procedure that led to my bowel
>being punctured so I had to have a colostomy done, and, they punctured my
>bladder, ended up with suprapubic catheter(a tube that goes through abdomen
>to bladder and drains in to a leg bag, and a vaginal catheter,as suprapubic
>catheter couldn't cope on its own..
> As you can tell i'm really depressed and dont know how much more pain
>and vomiting i can cope with, and the weight loss.
>
> I hope u can try to understand the way i'm feeling, and why I am so
>SCARED of going back to the hospital.
>
> Perhaps some of u have felt like this before?
>
> Is there not more to life than living with ARD?
>
> Regards
> Jackie B England
> (stickybits)