I am so sorry to know that your mom has scleraderma. We had an 8 year old little girl at our church who had that same disease. Everyone thought that she had been in a car wreck or something. If you made an imaginary line down her little body it was real strange. You would think it was two different people. The whole left side of her body was affected by the disease. She had to have her left leg amputated. Her left arm and hand was so much smaller than her right and her face was real disfigured on the left. Like I said if you made and imaginary line down her face to divide it and only looked at one side you would never know it was the same person. She was a precious little girl and real open about what was wrong with her. You know how curious other kids can be. We go to a different church now so I don't know how she is now. I know her disease had been in remission but had just become active again. I would love to know how she is doing. I am sorry to hear about your mom though. It makes what we go through seem like nothing. I will be praying for her and you and strength for you to make it through this awful disease. If there is ever anything I can do, whether it is just to listen or to pray, please let me know.
Love, Jenny
>From: SAM7398@aol.com
>Reply-To: adhesions@adhesions.org
>To: Multiple recipients of list ADHESIONS
><adhesions@mail.medispecialty.com>
>Subject: Re: post op pain
>Date: Mon, 26 Feb 2001 05:42:22 -0600
>
>Millie,,
>I am so sorry for your loss, I can identify a little bit in that area with
>you as well. My mom has not passed away, but she has a life threatning
>debilitating disease called scleraderma. I don't know if you have ever
>heard
>of that, but it is a awful disease and she can't use her hands anymore at
>this point and it looks like it isn't getting any better. I am also miles
>away from her, I look at her at age 49 and then I look at myself at age 27
>and think "My God why do we have to go through this at such a young age"?
>Thank you so much for your support and listening, I have been keeping up
>with
>your posts and I am so sorry for all of the awful things that the doctors
>have said to you, I can relate because they have all said awful things to
>me
>to. Sometimes it does make you just want to give up, but I know we can't
>do
>that, I hope in a few months things work out and you are able to have
>surgery
>with Dr Redan..I believe you would have so much needed relief. I am praying
>for you.
>In Friendship
>Stacey