Re: Why is my surgeon giving me such a hard time?

From: Millie (
Fri Feb 23 21:44:11 2001

Jean, You had a nightmare,too. It changes you for life when these things happen. I cannot afford to go through too much more. I have lost a lot of weight. Everyone comments on it - like I can't look in the mirror. Did the gastric tube hurt? Is that the nasogastric tube,or another kind? I am scared to death of them, even though I haven't yet had one. Millie

>----- Original Message -----
From: "Jean (from PA)" <> To: "Multiple recipients of list ADHESIONS" <> Sent: Friday, February 23, 2001 5:20 PM Subject: Re: Why is my surgeon giving me such a hard time?

> At Wed, 21 Feb 2001, Millie wrote:
> >
> >Se,
> >I am going through hell, too. All because of a TAH that I find out I
didn't > >need. She left the right ovary.She said the path. was o.k. She said the
> >organs she removed were in pretty good shape.So why did she mangle me? I
> >have hurt every day and night since I came home. Bowel function is not
good. > >She laughed at me and called me her "colicky baby." She tried to pass it
off > >as irritable bowel, becase it was the lazy way out to read my past
history, > >and not consider she hacked me up. You don't know what this has done to
me > >mentally and physically. i have a lot of bowel problems, and pain so I
can't > >standup straight, walk right, sit for too long, or lay down certain ways.
I > >don't see anything ever improving - here it is over 3 weeks. I am mad at
the > >women I know here. They all were glad they had theirs done. NOT ME!!!! I
> >guess I can't blame them, though. Yes, adhesions can and do re-form after
> >surgery, the more they cut and move things around, the more adhesions
you > >get. I bet I am 10-fold with them since the surgery. She was supposed to
> >have cut them, and put in Interceed. But I read where that's not a sure
fire > >cure all. She found minimal endo, which according to the post op report,
she > >did nothing with. I read somewhere that women ob/gyns are more apt to
hack > >you up. I don't know why. I never should have agreed to let her even cut
> >me, because once they have you under, they can do whatever they want. I
am > >sorry I'm so bitter, but I can't be left like this, or worse, forever. I
> >have thought about the pill route,too, but with my luck, it would
backfire > >and leave me worse off! LOL. My gastro gave the whole dept. orders not to
> >accept any more messages from me - he said because I called the office
too > >much, as well as after hours. I thought that's what they are there for.
He > >sid I'd have to see their psychologist, or he wouldn't keep me as a
patient. > >I told the psychologist that since what happened to my Mom, and to me,
that > >I don't trust many Ds. - including that ob/gyn. But I bet the gastro
liked > >my money, and the ins. co. money. Someday I pray to be better so i can go
in > >there and tell them all what I think of them - especially the ob/gyn. A
lot > >of them just don't care. You're just a $ sign.
> >Keep in touch.
> >Millie
> Millie,
> I have had MANY empathetic doctors in the past.
> The only really good empathetic one retired on me!!!
> He was a GYN who only dealt with womanly problems, not childbirth
> anymore.
> The ovary he took out (last one) was attached to my vaginal wall inside
> by adhesions. It also had cysts on it.
> He even said after his surgery "no wonder you were in so much pain". He
> said he had never seen anything like it in all his years of practice.
> He also found adhesions on the peritoneum and gall-bladder.
> The doctor who took the 1st ovary was a completely different story!!!
> He did my first ovary surgery but said nothing was wrong with me when I
> went back with the problems with the 2nd ovary......RIGHT!
> I got my reports from him a few days ago and I saw he even wrote on his
> reports that I have an extremely "low tolerance for pain"!!!.....after
> all I have endured over my lifetime and 17 surgeries!
> During surgery he had:
> 1. removed the ovary from the bowel which it was firmly adhered to,
> which also had cysts on it. He even said it took an extreme amount of
> time to get it off of the bowel.
> 2. had to remove the ovary and tubes completely.
> 3. repaired (sewed) my bowel, so he must have punctured it getting the
> ovary loose.
> 4. removed part of my Omentum
> 5. removed silk sutures which he said were imbedded terribly in my
> Omentum for some reason. He had to give up cause it was impossible to
> get them all.........
> BUT he couldn't understand why I was in allot of pain afterward!!
> This was all done with a full sized laparotomy incision, plus my bowels
> were all messed up from him working on them and I couldn't go or let any
> gas afterward (intestines go into shock).
> He didn't think I should have needed pain pills 2 days later. I finally
> had my husband sneak my Herb-lax into the hospital and after I took them
> I passed allot of gas, moved my bowels and was ok!!
> There are allot of doctors out there who probably have never even
> experienced pain of surgery themselves, let alone adhesions!!
> With my other 2 adhesion surgeries (different doctor) which involved the
> bowels and a laparotomy incision I had a gastric tube inserted so I
> wouldn't "blow up" and get as much pain when the bowels went into shock.
> JEAN (from PA)

>> >----- Original Message -----
> >From: "SueT" <>
> >To: "Multiple recipients of list ADHESIONS"
> ><>
> >Sent: Wednesday, February 21, 2001 10:52 PM
> >Subject: Why is my surgeon giving me such a hard time?
> >
> >> Dr. Wiseman stated in a recent chat, "even the most skilled surgeons
> >> will have adhesions come back - the trick is to get someone who will
> >> work with you."
> >>
> >> Hello everyone. I've only posted perhaps a couple of times here mostly
> >> due to the fact that I'm not so sure that I have much to offer in the
> >> way of help to others. I'm still learning.
> >>
> >> Nearly two years ago, a laparoscopy was performed on me by a very, very
> >> skilled surgeon. Endometriosis was found and treated along with
> >> adhesions which were lysed. Ovary adhered to pelvic sidewall and
> >> sigmoid colon. Until I had recuperated from the surgery, I had no idea
> >> what normal bowel function was! With the exception of some monthly
pain, > >> I was well for approximately 7 months. Constipation returned, but even
> >> worse along with tremendous abdominal distention, pain seemingly
> >> everywhere, pulling sensations, bladder difficulties and more. I have
> >> now seeked the help of the same surgeon. I have seen innumerable
> >> specialists and had many, many procedures performed. The surgeon is
> >> insisting that I have irritable bowel. It truly seems as though he
just > >> doesn't want to care for me. That scar tissue is out of the question.
> >> >From what I have read, this seems to be a common concern for many
> >> people, in that their care givers are giving up. The

gastroenterologist > >> for one, would rather not put that label on me until I've had another
> >> lap to rule out other etiologies (now thats a switch). Other
physicians > >> have stated that yes, scar tissue is a possibility along with others.
So > >> what's with the surgeon?????????????? I read somewhere that sometimes
> >> the surgeons have concerns about reimbursement from insurance companies
> >> due to the nature of the surgery. I have insurance and am quite
capable > >> of paying for the balance.
> >>
> >> Does anyone have any insight as to why the surgeon is causing me more
> >> grief than what I'm already going through? I'm totally miserable. I
> >> feel as though I must be insane or something. I feel like I'm being
> >> dumped. There was one instance for example, that I made a mistake with
> >> my pain meds, stumbled to bed, realized what I had done and thought to
> >> myself, "oh well, maybe I won't wake up" and went to sleep.
> >>
> >> Any input would be greatly appreciated.
> >>
> >> Sue
> >>
> --
> Jean (from PA)

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