Re: Adhesions and Endo

From: ZIMLICKI,PAULA M (MKT-PMZ@womans.com)
Tue Nov 14 07:33:51 2000


Dear Suzanne, I, too, had endo and now have adhesions from having so much abdominal surgery. Have you ever contacted the Endometriosis Association? I've been a member and a volunteer for 18 years. The organization is an excellent source of information and support. Members can put "requests for contact" in their newsletter, which is a great way of hooking up with others who have the same problem, and then being able to exchange information. The association has a website, too. Let me know if I can give you more info. Paula

Paula M. Zimlicki mkt-pmz@womans.com

> -----Original Message-----
> From: living@nwlink.com [SMTP:living@nwlink.com]
> Sent: Monday, November 13, 2000 7:30 PM
> To: Multiple recipients of list ADHESIONS
> Subject: Adhesions and Endo
>
> Hi everyone, I'm back. I came here a couple months ago and lurked &
> posted a little. This was at the point that I realized my problems
> weren't over and I suspected pelvic adhesions caused from endo. I had
> my last endo surgery 9 months ago, and within the last two months have
> had increased pain where my ovary was attached to my bowel. My ovary is
> long gone in a radical hysterectomy 1 1/2 years ago. I had another
> surgery post-hysterectomy for endo recurrance, and I have had excellent
> results for the endometriosis. I had extensive, severe endo with bowel,
> bladder, adeno, etc., as well as dense adhesions. I sometimes consider
> myself lucky that the only problem I have left is the pain in my
> hip/sciatic nerve from my endo days. But, this is my worst enemy pain.
> Out of all the pain I have had, this one is the thorn in my side. I
> also have bowel symptoms with this. This particular adhesion which is
> giving me grief is located posterior to where my bowel/ovary were
> married & has been removed twice.
>
> The only time I have had relief from these symptoms is when I was on
> bcp, pregnant or after each surgery. I am wanting another surgery, but
> know my chances of it regrowing are large. Does anyone know the
> percentage or the research regarding old adhesions reforming after
> excision surgery? What is the very best route to go regarding pelvic
> adhesions? I am on a personal quest for a pain-free life!
>
> I guess I am just realizing that pelvic adhesions can cause as much, if
> not more grief than the active endo. I thought this nightmare was over,
> somebody pinch me! Thanks everyone here for letting me vent, when I read
> all the posts here I realize I am not alone, nor will ever be alone with
> this affliction called adhesions.
>
> suzanne
>


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