>----- Original Message -----
From: klfindlay@adhesions.org.uk
To: "Multiple recipients of list ADHESIONS"
<adhesions@mail.medispecialty.com>
Sent: Sunday, November 12, 2000 8:26 PM
Subject: Chrissie, Re Don't get disappointed
> My Dear Chrissie,
> I have been waiting on this letter from you for a few weeks. I felt in
your
> last letter that deep down you were worried about the pain returning. I am
> so so sorry for you. I know exactly how you feel.The disappointment runs
> deep. When I had my last Adhesyolisis two years ago, I was shocked when
it
> returned within one month. This had never happened before. I always got at
> least 3 or 4 years before they returned. I believe you know your own body
> and when you have Adhesion pain there is no other like it. Trust your own
> instincts and get the medication that you need. Your Dr should give you
the
> medication straight away. Do not let them go through all this sh--,(exuse
> the language but I am so angry) its in your head. Its in your bl---y
abdomen
> and you need pain medicine soon before you commit murder. (HIS)
>
> If you take opiates and you have no pain, then you will get addicted. IF
> you have pain and you take an opiate it goes straight to where the pain is
> and you don't really get addicted. I used to worry about taking long term
> opiates for my Adhesion pain but I have found that even being on them for
4
> years I can come of them in a few weeks if I had to.
> At the moment you must feel that there is no hope. You must be saying why
> me. You are probably thinking, where do I go from here.
>
> When I had my op that didn't work, I felt all these things. I am the kind
of
> person that will do anything for anyone. If it is in my power to help
> someone, then I will. I kept saying over and over in my head, that I must
> have been a really bad person in my last life to deserve this.
>
> I told friends that I would be in a wheelchair within 5 years, and I was
> worried about what the future held for me, I felt that I was just waiting
> for the ARD to take over my organs and in 10/15 years I would be dead.
> that's if I could suffer the pain for that long. They looked at me as if
I
> was being melodramatic, just feeling sorry for myself, that I was
> exaggerating. They never new really how scared I was.
>
> I got up one morning and decided that if I was going to die then it
wouldn't
> be without a fight. Having Adhesions is like being a cat with 9 lives,
> operations) except we don't have that many. I reckon that I probably only
> have one life left and I don't intend to waste it.
>
> I was in a wheelchair within two years, its not so bad, it gives me some
> independence. I have started the United Kingdom Adhesion Society, Which I
> probably would not have done if my op had been a success. I intend to
> educate doctors and help other fellow sufferers, and ultimately get on top
> of this nightmare of a disease.
>
> I worry very much when I read the posts and everyone is jumping up and
down,
> claiming they are cured. I know its good to be positive, it gives us hope.
> It also makes everyone else here wish it could be them. I know this
because
> I have felt this myself.
>
> I am sorry, that your Adhesions have returned so soon after your surgery,
> but it will help people to be more cautious and not jump on the surgery
band
> wagon too soon.
>
> I have not heard of this oxycontin that you take. Is it good? I am taking
> Fentanyl 75mg and diclofenac 50mg. How many surgeries have you had? Will
you
> be able to have another one. I am going to wait until I get some good
> evidence, that it will work for me. Until then my fight will continue.
WE
> ARE NOT ALONE
>
> IN FRIENDSHIP KATH
> stickyfriends@adhesions.org.uk
>