At 07:44 AM 11/11/00 -0600, you wrote:
>At Fri, 10 Nov 2000, Mary Wade wrote:
>Mary,
>
>I don't think it was mentioned that it was going to be about "our"
>story. It was a documentary on nerve blocks and maybe their story.
>
>It sure sounds like they were having lots of pain and problems and found
>some relief through their treatment of choice. Maybe that treatment
>would help someone else.
>
>The public would still get an education about adhesions and the all the
>problems they cause. The topic may not be addressed from the direction
>you want but at least it is being address.
>
>Donna
>
>>Donna
>>
>>The reason that this struck a nerve with me was the last paragraph in the
>>post. Many on this board have attempted to attract media attention to the
>>problems we share. I have not been one of those. Finally, it appeared
>>that here was one among us who has access to the media through her
>>employment. I would find it unfortunate if her own successful experience
>>would be presented in a manner that would highlight that experience as the
>>norm. I certainly did not question the truthfulness of her own experience.
>> I apologize for writing it in a way that suggested that. I do, however,
>>want to put in a loud plug for a balanced story, if there is to be a story
>>about adhesions in the media. My reaction was not written as a response to
>>just another everyday post on here. I was reacting to the way that I
>>perceived that "our" story was going to be told. It's not a simple story.
>> My problems seem small when compared to the plights of some on this board.
>> My protective mother-bear instinct kicks in when I consider of their years
>>of unrelieved pain. Hope this explanation helps to clarify my seemingly
>>harsh attitude. Mary
>>
>>Mary
>>
>>I find it interesting that you say how glad you are that this worked for
>>them but that you feel for this to be posted certain points need
>>clarification and it must be truthful. Why would you assume they were
>>lying.
>>
>>It is one persons experience. They took the time and effort to write it
>>down and share with suggestions,procedures, and outcome on what worked
>>for them. Lighten up this was not a scientific study looking for FDA
>>approval it was one persons positive experience.
>>
>>Donna
>>
>>I found it very informative and was appreciative of the time it took.
>>>I wrote the previous email and then thought of other points of
>>clarification
>>>that are needed.
>>>
>>>At 01:07 AM 11/10/00 -0600, you wrote:
>>>> i am glad that i was reading my mail tonight and have time to answer
>>>> your questions about nerve blocks and trigger points. yes.....
>>>> yes.... they work very well.
>>>
>>>It is wonderful that you had good success in treating your pain. But that
>>>raises some important questions. Do these treatments work well
>>universally
>>>for pain caused by adhesions or they worked well for your specific
>>disorder?
>>>Where is the documentation in the medical literature that these methods
>>work
>>>well for pain caused by adhesions?
>>>
>>>i have had pelvic pain, kidney pain,
>>>> and have headaches on a daily basis. i was living at the
>>>> hospital more than at home and the quality of my life was not the
>>>> greatest. i would suggest that you check out your doctor very
>>>> carefully.
>>>
>>>How did you do this? What suggestions for this do you have?
>>>
>>>i have also had epidurals for pain, but the nerve blocks
>>>> are much better. i was lucky to find a wonderfull doctor and his
>>>> staff at touro hospital in new orleans. they have a pain treatment
>>>> plan that i have seen miracles take place there.
>>>
>>>"Miracles?" For our disorder? Does calling a treatment a "miracle," if
>>>there is lack of scientific evidence, meet the standards needed for good
>>>journalism? I followed this board over a period of time and learned the
>>>case histories of individuals here. They are real people. They are brave
>>>people who have been doctored and doctored, some of us for years. Pain
>>>clinics have been a part of our lives. This is the first pain clinic
>>>"miracle" for our disorder that I have read about on this board. I
>>believe
>>>that pain clinics with trigger injections and blocks have given most of us
>>a
>>>measure of help but that help has been far from miraculous. Using a
>>>journalistic broad brush to paint a "miracle" mirage is not good science.
>>>
>>>> i would discuss with your doctor where he trained and what kind of
>>>> medicine he will be injecting. they use different medicines in
>>>> the injections for different patients. the idea of the blocks are
>>>> to break the pain cycle.
>>>
>>>How would you describe the concept of "pain cycle"?
>>>
>>>you are usually numb in the area that is
>>>> injected. this last for different times for different people.
>>>> the injections are given over a period of time and you build up
>>>> to a level that works for you. you can never judge yourself with
>>>> anyone else.
>>>>
>>>> the other thing you need to do is physical therapy if you are
>>>> not doing so at this time. stretching is great. i never watch tv
>>>> now unless i am exercising at the same time. you may try
>>>>relaxation, and deep breathing. if you are not exercising because
>>>> of the pain .... and i know that it sound crazy but the things
>>>> i have listed here are only part of getting relief from pain.
>>>
>>>This is working for you and your pain. Those of us who have faithfully
>>done
>>>exercising and PT through our pain for years can say, "it's probably
>>better
>>>than not exercising but does it relieve our pain? Very little." Please,
>>if
>>>you are doing a truthful story and building that story only on individual
>>>experiences, have the courage to get individual experiences from the other
>>>side of the story.
>>>
>>>> back to the nerve blocks. i am sure there are different ways
>>>> they are given. dr morse at touro and his staff use a very
>>>> thin needle that is bendable. the injections do not hurt if
>>>> you will relax. and it is hard to do when you see what this
>>>> long thin needle looks like. he goes into my lower back 3 inches
>>>> on either side. all of this is measured before hand and marked
>>>> with a marker. i then turn over and he injects into the groin.
>>>> the needle only goes in right under the surface very gentle
>>>> and the area is numb as soon as the medicine is injected.
>>>> this is how it works on me but every patient is different.
>>>> dr morse does the blocks 3 times a week. they work so well that
>>>> all of the patients with every kind of pain you can imagine try
>>>> to get in first.
>>>> i have no idea where you are from, but you may want to call touro
>>>> infirmary in new orleans and ask for the pain unit on the 4th floor.
>>>> the staff is the best and they will be happy to answer any of your
>>>> questions.
>>>>
>>>> i host and produce tv programs and i am working on a documentary
>>>> about nerve block treatments.
>>>>
>>>> good luck
>>>>
>>--
>>Donna
>>
>
>--
>Donna
>