Re: Small victory

From: mark harrington (coodan@bigpond.com)
Wed Oct 11 22:50:51 2000


Hi everyone, I have been following your discussions for some time now and I congradulate you all on the way you prvide support and information to us all. I am from Australia (Perth) and I have been suffering this horrible condition for 4 years. Unlike you guys in America the support here in Australia in non-existent and if I had'nt found this wonderful web site I really think that by now I would be in the depths of depression. It took me 2 years of being passed around from gyn to gyn to be told that I had major internal problems, and following a viginal hysto and suspension of all major organs, I really thought my problems would be over. I had never heard of Adhesions, had never been told of the risks of getting Adhesions and so when the pain returned after 4 months I thought that it was all in my head. Fortuanly I have a wonderful Gyno who diagnosed ARD and I had futher surgery to cut adhesions, only to have them return again in 3 months. I then had another operation for adhesions, but during all these ops not one doctor told me that more surgery can cause more adhesions.I only realised this when I started to do some research on the subject. I am about to go in for another major surgery on the 24th Oct and I am praying that this time they will get it right with the removal of both my ovaries. This was my decision, not the Gyno's as I feel this is where all the pain comes from. I wish that we had the support networks over here that you guys have there and if there are any other Australians out there I would love to here from you. My heart and prayers go to you all , at least here in Australia it is free to have your surgery and you certainly don't get sent home on the same day, your lucky if your out of hospital in one week, I have talked to my Gyno of Adhesion issues and he has listened and hopefully learned but he seems reasonably on the ball with the pain and disruption it causes in our lives. Get the message out there and let them know its not alright to have to live in pain everyday, I am trying. Thanks for reading love Helen.

>----- Original Message -----
From: Renee Madron <madron2@yahoo.com> To: Multiple recipients of list ADHESIONS <adhesions@mail.medispecialty.com> Sent: Thursday, October 12, 2000 5:18 AM Subject: Small victory

> I would like to share my small victory with my IAS family. I had a gyn
> check-up today and my doc. acknowledged the severity of my adhesion
> disease, as well as offered to help me in my current project. I have
> been seeing my gyn for 3 years and I have waged war with him on several
> visits on behalf of others and myself, that suffer with the consequences
> of adhesions, but early on he wouldn't bend, in his acknowledgment of
> the subject and the problems they create.
>
> My adhesion disease is pelvic and abdominal, but they are also, severe
> and visible in my vaginal canal. Upon exam it appears, that I have a
> cervix, which I do not, I have had a complete and total hysterectomy.
> The adhesions in this area, attach at least two inches down into the
> vaginal canal, give or take a few centimeters. And as usual during an
> exam, like today, he asked that silly question, "did your former gyn
> leave a piece of your cervix"? That questioned angered me today, simply
> because I have answered it the same way many times in the past the same
> way, so I let him know a thing or two today, about myself and about my
> adhesion disease and my project, which in the past he wasn't willing to
> listen to, but I made him today, I stood in front of the door and didn't
> move until he had heard everything I had to say. I guess I looked a
> little funny, standing there in my fanciful white paper shirt and
> matching paper coverlet half held on. I don't advice anyone to act as I
> did unless you have a good relationship with your doc, which I do, but
> he tends to be set in his ways a bit and tends to need a slight "I got
> something to tell you" thrown at him.
>
> So, I do feel good about this victory, even as small as it is, it's
> still a step forward. Knowing too, that he is willing to aid me in my
> efforts of bringing recognition to this disease in my resident area is
> truly a good thing. So see, persistence does pay off, as well as
> educating one's self to a higher degree, in order to insure intelligence
> when discussing this subject with your physician(s).
>
> --
> Renee Madron
> Richmond Adhesion Society
> http://www.aboutras.org (Under construction)
> 765-965-7435
> madron2@yahoo.com
>


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