>----- Original Message -----
From: Robin <rmasse2333@aol.com>
To: Multiple recipients of list ADHESIONS <adhesions@mail.medispecialty.com>
Sent: Thursday, October 12, 2000 8:37 PM
Subject: Re: Small victory
> For years, I thought that my pain was from my Left ovary. I had at
> least one cyst. I thought that after my TAH it would be the end of my
> pain. Even after 6 years since my TAH, I still have pain. My pain now
> is the same as before, it seems like it is still my ovary giving me the
> pain, but, since I dont have either ovaries, that cant be it. It is the
> scar tissue. The first time I had this pain was in Nov 83, one month
> after my first c-section.
> Best of luck,
> Robin
>
> At Thu, 12 Oct 2000, mark harrington wrote:
> >
> >Hi everyone,
> >I have been following your discussions for some time now and I
congradulate
> >you all on the way you prvide support and information to us all.
> >I am from Australia (Perth) and I have been suffering this horrible
> >condition for 4 years. Unlike you guys in America the support here in
> >Australia in non-existent and if I had'nt found this wonderful web site I
> >really think that by now I would be in the depths of depression. It took
me
> >2 years of being passed around from gyn to gyn to be told that I had
major
> >internal problems, and following a viginal hysto and suspension of all
major
> >organs, I really thought my problems would be over. I had never heard of
> >Adhesions, had never been told of the risks of getting Adhesions and so
when
> >the pain returned after 4 months I thought that it was all in my head.
> >Fortuanly I have a wonderful Gyno who diagnosed ARD and I had futher
surgery
> >to cut adhesions, only to have them return again in 3 months. I then had
> >another operation for adhesions, but during all these ops not one doctor
> >told me that more surgery can cause more adhesions.I only realised this
when
> >I started to do some research on the subject. I am about to go in for
> >another major surgery on the 24th Oct and I am praying that this time
they
> >will get it right with the removal of both my ovaries.
> >This was my decision, not the Gyno's as I feel this is where all the pain
> >comes from. I wish that we had the support networks over here that you
guys
> >have there and if there are any other Australians out there I would love
to
> >here from you.
> >My heart and prayers go to you all , at least here in Australia it is
free
> >to have your surgery and you certainly don't get sent home on the same
day,
> >your lucky if your out of hospital in one week, I have talked to my Gyno
of
> >Adhesion
> >issues and he has listened and hopefully learned but he seems reasonably
on
> >the ball with the pain and disruption it causes in our lives. Get the
> >message out there and let them know its not alright to have to live in
pain
> >everyday, I am trying.
> >Thanks for reading
> >love
> >Helen.
>> >----- Original Message -----
> >From: Renee Madron <madron2@yahoo.com>
> >To: Multiple recipients of list ADHESIONS
<adhesions@mail.medispecialty.com>
> >Sent: Thursday, October 12, 2000 5:18 AM
> >Subject: Small victory
> >
> >> I would like to share my small victory with my IAS family. I had a gyn
> >> check-up today and my doc. acknowledged the severity of my adhesion
> >> disease, as well as offered to help me in my current project. I have
> >> been seeing my gyn for 3 years and I have waged war with him on several
> >> visits on behalf of others and myself, that suffer with the
consequences
> >> of adhesions, but early on he wouldn't bend, in his acknowledgment of
> >> the subject and the problems they create.
> >>
> >> My adhesion disease is pelvic and abdominal, but they are also, severe
> >> and visible in my vaginal canal. Upon exam it appears, that I have a
> >> cervix, which I do not, I have had a complete and total hysterectomy.
> >> The adhesions in this area, attach at least two inches down into the
> >> vaginal canal, give or take a few centimeters. And as usual during an
> >> exam, like today, he asked that silly question, "did your former gyn
> >> leave a piece of your cervix"? That questioned angered me today, simply
> >> because I have answered it the same way many times in the past the same
> >> way, so I let him know a thing or two today, about myself and about my
> >> adhesion disease and my project, which in the past he wasn't willing to
> >> listen to, but I made him today, I stood in front of the door and
didn't
> >> move until he had heard everything I had to say. I guess I looked a
> >> little funny, standing there in my fanciful white paper shirt and
> >> matching paper coverlet half held on. I don't advice anyone to act as
I
> >> did unless you have a good relationship with your doc, which I do, but
> >> he tends to be set in his ways a bit and tends to need a slight "I got
> >> something to tell you" thrown at him.
> >>
> >> So, I do feel good about this victory, even as small as it is, it's
> >> still a step forward. Knowing too, that he is willing to aid me in my
> >> efforts of bringing recognition to this disease in my resident area is
> >> truly a good thing. So see, persistence does pay off, as well as
> >> educating one's self to a higher degree, in order to insure
intelligence
> >> when discussing this subject with your physician(s).
> >>
> >> --
> >> Renee Madron
> >> Richmond Adhesion Society
> >> http://www.aboutras.org (Under construction)
> >> 765-965-7435
> >> madron2@yahoo.com
> >>
>