Re: This is so scarey

From: Judy Lankes (jllankes@mediaone.net)
Sun Jul 2 13:42:38 2000


At Sun, 2 Jul 2000, stevie wrote: >
>I had a complete hysterectomy 3.5 years ago and I had a laparoscopy done
>(6months after because of pain that started 3 weeks into recovery from
>the hysterectomy)it didnt resolve the pain and since I have undergone
>every test there is. My pain is mostly around the bladder and hurts
>like heck when it is filling and several doctors assumed it was Ic even
>though both the cystos I had were not done under general and both were
>normal. My question is can adhesions cause pain when you push on the
>bladder area? and it also is very painful when the vaginal anterior side
>is pushed on. I also have a pulling pain when I bear down.This is all
>so frightening thinking I will have to go through another surgery, and
>then I see here so many women suffering with multiple surgeries, I was a
>normal healthy 44 year old until a cyst on my ovary and a doctor who
>thought because I was 44 that I had no choice but to have a
>hysterectomy. The cyst was gone at the time of surgery. How many women
>out there are scared into a surgery only to end up totally worse than
>they started.I am not bashing doctors but if our female parts are so
>easy to eliminate, why then cant adhesion prevention and information
>about them be practiced more often? I was never informed on the risks of
>adhesion formation and the complications after from them.

--
=====================================================
Stevie, this is Judy from Southern California.  I am a 48+ year old
women with no more reproductive organs, history of adhesions, etc.  5
surgeries in 20 years.  Last surgery removed last ovary and tube, due to
a cyst.  Gyno surgeon say numerous adhesions, but didn't take them all
'down', because there were too many, and they were 'translucent' anyway,
which is a lot of bull, since adhesions get thicker/more fibrous and
smaller over time.

Adhesions can cause pain in the strangest places. Per my former pelvic floor massage/myofacial release therapist, there are adhesions around my psoas muscle (big muscle) and hip flexor muscle, which goes somehow through the gaps in pelvic bone, which cause lower back sciatica pain, on same side as abdominal pain. I have a lot of pain when bearing down, when trying to hold my urine whilst running to bathroom, while trying to "hold/grasp" husband's penis during intercourse. Sorry about being so graphic. Just wanted to qualify and relate my experience. Going on for 4 years, am I insane or what?

My opinion on medical community: A) They don't have the time to do research and/or their homework, and it's not life-threatening like cancer, heart attack, etc.. B) I believe the adhesion lysis is such a complex, long drawn out surgical procedure, the it isn't cost-effective for them. ie: they book surgery rooms, nurses, anesthesiologists, etc. for a certain length of time with a certain "PunchList" of tools required. It's an assembly line of sorts. It costs them more money to do this kind of skilled, detailed work, and probably (just guessing), if you watch ER or Chicago Hope, the drs. and admins have meetings where they decide what and how many of each procedure they are going to do and what's the profit. The pharmaceutical companies are doing research into these new products to pump up their profits, but convincing the medical community and FDA of their 'efficacy' is another story.

I guess we have to inform ourselves (thank God for the Web), since a lot of these 'professionals' aren't doing their jobs and informing us. Also, not everybody gets adhesions after surgery, and the only way to detect and/or eliminate them is through surgery. Catch 22...it sucks.

So it's up to the individual to do the research, and luck or God or places like this website leads you to a source that can help.

Personally, I'm waiting for a better gel/liquid or something that can give me a better chance of forming adhesions so quickly, and give me more leadtime without pain. Am I living in a fantasy world? Maybe, yes, and meanwhile my suffering affects every area of my life. But I'm not going to get 'cut again' until somebody will give me a chance of a possibility of success.

I don't know if this will help you at all, except to let you know you are not alone.

Judy

--
Judy in Southern California (I am 'BunkyBare' in AIM [aol instant messenger] and am '15259612' in ICQ, if you want to chat, rather than e-mail.

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