At Sun, 2 Jul 2000, Judy Lankes wrote:
> >At Sun, 2 Jul 2000, stevie wrote: >> >>I had a complete hysterectomy 3.5 years ago and I had a laparoscopy done >>(6months after because of pain that started 3 weeks into recovery from >>the hysterectomy)it didnt resolve the pain and since I have undergone >>every test there is. My pain is mostly around the bladder and hurts >>like heck when it is filling and several doctors assumed it was Ic even >>though both the cystos I had were not done under general and both were >>normal. My question is can adhesions cause pain when you push on the >>bladder area? and it also is very painful when the vaginal anterior side >>is pushed on. I also have a pulling pain when I bear down.This is all >>so frightening thinking I will have to go through another surgery, and >>then I see here so many women suffering with multiple surgeries, I was a >>normal healthy 44 year old until a cyst on my ovary and a doctor who >>thought because I was 44 that I had no choice but to have a >>hysterectomy. The cyst was gone at the time of surgery. How many women >>out there are scared into a surgery only to end up totally worse than >>they started.I am not bashing doctors but if our female parts are so >>easy to eliminate, why then cant adhesion prevention and information >>about them be practiced more often? I was never informed on the risks of >>adhesion formation and the complications after from them. > >Thank you Judy for your reply. It sounds as though youve been through alot. I only wished that 3.5 years ago I would have had a computer then, I have got alot of good information through the web. I had went to the library and got books on hysterectomies but everyone told me to take them back I would only scare myself more, that was my first mistake. I hope we are not living in unreality hopeing for something that will at least take us closer to the women we were before the surgery. I know we will never be the same weve been through too much, but all I am hoping for is relief from this pain to some degree. Thank you again for you reply, it does help to know Im not crazy and there is a reason for this pain. I am dreamercrow on aim >-- >===================================================== >Stevie, this is Judy from Southern California. I am a 48+ year old >women with no more reproductive organs, history of adhesions, etc. 5 >surgeries in 20 years. Last surgery removed last ovary and tube, due to >a cyst. Gyno surgeon say numerous adhesions, but didn't take them all >'down', because there were too many, and they were 'translucent' anyway, >which is a lot of bull, since adhesions get thicker/more fibrous and >smaller over time. > >Adhesions can cause pain in the strangest places. Per my former pelvic >floor massage/myofacial release therapist, there are adhesions around my >psoas muscle (big muscle) and hip flexor muscle, which goes somehow >through the gaps in pelvic bone, which cause lower back sciatica pain, >on same side as abdominal pain. I have a lot of pain when bearing down, >when trying to hold my urine whilst running to bathroom, while trying to >"hold/grasp" husband's penis during intercourse. Sorry about being so >graphic. Just wanted to qualify and relate my experience. Going on for >4 years, am I insane or what? > >My opinion on medical community: A) They don't have the time to do >research and/or their homework, and it's not life-threatening like >cancer, heart attack, etc.. >B) I believe the adhesion lysis is such a complex, long drawn out >surgical procedure, the it isn't cost-effective for them. ie: they book >surgery rooms, nurses, anesthesiologists, etc. for a certain length of >time with a certain "PunchList" of tools required. It's an assembly >line of sorts. It costs them more money to do this kind of skilled, >detailed work, and probably (just guessing), if you watch ER or Chicago >Hope, the drs. and admins have meetings where they decide what and how >many of each procedure they are going to do and what's the profit. The >pharmaceutical companies are doing research into these new products to >pump up their profits, but convincing the medical community and FDA of >their 'efficacy' is another story. > >I guess we have to inform ourselves (thank God for the Web), since a lot >of these 'professionals' aren't doing their jobs and informing us. Also, >not everybody gets adhesions after surgery, and the only way to detect >and/or eliminate them is through surgery. Catch 22...it sucks. > >So it's up to the individual to do the research, and luck or God or >places like this website leads you to a source >that can help. > >Personally, I'm waiting for a better gel/liquid or something that can >give me a better chance of forming adhesions so quickly, and give me >more leadtime without pain. Am I living in a fantasy world? Maybe, yes, >and meanwhile my suffering affects every area of my life. But I'm not >going to get 'cut again' until somebody will give me a chance of a >possibility of success. > >I don't know if this will help you at all, except to let you know you >are not alone. > >Judy > >-- >Judy in Southern California (I am 'BunkyBare' in AIM [aol instant messenger] and am '15259612' in ICQ, if you want to chat, rather than e-mail. >