Re: Newbie to Forum - Looking for Answers

From: Bernie and Beverly Doucette (
Sat Jan 29 13:24:18 2000

ARD has never been traced as a hereditary disease. Knowing the etiology of adhesion formation it would appear that it would not follow any genetic line at all.

But, adhesions are not so rare that one wouldn't see a number of people within one family suffer with them. It may be stated that the incidence of persons suffering with painful post surgical adhesions is of a low percent when compared to the percent of people that actually form post sugical adhesions, but when one takes into consideration the number of surgerys done throughout the world every day, the number of people suffering pain from post surgical adhesions is a lot of people...

I live in a town of 12000 pop. and within an eight bolck radius..there are nine people who suffer the problamatic painful post surgical adhesions..ARD!! One might ask the medical community just how THEY define, " rare!" Bev

>----- Original Message -----
From: Tara S <> To: Multiple recipients of list ADHESIONS <> Sent: Tuesday, January 25, 2000 4:45 PM Subject: Re: Newbie to Forum - Looking for Answers

> I don't know if there is any pattern of inheritance regarding the pain
> associated with adhesions, however, both my mother and grandmother have
> battled with them all their lives, particularly my grandmother, while my
> sister has had no complaints following her one operation (a C-section).
> Anybody else know anything about this?
> Tara
> ----Original Message Follows----
> From: (Peggie)
> Reply-To:
> To: Multiple recipients of list ADHESIONS <>
> Subject: Newbie to Forum - Looking for Answers
> Date: Tue, 25 Jan 2000 15:32:57 -0600
> Hi all! In cruising the web, I came across your site, and it appears
> that I have finally found the answer . . . I hope. Although there is
> no cure (and the hope of treatment through the gel rejected by the FDA
> in 1/12 is now dashed), at least an answer is better than "it's in all
> your head" or "it's irritable bowel."
> After reading volumes of material over the last couple of weeks, I
> believe that adhesions may well be my problem too. Here's the short
> history,
> 4/86 - appendectomy
> 6/90 - c-section
> 3/98 - left tubal pregnancy ("resolved" w/methrotrexate - no
> invasive surgery - Dr.'s word "resolve" -- nice,
> huh?!)
> 6/98 - pain begins in left lower quadrant
> many, many, many trips to different drs. in last year and 1/2
> finally, in 7/99 laproscopy performed - apparent 4 inch mass of adhesion
> on left tube removed and additional mass (don't know how much) on right
> tube
> YEAH - Pain free for a whole 6 weeks!
> But, it came back, and in the last 2 weeks, its worse then ever -
> affecting bladder and bowel function! Major lower back pain, nausea, and
> same old lower left quadrant pain, but with some fun "Stabbing pain"
> episodes mixed in!
> Also appear to have symptoms of Interstitial Cystitis (going to
> urologist 2/5) - but not sure if adhesions doing the mimic or not?
> (symptoms include frequency, pressure, pain (sharp stabbing in lower
> left and achy, etc.)
> Visit to gyn who did lap on 1/12 only produced a "sorry, their working
> on advances every day for adhesions" (obviously, he hadn't gotten the
> press release yet!) and a prescription for ponstel (which obviously
> hasn't worked - and he knew it wouldn't - there was no endometriosis
> found during the lap) - oh yeah, and about my 10th scrip in 2 years for
> antiobotics for WBC's in urine -"but you don't have a UTI -it's just a
> precaution" whatever that
> means . . .now 2 cultures later, "negative" but still have symptoms
> Anyway, originally I thought maybe ARD didn't apply to me cuz I didn't
> really have discomfort after open surgeries in '86 and '90 - but I
> really do believe the ectopic caused all of this - it's pretty
> coincidential that my pain started w/in 3 mos after that -- Another
> thought, do you see a pattern of inheritence here? Could any of your
> family members (parents) fit the symptomology? When my mom had her
> hystorectomy in '81, she apparently had bowel, liver, diaphragm and all
> sorts of other adhesed organs that took an extra several hours that the
> dr. didn't count on. But lucky her, no pain. Wonder why?
> I Still want to follow up w/urologist cuz in addition to the treatment
> of the ectopic with methotrexate (let me tell you -- that is the most
> WICKED drug ever- I don't think I have ever had soo much pain!), I had
> the most painful experience in my life -- the tech did a "reverse fill"
> of the bladder through a catheter to be able to do an ultrasound to
> check on the ectopic for potential surgery and then left the bag hanging
> keeping my bladder full beyond capicity until he could go find the dr. -
> approx. 10 minutes ! and gee, he couldn't understand why I was BALLING
> when he returned! he though it was the emotion of the ectopic - No bud,
> major pain!
> Anyway, thanks for listening. If you have any comments or
suggestions, > please let me know at the above e-mail address or here -- I actually
> came looking for some pain management ideas, and your postings and site
> have been helpful! Thanks! I guess I should count my blessings and also
> get serious about my health -- I know my pain hasn't been completely
> dibilitating as some of yours has and I can still function, but stories
> like Christine's (my condolences to all her knew her) sure make me want
> to take control and be more forceful w/drs. (instead of leaving the
> office crying and feeling like a failure, again!) -
> Take care to all,
> Peggie
> >

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