Re: What do I do now?
From: toni welsh (twelsh1@webtv.com)
Tue Nov 23 07:22:09 1999
At Mon, 22 Nov 1999, Laura wrote:
>
>Apparently, adhesions are nothing new. I'm one of those considering
>something drastic because no one seems to be able to help. Long story
>short:
>6/97 hysterectomy and left oophorectomy for severe endometriosis
>8/97 right oopherectomy with appendectomy (ob/gyn said she "couldn't
>find my ovary" it was already enveloped in a mass that included my
>appendix.
>4/98 removal of softball-sized pelvic mass that they call an ovarian
>cyst; half-way through 6 week hospitalization, developed small bowel
>obstruction, removed 24 inches of sb, redeveloped ileus
>12/98 removal of diverticulum that had developed from side-to side
>anastamosis (attached to stomach) and another ileus. Ten days after
>discharge, severe pain redeveloped inpatient 2 days, on 4 weeks TPN
>therapy at home.
>11/99 readmitted for partial small bowel obstruction (5 days) Two weeks
>after discharge, another partial obstruction. Surgeon states this will
>be an ongoing problem prescribes Bentyl then Levsin. No relief.
>
>The pain is getting progressively worse. My abdomen is distending as I
>am writing this. Everyone says that I am overproducing scar tissue and
>adhesions, and there is nothing they can do. I can't live like this
>anymore
Laura, do you have a pain counselor, or someone to talk to? I see a pain
clinic and the couselor there is great, she tries to ease my mind and
treats the epression this has all caused for me. I have never yet had a
bowel obstruction, 4 days after surgery, in the hospital I devevoped an
ileus, but it resolved itself within a few days, and that was painful
enough. Please if there is anything I can do, or you need someone to
talk to please email me. I would love to try to help, but like Gina, I
have no answers. Take care!
Toni