Re: Continuation of Adhesional Lysis New York

From: Merri Ellen (
Wed Oct 27 20:13:28 1999

Boy...did this post speak volumes to me personally!!!! I have been behaving extremely impatient and frustrated with my GP because they do not seem to be responding the way I want them to. NOT that I WANT more surgery. I just want somebody to do something. Does that make sense? I am an action taker. I examine problems...establish what the options are...pray and then MOVE! Unfortunately for me this doctor's office seems like they are six pages behind me in the book. (grrrrrr!) I have been responding with a strong level of uncooperativness with all of their plans for test after test. (painful...expensive...and ridiculously repetitive in my opinion) BUT...this post has given me food for thought. What if there is another reason for this increase in pain? What if there is another reason for all the other symptoms? What if I am WRONG and it is not the adhesions this time? I had already agreed to the further testing...just to shut them up basically...but now I think I will endure what lies ahead with a different attitude! Thank you for sharing your experience!

At Sat, 5 Jun 1999, Beverly J. Doucette wrote: >
>OOPs...hit the wrong button!!!
>If a medical facility DID NOT perform medical tests on a patient
>presenting with complaints of pain and assumed that thier symptoms of
>pain WERE due to adhesions because they have a history of them, what
>would you do if you DID have a tumor or cancer, and it went undetected
>because of a DR. writing your pain off as due to adhesions without
>checking into it? I'd be pretty miffed!
>My recent contacts with Mayo Clinic indicated to me that a number of the
>DR.s DID in fact feel that adhesions in and of themselves caused pain.
>Like almost every where else though, they have not come up with a
>practical treatment or surgical procedure that would benefit an adhesion
>former. Mayo will work with an adhesion patient through pain
>management. I did start my pain management through them. I cannot see
>a basis for an " investigation" into Mayo or any other medical facility
>because they perform medical tests on those of us who have a history of
>adhesions. I was found to have TWO tumors....and that was only through
>an adhesional lysis that I elected to have done in New York under DR.
>Reich! If he had not found them, who knows what might have happenend to
>me. I would not allow any local DR's to perform anymore tests on me as
>I was convinced that ALL MY pain was from adhesions and that there was
>no valid reason to put myself through testing that would have negative
>results for abnormal pathology let alone pay for tests over and over
>again...boy was I wrong!!! So, I have to advise all, for what it's
>worth, the testing is necessary and could save yoour life! If all tests
>have negative results for abnormal pathology, then it is probably your
>adhesions. It is then up to you to determine the next
>for them or live with them and try pain management. I do believe that
>the more educated one becomes to thier own disorder, the better equiped
>they are to discuss treatment with a DR...even down to what needs to be
>done in a surgery if you elect that route! I also feel that adhesional
>lysis performed in a certain way, CAN reduce the amount of reformed
>adhesions and in all probability, decrease the formation of DeNovo
>adhesions...I firmly believe that there are no barrier's created today
>that will be effective in dealing with adhesions..and I mean NONE! Once
>you learn what type of procedure is best for adhesional lysis, you can
>discuss it with your surgeon..even dictate how and what you wish to have
>done for you and this disorder! Helen, give me a back atcha if you wilL!
>Thanks Beverly

Merri Ellen

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