>From: hipjaynie@webtv.net (Jaynie Jarvis)
>Reply-To: adhesions@obgyn.net
>To: Multiple recipients of list ADHESIONS <adhesions@talk.obgyn.net>
>Subject: Re: toni-fears
>Date: Mon, 25 Oct 1999 12:45:02 -0500
>
>At Mon, 25 Oct 1999, toni welsh wrote:
> >
> >At Mon, 25 Oct 1999, Gina wrote:
> >>
> >>Hi Toni,
> >>I sure do understand your fears & why you have them! (It is same for me
> >>in my family with bowel problems, and cancer running in the family and I
> >>have pretty much had everything my mom had so far, and she died of
> >>cancer at 52. I'm 36).
> >>
> >>I am sure you are telling your docs of your family history correct? I am
> >>surprised that you aren't seeing a GI doc regularly to monitor your
> >>situation? I think if it were me, I would insist on being followed-up.
>I
> >>know a few years ago I had severe IBS (that I now believe was caused by
> >>adhesions). I was seeing a specialist almost monthly for years for this
> >>problem, I was followed VERY closely. No one even mentioned adhesions
> >>then, or I could have been saved 8 years of suffering from it. The
> >>adhesions on my bowels were removed in my last surgery 6 weeks ago.
> >>
> >>2 weeks ago I had serious bowel troubles, and pain and pressure. I am
> >>convinced I have new adhesions, this time on my lower intestines in
> >>pelvic area. It took me a week of taking laxatives, and an ER visit,
> >>plus an enema morning and night daily, before I started to get relief.
>I
> >>would suggest you try enemas also. It is less destructive than
> >>laxatives.
> >>Also try metamucil 2x a day, follow each glass with a FULL glass of
> >>water. Try to get away from laxatives such as senna, x-lax, etc. Those
> >>make things worse and don't promote a healthy bowel environment at all.
> >>Also if you could eat a salad every day, it would help.
> >>
> >>My bowels are now moving daily, but are a little sluggish (takes 3 days
> >>to eliminate a specific meal). I believe the zantac prescription I take
> >>for the suspected stomach ulcer, is causing the little bit of sluggish
> >>bowel constipation I still have. Today I am seeing a doc to switch
> >>medicines (tagamet supposedly doesn't have that side effect, zantac
> >>does).
> >>
> >>Hope this helps?
> >>Gina
> >>
> >>>yesterda I could
> >>>not even walk and to try to move the pain and costricting pain was
> >>>terrible. I have not gone to the bathroom for awhile, and I do think
> >>>that was part of the problem, but some of my drs just do not listen to
> >>>me, if I do not take a laxative of some sort, and they tell me senekot
> >>>being a vegetable laxative, will not hurt my bowel, I do not go. I am
> >>>feeling now my bowel has become reliant on laxatives.
> >>>
> >>>last week I took it on monday night, and the cramps kept me awak for 3
> >>>hours, and finally I did go, but it hurts to ave a bowel movement.
> >>>People who do not ave this problem do not understand the terrible pain.
> >>>For a lot of people it is just normal to go everyday. They do not
> >>>understand my fear, My mother dies after an epeisode kind of a bowel
> >>>obstruction, but I know now she had a different situatio. her bowel
> >>>died, and te blood supply was cut off to her bowel, and the drs kept
> >>>telling her it was the flu. Well she had 3 surgeries in 3 days 6 hours
> >>>long, and we lost her. She was very ill and I know this. We did not
> >>>know it then, she trusted her drs. WRONG!
> >>>
> >>>Well we lost another family member, he was 70 years old, but he had a
> >>>colonoscopy in June, and the dr DID tell him he could not get the scope
> >>>in, and he did have a blockage, well he was told to see a surgeon, and
> >>>he didn't. he got sicl on a Sunday, and they had to remove 7 inches of
> >>>his bowel, but he had already develped an infection, they put a
> >>>temporarycolostomy on him and gave him 48 hours and they would have to
> >>>go back in, well 28 hours later they performed emergency urgery again,
> >>>and he died he next night. Tis WAS a bowel obstruction that killed him
> >>>
> >>>My feras a so real and strong, and I am extremely scared of ANYMORE
> >>>surgery unless there is an obstruction, but when you have this happen
>in
> >>>your family so many times, and crohns disease in your son and sister
>the
> >>>fears are greater, I am scared, and very scared. Today I am feeling
> >>>better, but I am convinced that I am ahving partial obstructions at
> >>>times, do to the extreme pain I get at times. Do any of you understand
> >>>this fear, or am I crazy?
> >>>
> >>>I hope today finds you all happy, I am to the poit now where I do not
> >>>even feel like going out too often, and that is not me. I guess I just
> >>>want to feel good again, and time keeps going on. when is some one
> >>>going to find a way to help us. Boy I did not expect this to be so
> >>>long, sorry!
> >>>
> >>>Love to all,
> >>>Toni
> >
> >Gina, thank you so uch for your caring post. I have been treated fir
> >IBS for years, they changed te Levbid Itook for raninitide, it is a
> >generic for zantac. On top of that being constipating I have been on
> >narcotics for 7 months now. Seems every med I take it is constipating,
> >cannnot win.
> >
> >This morning I woke up with severe cramping , and still my bowels have
> >not moved. When I get those cramping pains and they are very strong, I
> >wait a little while, and even though it s very painful just to tr to
> >relief it, the gas is extremely hardto get out. This is all that has
> >come ut so far, not to sound gross, but that is the only way to explain
> >this to drs. I drank a large glass of prune juice which should work for
> >me soon. But this is why I feel I ave had partal obstructions, due to
> >the terrible hard pains after a laxative, I had 4 senekot and 2 colace
> >before bed. It works for awhile, then I go back on duphalc which is a
> >prescription syrup, this is safe to take forever, but it works for
> >awhile too, then I have to depend on something else. I sometimes feel
> >so discouraged I cannot tand it Gina, but something keeps us going. Now
> >the thought that something may work for us someday. By the waywith all
> >this on my mid, I am prod to say it is now a full month for no
> >cigarettes, it got rough Saturday, but I made it through tat day! Back o
> >the patch, it DOES help! I hope you feel better soon, Gina, I care too!
> >
> >Toni
>Toni, for some tempory pain relief a hot bath might help sooth bowel
>pain. I know it sounds like take an aspirin and call me in the morning!
>Someone should probably be home in case you can't get out.Good luck and
>keep us posted. Funny aren't we!But who else would understand but us.
>My family all claps when I finally go.It is a celabration and a big joke
>to them. Not to me, I usually have to go back to bed for awhile. JJ
>