Re: toni-fears

From: Gina (
Mon Oct 25 08:26:47 1999

Hi Toni, I sure do understand your fears & why you have them! (It is same for me in my family with bowel problems, and cancer running in the family and I have pretty much had everything my mom had so far, and she died of cancer at 52. I'm 36).

I am sure you are telling your docs of your family history correct? I am surprised that you aren't seeing a GI doc regularly to monitor your situation? I think if it were me, I would insist on being followed-up. I know a few years ago I had severe IBS (that I now believe was caused by adhesions). I was seeing a specialist almost monthly for years for this problem, I was followed VERY closely. No one even mentioned adhesions then, or I could have been saved 8 years of suffering from it. The adhesions on my bowels were removed in my last surgery 6 weeks ago.

2 weeks ago I had serious bowel troubles, and pain and pressure. I am convinced I have new adhesions, this time on my lower intestines in pelvic area. It took me a week of taking laxatives, and an ER visit, plus an enema morning and night daily, before I started to get relief. I would suggest you try enemas also. It is less destructive than laxatives. Also try metamucil 2x a day, follow each glass with a FULL glass of water. Try to get away from laxatives such as senna, x-lax, etc. Those make things worse and don't promote a healthy bowel environment at all. Also if you could eat a salad every day, it would help.

My bowels are now moving daily, but are a little sluggish (takes 3 days to eliminate a specific meal). I believe the zantac prescription I take for the suspected stomach ulcer, is causing the little bit of sluggish bowel constipation I still have. Today I am seeing a doc to switch medicines (tagamet supposedly doesn't have that side effect, zantac does).

Hope this helps? Gina

>yesterda I could
>not even walk and to try to move the pain and costricting pain was
>terrible. I have not gone to the bathroom for awhile, and I do think
>that was part of the problem, but some of my drs just do not listen to
>me, if I do not take a laxative of some sort, and they tell me senekot
>being a vegetable laxative, will not hurt my bowel, I do not go. I am
>feeling now my bowel has become reliant on laxatives.
>last week I took it on monday night, and the cramps kept me awak for 3
>hours, and finally I did go, but it hurts to ave a bowel movement.
>People who do not ave this problem do not understand the terrible pain.
>For a lot of people it is just normal to go everyday. They do not
>understand my fear, My mother dies after an epeisode kind of a bowel
>obstruction, but I know now she had a different situatio. her bowel
>died, and te blood supply was cut off to her bowel, and the drs kept
>telling her it was the flu. Well she had 3 surgeries in 3 days 6 hours
>long, and we lost her. She was very ill and I know this. We did not
>know it then, she trusted her drs. WRONG!
>Well we lost another family member, he was 70 years old, but he had a
>colonoscopy in June, and the dr DID tell him he could not get the scope
>in, and he did have a blockage, well he was told to see a surgeon, and
>he didn't. he got sicl on a Sunday, and they had to remove 7 inches of
>his bowel, but he had already develped an infection, they put a
>temporarycolostomy on him and gave him 48 hours and they would have to
>go back in, well 28 hours later they performed emergency urgery again,
>and he died he next night. Tis WAS a bowel obstruction that killed him
>My feras a so real and strong, and I am extremely scared of ANYMORE
>surgery unless there is an obstruction, but when you have this happen in
>your family so many times, and crohns disease in your son and sister the
>fears are greater, I am scared, and very scared. Today I am feeling
>better, but I am convinced that I am ahving partial obstructions at
>times, do to the extreme pain I get at times. Do any of you understand
>this fear, or am I crazy?
>I hope today finds you all happy, I am to the poit now where I do not
>even feel like going out too often, and that is not me. I guess I just
>want to feel good again, and time keeps going on. when is some one
>going to find a way to help us. Boy I did not expect this to be so
>long, sorry!
>Love to all,

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