Re: miracle? or What?

From: Christine M. Smith (
Wed Oct 13 07:24:22 1999

At Tue, 12 Oct 1999, ddtmm wrote: >
>What is the chances of having severe adhesions and endometriosis with a
>socked in pelvis which had to be dissected, that surgery was on 6/22/98
>continued severe pain, a diagnostic laparoscopic surgery was done 10/7/99
>and nothing was found to be the cause of pain, no endo, no adhesions no
> My first diagnosic surgery was done 3 years ago nothing was found then but
>the pain continued to get worse, so another doctor did surgery 9 months
>later to find adhesions endometriosis and adenomyosis a TAH was done, the
>pain continued to get worse. So again surgery was done, 6/22/98 and Severe
>adhesions and endometriosis was found a BSO was done. The pain was releaved
>for several weeks but returned with vengeance for over a year I have tried
>to get a doctor to believe I was still in pain, I finely was sent to a pain
>clinic which was little help. Again An GYN finely said he would do surgery,
>that is the one done 10/7/99 and nothing was found to be the cause of this
>What now ? What can be causing this pain?
>I had a colonoscopy done 3 years ago with no findings.
>My doctor did not talk to me after surgery only my husband, I have a follow
>up appt. next monday.
>Is there any hope to finding out what is causing this pain?
>This is no way to live, I have seen over 50 doctors and still no help, is
>there any one doctor that I can see that can help solve my pain problem. How
>can it keep going from nothing to something to nothing again?
> Thanks,

Hi Denise: There are two things I'd like to comment on about your post. First, since you had endo, the possibility exists that you still have endo, even though it looks negative at surgery. Have you thought of consulting an endo specialist, such as the Center in Atlanta? I believe they will do a free consultation by mail to advise you. I would think that your gyn docs would suggest something like Lupron to test this possibility. There is also the chance that your pain is not caused by adhesions/endo and never was, even though you had relief of pain after surgery. I know this sounds crazy but it is a possibility. There are many different situations that can cause pelvic pain-back problems, nerve entrapments, muscle syndromes. There is (or was, haven't checked lately) an excellent article on the ob-gyn website about the causes of pelvic pain and it includes many of these sources.

Chris S.

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