Her name is Jennifer Scott and her phone number is 412-359-4636. E-mail is jscott@aherf.edu. If you e-mail her I'd give her a couple of days to answer after the holidays. I don't think she checks daily -- although since I've been contacting her a lot recently and she knows I've been giving her address out, she might be checking more often. The name of the other liquid is icodextrin. I'm not sure what Adept is that you referred to, unless it's another name for the same thing. I had a laproscopy -- which is supposed to be one of the benefits of the intergel -- you don't have to have a laparotomy. I knew the intergel was put on immediately after the surgery. They apparently don't think there's any problem with a placebo effect. And they obviously can't hide it from the doctors in any case since the gel would be too different from the other liquid they use as a control. What they told me is that once they put the laproscope through and take a look and determine the number of adhesions, then they open a folder which says whether I get the intergel or the saline solution. I assume that Lifecore has some type of random computer choice thing. It's like "Can I have the envelope please?" For anyone who is interested in the intergel trials, I wouldn't wait too long. I was told they would be ending in December -- although I don't know if that's absolute or if they would extend the time if they need more participants. But since there has to be at least six weeks in between the original surgery and the second-look, time is getting close.
Good luck to all!
Sue Ann
>Sue Ann,
>I would also be interested in information available regarding ML
>Laboratory's
>clinical trial of Adept in the United States. I had a hysterectomy in
>1972 so I know that I do not qualify for the Intergel clinical trials.
>You can either post this information here or email me direct. Thank
>you!!
>
>I have really appreciated your willingness to share your experience. I
>do have two questions: Did you have a laparotomy or a laparoscopy?" and
>"At what point did you find out that Intergel was used in your surgery -
>and not a placebo?"
>
>At Fri, 3 Sep 1999, Sue Ann Murray wrote:
>>>
>>>For anyone who might be interested, I was talking to the clinical trials
>>>nurse and she found out that Lifecore (the makers of intergel/lubricoat)
>>>will fly any eligible patient out to LA to take part in the study there
if
>>>there is no trial site nearby. (I did mine in Pittsburgh, but don't know
>>>where other sites might be.) What I can tell you about qualifying for
the
>>>trial is that you can't have had a hysterectomy, and you have to have at
>>>least 4 but no more than 12 adhesions when they get in there. I'm not
sure
>>>about other health considerations, but I have other health problems and I
>>>still qualified. Just keep in mind that it's still a 50-50 chance of
>>>getting the gel or a simple saline solution instead.
>>> Although I did find out from Anne, who had contacted the nurse before,
>>>that there is another study for women who have had hysterectomies with
>>>another liquid made by some company in England. I can try and find out
>>>more information if anyone is interested or give you the nurse's e-mail
and
>>>you can contact her directly.
>>> Now for a disclaimer: I put my own experience on the board originally
>>>just to be helpful and to share my experience, which so far has been
good,
>>>with the intergel. I still think six months will be a better time-frame
for
>>>judging success. And I mentioned the trial in the event that someone
else
>>>might be interested and could be helped by it. However, Lifecore
discovered
>>>through the trials nurse that I had been sharing this information and is
now
>>>offering me a commission for anyone I "recruit". But I don't want anyone
to
>>>think that I am "recruiting" anyone. I have not contacted Lifecore
directly
>>>or asked for anything. (It was the trials nurse who suggested it to
them).
>>>But you can contact the nurse or Lifecore directly and I will give you
those
>>>addresses and you DO NOT have to mention my name or where you got the
>>>information. I have shared their web-site address before and I will
share
>>>it again or you can find it searching on your own. I am simply trying to
be
>>>helpful. But in case anyone would find out about it or was wondering, I
>>>don't want anyone to think I'm doing this for any other reason than to be
>>>helpful. Whew-- well got that off my chest!
>>>
>>> I hope all are having a good day and enjoy the holidays!
>>>
>>>Sue Ann
>>
>>Sue Ann,I may be interested in the trials that deal with adhesions after
>>hysterectomy.If you would e-mail me the nurses e-mail address I would
>>like to at least talk to her about it and see what it is all
>>about.Thanks "FRIENDS THAT STICK TOGETHER" PEGGY
>