At Fri, 8 Jun 2012, IAS Admin wrote:
>
>________________________________________
>Jennifer Brady
>________________________________________
>Sent: Thursday, June 07, 2012 11:31 PM
>To: adhesions-request@adhesions.org
>Subject: Re: Pelvic adhesions and exercise
>
>Hi, I just read your messages and both of your stories sound extremely
>similar to my own.
> I am 29 and I have had ovarian cysts for twelve years and adhesions for
11.
>I cannot excersise
>it make the pain worse. I have had four surgeries and three children. So
>normal cleaning and life
>is too much to handle, I try to rest as much as possible, I would encourage
>you to also. This is
>an extremely difficult diagnosis, especially when there is no treatment
>available. Try not to have
>surgery again unless you are literally dying. That's my plan. I was
>depressed a few years ago, i know
>how you are feeling, maybe not exactly but I understand how hard it is to
>feel like your 90 in your
>twenties Stay strong, take it easy as much as possible, rest, pray,
sleep!!
>take vitamins and
>try and stay hopeful. I began to do alot of resurch a few years ago. look
at
>fda website for clinical trials
>related to adhesions. They suggested cranberry supplements. I've been
taking
>them. I want to try
>spratese and other enzymes but I cannot affrod them right now. Anyway, I
>went back to school to
>become a neo-natal nurse someday, and along the way I am trying to better
>understand this disease.
>Does anyone else in your families have adhesions? cysts? tumors? I feel
>there is a genetic link. My
>mom had severe abdominal adhesions and had a bowl obstruction. She is
>addicted to pain medication,
>not just taking it, she abuses it. I hope you all watch out for that. It is
>easy to become addicted, I try not
>to ever take it unless I want to go to the hospital then I will take at
>night to sleep. I have to try and live
>a normal life. I believe finding more purpose in life helped me get out of
>the slump I was in. I feel like
>I am doing something about this. Everyone says there is nothing we can do,
>but that is not true. knowledge
>is power. Try to find out as much as you can, and follow your own
instincts.
>listen toyour body and
>rest and eat. Do you all have problems gaining and keeping on weight??? I
>do. I'm too skinny all the time.
>I hope you are doing better today. Good luck. Please let me know if
you find
>new information.
>
>
>
>On Wed, May 30, 2012 at 7:03 PM, IAS Admin <tracy.joslin@adhesions.org>
>wrote:
>Sender: sophiesisthebest@hotmail.con (Sophie)
>Subject: Re: Pelvic adhesions and exercise
>
>Hi Laura, I am also 21 and have adhesions in my pelvic area. It started
>this time last year in may when I had an ectopic pregnancy, I was
>treated with methotrexate which was he worst pain of my life...but I
>manged to get through it! 6 months later I had a laparoscopy because I
>was suffering from bad pains...that is when they found extensive
>adhesions. I had them removed ur I am now in the same pain...I cannot
>walk sometimes...I am in pain 24 7. It is awful...all I wana do is cry.
>I used to be such a bubbly happy person, I'm just a shell of what I used
>to be. Funnily enough I've just got back from the doctors and he gave
>me pain meds and anti depressants because I told him how sad this was
>making me. I cannot see a way out anymore, I've tried
>everything...exercise...stretching...hot baths...massages...diet swaps!
>Nothing has improved. I'm at my wits end
>
>Hope things get better for the both of us :) x
>
>t Sat, 12 May 2012, Laura wrote:
>>
>>Hi,
>>
>>Ok so my story. Im 21yrs old. When i was 17 had 10cm in diameter
>>Ovarian Dermoid tumour. Only on left ovary, they removed it after about
>>3 months of it being undiagnosed. They did open c-section surgery. Then
>>few months later still no better. I turned 18 and there was another 8cm
>>in diameter tumour on the same ovary as before. Doctor went in key hole
>>to remove it and said it was attached to my sigmoid colon by adhesions.
>>I was having TERRIBLE bowel problems. Anyway.. few months later still
>>no better. Had to go out of the country so a doctor would have a look
>>because the all just told me there was nothing wrong with me, and i knew
>>myself i was not right still. Had more keyhole surgery and i had LOADS
>>of adhesions all around where the tumors were before. I even had some
>>to my liver prior to a pelvic infection apparently. So the surgeon cut
>>through them and used something called ADEPT to try and stop them coming
>>back. And guess what? still no better.. thisn have settled down a bit,
>>i deffinately still have some adhesions there. What I am asking is does
>>anyone have a similar story but their pain gets worse when the exercise?
>>Obviously something is stuck to something in there and when i exercise I
>>get really really bad pains.. It feels like a mixture between a stitch
>>and a massive bruise, but the pain will linger for days after i have
>>used the threadmill or something like that. And also does anyone think
>>there is even any point in going back to the doctors for them to have
>>another look.. because if the Adept stuff didnt work the first time
>>what else can they do to stop them coming back? Also have just been
>>diagnosed with depression just purely due to the chronic pain. Its
>>terrible..you would think there must be something to stop them coming
>>back!
>>Thanks!
>
>--
>Sophie xxx
>