At Fri, 20 Nov 2009, Alta wrote:
>Sorry to have to add a "Part 2" but I must have hit send.
>I am out of town, away from my doctor and almost out of pain meds. I
>have been trying to reach my doctors office to talk to the nurse what
>can be done. If she calls me back, she doesn't leave a message even
>though in my paperwork I stated she can. I am freaking out because of
>this. My doctor does not work on Friday, so I have to talk to her
>today. Since next week is Thanksgiving, I have to make sure I have
>enough for then. This is really stressful and causes anxiety.
>I thought things were going well since our move. I found a GP I liked
>and she referred me to a Gyno who is great. She also referred me to a
>pain management doc and physical therapist since I have been seeing them
>for over a year. The PT is not familiar with pelvic floor so I am going
>to look for another. For me physical therapy has worked. The pain
>management doctor it turns out will not treat me. Turns out he does
>injections, pumps and stimulators. I hae done the trial for the nerve
>stimulator and had not luck.
>Like all of us I am shocked and amazed at really the non existance of
>doctors that deal with adhesions in the US. No one really wants to
>touch us. We have something that is invading our bodies effecting the
>quality of our lifes. To me it's like having a cancer, arthritis or
>parasite inside of us. Why is it so hard?
>Like many I have been told no more surgeries. I understand that because
>I no longer get relief from them, I feel worse. (I am less than a year
>from my last one and have never felt worse.) But there has got to be a
>gameplan for us. Are we supposed to live incompasitated? My life has
>been improved by pain medicine. I hate to say it but is has. The
>thought of being without it scares me.
>I am going to try to sleep. I need to be alert today.
>We will get through this. Some how, some way we will. Thank you all
>for being here.