Re: please help!

From: vicki (nailbox@netzero.net)
Mon Mar 9 18:49:16 2009


I'm sorry to hear about how long it took to get help.I'd like to be able to find someone who knows about this but... I have no insurance! I am newly divorced and own my business (a nail salon) I don't have employees and can't afford that luxury. However I did qualify for a program our hospital has that is covering 100% of my expences. Thank you Lord, I am going to a surgeon in the morning I pray he can help me!vicki At Mon, 9 Mar 2009, krjmarketing@yahoo.com wrote: >
>I have had 9 surgeries now and no CT scan has ever shown the massive mess of adhesions found. My surgeries began with suspect Endometriosis and several years of complaints. Cysts were the secondary reason for going in to remove endo. My point is that in my case no tests or scans ever show the issues well. But I did have some success with vaginal ultrasounds. This showed organs pulled together, etc. It showed my ovary literally bent back and stuck to bowel. I wanted to scream then. You need a caring and knowledgeable GYN. Kathy Maupin in St. Louis has suffered with our fate, so she really cares about her patient's lives. Maybe some of you might consider St. Louis for help. My surgeon is Michael Smith and he is caring and very skilled. He just did my mutliple hernia surgery and removed adhesions in areas I complained of. It was done laparoscopically and at two weeks today I feel amazingly well (so far). I am sorry so many of you can't find the right help. We are really blessed with many amazing doctors here.
>
>Kelly
>------Original Message------
>From: Mark in SeattleSender: adhesions@adhesions.org
>To: Multiple recipients of list ADHESIONS
>ReplyTo: adhesions@adhesions.org
>Subject: Re: please help!
>Sent: Mar 9, 2009 5:40 PM
>
>At Mon, 9 Mar 2009, vicki wrote:
>>
>>They say It's probably adhesions but the ct scan and xrays don't support
>>that. HELP!!! Can a ct scan miss this?
>
>Mark writes:
>
>I've seen a number of surgeans, too. And they've all said "It's
>probably adhesions." But there's something holding them back from doing
>something. I think there's two things holding them back.
>
>1. There's no proof. Doctors, these days, are extremely concerned
>about operating on someone for no reason. They want evidence.
>
>2. Adhesiolysis surgery has only a 46 to 87 percent chance of success.
>(World Journal of Surgery, March 2006)
>
>http://www.ncbi.nlm.nih.gov/pubmed/16555020?dopt=Abstract
>
>I know my ideals were sorely challenged by this, but apparently, you
>can't just open somebody up and look around without serious
>consequences.
>
>There is a new technique for detecting adhesions which should help with
>the first problem: no proof. Eventually, fMRI could help with the
>second problem, too, by helping doctors better evaluate the 90 different
>patented techniques for treating adhesions. Right now, there's no good
>way to measure success other than just waiting years and decades for
>patients to return, or not to return. (Adhesions don't always cause
>problems right away. They hang around anywhere from weeks to years, and
>then "ouch." )
>
>I wish you good success. Arm yourself with information. Bring
>information with you to your doctor. Ask for an fMRI. That's a good
>first step. If your doctor doesn't know how to detect adhesions using
>fMRI, show him/her the following citations and tell him/her to go look
>it up. And when he/she says that insurance won't pay for it... well
>that's another battle, altogether. I don't have any advice about that.
>Sorry.
>
>2 Citations:
>
>Radiology
>Andreas Lienemann, MD, Dorothee Sprenger, MD, Heinrich Otto Steitz, MD,
>Matthias Korell, MD and Maximillian Reiser, MD Radiology 2000
>;217:412-425, Detection and Mapping of Intraabdominal Adhesions by Using
>Functional Cine MR Imaging: Preliminary Results
>
>European Radiology, June 2008
>Sonja Buhmann-Kirchhoff, Reinhold Lang, Chlodwig Kirchhoff, Heinrich
>Otto Steitz, Karl Walter Jauch, Maximilian Reiser and Andreas Lienemann,
>European Radiology, June 2008, Functional cine MR Imaging for the
>Detection and Mapping of Intraabdominal Adhesions: Method and Surgical
>Correlation,
>
>Good luck,
>
>Yours,
>
>Mark in Seattle
>
>Sent via BlackBerry from T-Mobile

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