Re: ?How do adhesions grow?

From: HERB F DIXON (herbcheryl1@msn.com)
Sat Feb 28 13:44:38 2009


Hi Sarah, I am so curious about what problems were found with Spraygel since it was used on me back in 2005. Do you know where the information came from about Spraygel, or where to look up the info on it? Hey thanks so much for posting the info about it. I am also now very curious about Sprayshield, and would love to get involved in clinical trials. Thanks much! Cheryl D.

> ----- Original Message -----
From: sarah.wampler@yahoo.com<mailto:sarah.wampler@yahoo.com> To: Multiple recipients of list ADHESIONS<mailto:adhesions@mail.obgyn.net> Sent: Saturday, February 28, 2009 11:10 AM Subject: Re: ?How do adhesions grow?

Hi Lou! Glad to see you on the board!! I just wanted to clarify that Dr. Redan is doing clinical trials on Sprayshield not Spraygel. There seems to have been some problems with Spraygel so Sprayshield is the new and improved version of Spraygel. Spraygel was never FDA approved for use in the US (I'm assuming due to the problems with it?) so hopefully Sprayshield will not have those problems and will be approved for use here in the US. For further information on the trials with Dr. Redan you can contact either Paulette or Adrienne via the www.adhesionscenter.com<http://www.adhesionscenter.com/> website by filling out the form on there. Best of luck to you! Sincerely, Sarah At Sat, 28 Feb 2009, LOU COOPER wrote: >
>Hi Cheryl. is the pain you have now the same pain before you went to Germany?
>I was wondering about the spray gel did you have it?
>I read that Dr Raden was doing adhesion surgery with spray gel on a trial basis.
>Cheryl, I hope you do not mind if I ask you, what are you going to do,
>will you have
>more surgery.?
>I am having surgery in June to have the hernia mesh taken out, I have
>been told its likely
>due to having adhesion's in that area +the mesh is also giving me problems
>the meds I'm on are Hydromorphone 1mg, Lorazepam 1mg and gravol for the nausea,
>I take the 3 together 1 hyd----a half of lorazepam and half of
>gravol and it works well on me
>yours on that road
>Lou
>Just had a thought, it would be nice if we had a logo------ breast
>cancer has the pink ribbon +
>many other people with health issues have theirs, with this hidden
>illness it would make people be aware of us
> the greatess tool of today is advertising ,the adhesion problem is to hidden,
>maybe someone out there might have a great a idea.
>L
>
>On Sat, Feb 28, 2009 at 12:12 PM, HERB F DIXON <herbcheryl1@msn.com<mailto:herbcheryl1@msn.com>> wrote:
>> Hi Lou, I went to Germany in 2005. I will say that their nurses were
>> awesome, the food was great! I would love to know how they made their beef
>> broth it was so good and flavorful. I have been contacted by many people
>> interested in going to Germany for surgery, I wish that once they did go
>> over to have their surgeries that they would continue contacting either me,
>> or the website just to see how they have done post op. I am in constant pain
>> again, you know the sharp stabbing knife under the ribcage, the ripping and
>> tearing before during and after bowel movements, doubling over, the almost
>> contraction like pain that hits hard and doubles you over, subsides for a
>> few min. and starts all over again. I still live on Percocet, and methadone.
>> I was on morphiene for a while. My husband said I would quit breathing, then
>> gasp and jerk for air. I took myself off of it, and it was pretty easy to do
>> so. I would also fall asleep in a matter of seconds: at the computer,
>> standing at the washer with my head leaning against the lid, the best and
>> most comical was falling asleep on the toilet, then one night I actually
>> fell off (LOL) So many people have their stories of their doctors not
>> believing them, mine too. In fact he wants me to read a book, I don't
>> remember what it is called but it basically refers to that it may be in my
>> mind. ( Gee thanks) Like everyone else too, I wish for a med that will
>> actually kill the pain, and that when I call in for refills I am not treated
>> like a drug addict. I am also on Prozac 30 mg. for depression. You know if
>> "Someone Important" like a movie star etc. had adhesions and dealt with life
>> the way we do, someone would be right on top of it to help them. I had
>> another bad night so I do need to get back to my best friend the heating
>> pad, and my little pillow that I use when I am doubling over and trying to
>> walk. Good luck to you. Cheryl D.
>>
>>> Date: Fri, 27 Feb 2009 23:43:45 -0600
>>> From: louc829@gmail.com<mailto:louc829@gmail.com>
>>> To: adhesions@mail.obgyn.net<mailto:adhesions@mail.obgyn.net>
>>> Subject: Re: ?How do adhesions grow?
>>>
>>> What year did you go to Germany,
>>> am sorry that you had a few unfortunate experiences and yes does cost
>>> alot to go to Germany,
>>> it makes no sense that the spraygel is made in the US and is not used
>>> by the Drs,
>>> look at the money that would be saved, and the people it would help
>>> who suffer with
>>> adhesion's, what is wrong with the FDA, its sold in other country's,
>>> just think one could go locally to have adhesion surgery with sraygel
>>> are you in pain now?
>>> Take care
>>> Lou
>>>
>>> On Fri, Feb 27, 2009 at 11:50 PM, HERB F DIXON <herbcheryl1@msn.com<mailto:herbcheryl1@msn.com>>
>>> wrote:
>>> > Dr. Kruschinski did my surgery in Germany. If I could ever come up with
>>> > the
>>> > money again, I would go back and try again. I had a few unfortunate
>>> > experiences getting hurt 7 weeks post op, returning to work way too soon
>>> > because the pressure was on, and then had my Gallbladder removed. The
>>> > nicest
>>> > thing was in Germany, they do not use gas to extend your abdomen. When
>>> > you
>>> > are recovering, you don't deal with the awful gas pain that feels like
>>> > someone is sticking a shovel in your shoulder. The saddest part for me
>>> > is
>>> > that I will never completely know the results of my 2 surgeries because
>>> > of
>>> > circumstances. My stomach no longer sucks in and gets stuck so that is
>>> > positive. I feel the reason more and more patients are dealing with
>>> > adhesions is because the Surgeons are in way too much of a hurry and
>>> > that
>>> > also they are not cleaning out the area with the Saline as well as they
>>> > should too. It is so hard to be so miserable in pain all of the time.
>>> > Since
>>> > Confluent Surgical (the company that invented Spray Gel) is in the U.S.
>>> > that
>>> > they would catch some sort of a BREAK with the F.D.A. Good luck, Cheryl
>>> > D.
>>> >
>>> >> Date: Fri, 27 Feb 2009 19:26:51 -0600
>>> >> From: louc829@gmail.com<mailto:louc829@gmail.com>
>>> >> To: adhesions@mail.obgyn.net<mailto:adhesions@mail.obgyn.net>
>>> >> Subject: Re: ?How do adhesions grow?
>>> >>
>>> >> Who did your surgery in Germany?
>>> >> Lou
>>> >>
>>> >> On Fri, Feb 27, 2009 at 6:39 PM, HERB F DIXON <herbcheryl1@msn.com<mailto:herbcheryl1@msn.com>>
>>> >> wrote:
>>> >> > Hi Mark, all I know about adhesions is that Gas being used to extend
>>> >> > the
>>> >> > abdomen for surgery causes it, a speck of talc off of gloves, a piece
>>> >> > of
>>> >> > whatever is used to absorb blood during surgery. I have had 11
>>> >> > abdominal
>>> >> > surgeries. When I had 12 inches of my colon removed for
>>> >> > Diverticulitis,
>>> >> > that
>>> >> > is when my adhesions started. Before that surgery in 2002, I had 2
>>> >> > c-sections, hysterectomy, one ovary, and then the other, tubal and
>>> >> > exploratory. It was when my bowel was messed with that they started 2
>>> >> > weeks
>>> >> > after surgery. The Lysis surgery I had in Germany, my large, and
>>> >> > small
>>> >> > intestine were stuck to my colon, my stomach was literally sucked in
>>> >> > and
>>> >> > stuck, it was physically noticeable, it blew my Gastro away. I was
>>> >> > also
>>> >> > told
>>> >> > that I had remnants of my ovary left behind with a cyst on it on my
>>> >> > right
>>> >> > side. It was not that at all, it was a mass of adhesions. I am one of
>>> >> > those
>>> >> > people that are a bit hyperactive. When I have had all of my
>>> >> > surgeries,
>>> >> > I
>>> >> > find tricky ways to clean the house, dust, cook etc. I feel that
>>> >> > because
>>> >> > of
>>> >> > being active too soon after surgeries contributed to my adhesions. I
>>> >> > only
>>> >> > hurt myself! I have promised myself that If I ever have another
>>> >> > abdominal
>>> >> > surgery for adhesions, I will sit on my rear end, or lay down and
>>> >> > rest
>>> >> > until
>>> >> > I am well. That is a Big if on a surgery again. I hope this helps.
>>> >> > Cheryl D.
>>> >> >
>>> >> >> Date: Thu, 26 Feb 2009 15:02:57 -0600
>>> >> >> From: mark7@skynetbb.com<mailto:mark7@skynetbb.com>
>>> >> >> To:
adhesions@mail.obgyn.net<mailto:adhesions@mail.obgyn.net> >>> >> >> Subject: Re: ?How do adhesions grow?
>>> >> >>
>>> >> >> At Thu, 26 Feb 2009,
Natrlady21@aol.com<mailto:Natrlady21@aol.com> wrote: >>> >> >> >
>>> >> >> >Does anyone know what makes existing adhesions continue to grow
>>> >> >> > (spread)?
>>> >> >> > By
>>> >> >> >doin certain activities etc. Are there professional articles that
>>> >> >> > talk
>>> >> >> > about
>>> >> >> >this?
>>> >> >> >
>>> >> >> Mark writes:
>>> >> >>
>>> >> >> Without a source of inflammation, I don't think adhesions can
>>> >> >> spread.
>>> >> >> Sources of inflmmation include: surgery, endometriosis, radiation.
>>> >> >>
>>> >> >> If you don't mind a little conjecture, I've had email correspondence
>>> >> >> from two women who claim ahdesions have formed for none of these
>>> >> >> reasons. Just spontaneous formation. I have no reason to doubt their
>>> >> >> word. So who knows? I have skin eczema which is a spontaneous skin
>>> >> >> inflammation that I can't seem to stop. My skin will literally ooze
>>> >> >> liquid for no good reason. So maybe that happens on the inside of my
>>> >> >> body, too.
>>> >> >>
>>> >> >> Your question, however, may have to do with something else we hear
>>> >> >> on
>>> >> >> this forum quite a lot. We often hear reports from people saying
>>> >> >> that
>>> >> >> their doctor has observed adhesions "in greater numbers" than
>>> >> >> observed
>>> >> >> in the same patient in a previous surgery. Also many people will
>>> >> >> make a
>>> >> >> statement like, "I had surgery to clean out my adhesions, but they
>>> >> >> grew
>>> >> >> back in greater numbers." or They will say "their back." This could
>>> >> >> mean
>>> >> >> simply that the doctor released the pressure but cutting an
>>> >> >> "offending"
>>> >> >> adhesion, but the wounded adhesion oozes more fibrin and reconnects
>>> >> >> immediately after surgery. Time passes, the body shifts and the same
>>> >> >> adhesion comes under tension again, resulting in discomfort.
>>> >> >>
>>> >> >> I hope this helps. But of course, I know it's not a sufficient
>>> >> >> answer.
>>> >> >> I'm probably touching on the truth, but I know I'm not quite there.
>>> >> >> The
>>> >> >> truth is that I think nobody can fully explain this awful disease to
>>> >> >> my
>>> >> >> satisfaction. For example, I have yet to hear a good explanation of
>>> >> >> how
>>> >> >> temporary fibrin deposits can then turn into a permanent adhesion.
>>> >> >> I'm
>>> >> >> not satisfied with the explanation that fibrin is the only protein
>>> >> >> involved. I think there's another process at work. See wikipedia
>>> >> >> article on 'wound healing.' for more info. I haven't read it all. I
>>> >> >> get tired easily. Maybe someone else can explain it better.
>>> >> >>
>>> >> >> Yours,
>>> >> >>
>>> >> >> Mark in Seattle
>>> >> >>
>>> >> >> to the unsubscribe form at
>>> >> >>
http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm> >>> >> >
>>> >>
>>> >
>>>
>>>
http://www.adhesions.org/forums/message.htm<http://www.adhesions.org/forums/message.htm> >>

To remove yourself from the adhesions@adhesions.org<mailto:adhesions@adhesions.org> mailing list please go to the unsubscribe form at http://www.adhesions.org/forums/listcmds.htm<http://www.adhesions.org/forums/listcmds.htm> ms/message.htm>


Enter keywords:
Returns per screen: Require all keywords: