Re: Let's talk about symptoms!

From: HERB F DIXON (herbcheryl1@msn.com)
Fri Feb 27 21:26:24 2009


Hi Jenny, I noticed you wrote AFTER hysterectomy all in caps? For clearance, did you just recently have surgery? I was told by my Gyn. That if I ever had vaginal bleeding (after my hysterectomy, and initial healing time) That I would need to be seen right away. Don't mean to scare you. I never asked why, it was post op and my brain wasn't fully functioning yet. I wouldn't mess around though. After you find out what is going on, let me (us) know. Good luck, Cheryl D.

> Date: Fri, 27 Feb 2009 22:02:40 -0600
> From: louc829@gmail.com
> To: adhesions@mail.obgyn.net
> Subject: Re: Let's talk about symptoms!
>
> HI Jenny,
> Yes I have nausea daily, no vomiting, what kind of mesh did you have put in?
> I had sepramesh which is made of polypropylene ++made by Genzyme,
> if you go to Hernia Forum on the web+ look up mesh problems you might find this
> helpful, some meshes have been recalled by the FDA.
> Take care
> Lou
>
> On Fri, Feb 27, 2009 at 10:35 PM, Jenny <kummer_jennifer1@hotmail.com> wrote:
> > Hi Lou, I just recently had surgery for hernia repair and of course
> > lysis of adhesions, the Dr. did put a mesh in me. I was pain free
> > (after recovering from the tremendous surgical pain) until about 2 or 3
> > days ago. And my pain, although not as severe (yet) is there. I have
> > also had some nausea and vomiting. I was wondering about the mesh -
> > have you heard, or has anyone reading this heard of adhesions attaching
> > to the mesh??? This would be my biggest nightmare! Also - on a slightly
> > different note, has anyone ever heard of or had vaginal bleeding AFTER a
> > hysterectomy (I have everything out, including ovaries!)
> >
> > Thanks so much
> >
> > Jenny
> >
> > At Fri, 27 Feb 2009, LOU COOPER wrote:
> >>
> >>HI Linda,
> >>I think you are right about the use the spaygels, I have had 3
> >>surgery's for adhesions all without
> >>any barrier, # 4 surgery in 07 I had a very lg ins hernia a 8x4 mesh
> >>was put in just under the ribs
> >>this had a adhesion barrier with it, it has not worked and the
> >>adhesions are back in full force
> >>it feels like a rubber band pulling, I have heard bad stories about
> >>these meshes and many people
> >>have had them removed,
> >>I do not know what is happening today so many people are getting
> >>adhesions after surgery,age
> >>makes no difference, I had abd surgery,5 in all the last one was
> >>1984, with no problems.
> >>My feeling is that some Drs are to heavy handed + to many ops in one day,
> >>also the use of to much CO2.,this also my cause adhesions to form +
> >>maybe saline,
> >>It would be great if the gel was used as the norm with all Drs no
> >>matter were we live,to have this
> >>on the doorstep would save on the travelling which can be hell and it
> >>would stop the suffering,also the Drs would be more helpful knowing
> >>their is help out there.
> >>The last time I went to my G.P, he gave me no hope,I said to him what
> >>can I do now, all he
> >>said do your own research and keep takeing the pills.
> >>Lou
> >>On Fri, Feb 27, 2009 at 6:22 PM, Linda <lindahalford@comcast.net> wrote:
> >>> Hello Joy,
> >>>
> >>> Some people on this site have gotten relief after having laparascopic
> >>> adhesiolysis using spraygel/sprayshield. I'm interested in finding out
> >>> the percentage of success these doctors have had using this
> >>> substance. Perhaps the doctor who has this website would know.
> >>>
> >>> As soon as I can get ahead financially, I'm going to Dr. Semertizides in
> >>> Cincinnati, Ohio. For those of you who don't know, Angel Flight, Orlando,
> >>> FL will transport patients free of charge to hospitals located over 100
> >>> miles from home. They flew me to Scranton, PA where Dr. Redan and Dr. Reich
> >>> performed laparascopic adhesiolysis on my abdomen. Unfortunately, the
> >>> adhesions returned because at that time, the only barrier was interceed by
> >>> Johnson and Johnson. Also, there's a "Cine MRI" that detects adhesions.
> >>>
> >>> I'm miserable with these massive adhesions throughout my abdomen. My
> >>> abdominal wall feels like one big charley horse. Some days I feel I can't
> >>> go on any longer but somehow the good Lord gives me strength to make it
> >>> through another day. I'm an outgoing, happy person but these painful
> >>> adhesions have robbed me of a normal life.
> >>>
> >>> Unless the doctor you're planning to do your surgery uses
> >>> spraygel/sprayshield, it's doubtful your condition will get better.
> >>>
> >>> May God bless all of you and help you find a way to get well.
> >>>
> >>> Sincerely,
> >>> Linda in Jacksonville, FL
> >>>

>> >>>> ----- Original Message -----
> >>> From: Joy Thomas
> >>> To: Multiple recipients of list ADHESIONS
> >>> Sent: Monday, February 23, 2009 12:46 PM
> >>> Subject: Re: Let's talk about symptoms!
> >>> jetstamp,
> >>>
> >>> As for the name, I never heard "ARDS" before coming to this site. My
> >>> doctors have all just called it "adhesion disease."
> >>>
> >>> On Sun, Feb 22, 2009 at 3:06 PM, jetstamp <jetstamp@yahoo.com> wrote:
> >>>> At Sun, 22 Feb 2009, jetstamp wrote:
> >>>>>
> >>>>>At Sat, 21 Feb 2009, WendyEbbe3@aol.com wrote:
> >>>>>>
> >>>>>>Kelly and Debbie,
> >>>>>>The Bee Gee brother died from a bowel obstruction? No one should ever
> >>>>>> have
> >>>>>>to apologize for venting how they feel. I know that I'm almost to the
> >>>>>> point
> >>>>>>where I don't want to live any more if this is as good as it gets. I'm
> >>>>>> only
> >>>>>>hanging on waiting to get an appointment to see a Social Security Judge
> >>>>>> and then
> >>>>>>find a Surgeon in Minnesota that has the skills and knowledgeable on
> >>>>>>adhesions. Hoping that there is a Surgeon out there that can give me my
> >>>>>> life back.
> >>>>>>I've already lost a good job at Andersen Windows and I have two girls,
> >>>>>> one is
> >>>>>>in college and the other a Senior in High School. I can't make ends
> >>>>>> meet on
> >>>>>>disability. I'm so lucky my parents own the house I live in. I'm so
> >>>>>> lucky I
> >>>>>>still have them. My Mom takes me to most of my appointments. I always
> >>>>>> dream
> >>>>>>of winning the lottery or just coming into a lot of money so I could
> >>>>>> start,
> >>>>>>dang it I have a hard time remember things. I lost a lot of my mind
> >>>>>> while I
> >>>>>>was on Lyrica. I would like to set up some funding for research to find
> >>>>>> a cure.
> >>>>>>Maybe even to help out people who can't afford all the tests they put
> >>>>>> you
> >>>>>>through or even surgery. Maybe even educate these Dr's. that don't
> >>>>>> believe they
> >>>>>>cause pain. I'll keep dreaming and in the mean time, Take Care All!
> >>>>>>Wendy Ebbe
> >>>>>
> >>>>>Wendy,
> >>>>>
> >>>>>I live near the Minnesota/Wisconsin border. I am employed full-time and
> >>>>>have what I call fairly good insurance- not an HMO and I have the
> >>>>>freedom pretty much to make apppointments with 'most' specialists
> >>>>>without a referral. However, per my recent post I called 'HYPE!!' you
> >>>>>can see that in my 25 years with this I have been totally unsuccessful
> >>>>>in locating a physician who will even acknowledge the issue of
> >>>>>adhesions- I've been to Mayo and been pretty much brushed off just like
> >>>>>everywhere else.
> >>>>>
> >>>>>So, if either one of us ever manages to find a doc in our area we must
> >>>>>be sure to let the other know about it. After my disaster last week, I
> >>>>>am currently 'boycotting' the medical system (again!) and have no idea
> >>>>>of how to search for a doc who would even remotely consider the issue of
> >>>>>adhesions. Only people who will talk about them are physical
> >>>>>therapists- who interestingly can feel them immediately upon abdominal
> >>>>>examination- apparently no laparoscopy is needed for them to recognize
> >>>>>adhesions! Also the interpreting physician of my last CT and MRI
> >>>>>suggested adhesions- of course that makes sense because he is a
> >>>>>radiologist and doesn't have to deal with the patient in
> >>>>>addressing/solving them so it makes sense that he would have no problem
> >>>>>being honest.
> >>>>>
> >>>>>--
> >>>>>jetstamp
> >>>>
> >>>> P.S.
> >>>>
> >>>> I also have noticed when I search the term 'ARDS' most of what comes up
> >>>> seems to be 'Acute Respiratory Distress Syndrome'- anyone else notice
> >>>> this? Maybe we need a new name for the horrible symptoms adhesions
> >>>> cause! We definitely do not need any more confusion about this.
> >>>>
> >>>> jetstamp
> >>>>>>
> >>>>>>========Original Message========
Subj: Re: Let's talk about > >>>>>> symptoms!
> >>>>>>Date: 2/20/2009 10:23:27 P.M. Central Standard Time From:
> >>>>>>_klmurray_61@msn.com_ (mailto:klmurray_61@msn.com) To:
> >>>>>> _adhesions@mail.obgyn.net_
> >>>>>>(mailto:adhesions@mail.obgyn.net) Sent on:
> >>>>>>
> >>>>>>I know what you mean. How do we know if it is a life or death
> >>>>>> situation.
> >>>>>>Remember the BeeGee brother died from a blockage and it seems like
> >>>>>> someone
> >>>>>>else that was famous did.
> >>>>>>Some times I think maybe I better go and get it checked out but do not
> >>>>>> want
> >>>>>>to go and it ends up passing.
> >>>>>>I am not in awe of any dr. anymore. I realize they don't sit higher
> >>>>>> then we
> >>>>>>do.
> >>>>>>

>> >>>>>>>>>----- Original Message -----
> >>>>>>From: _BBLDEB@aol.com_ (mailto:BBLDEB@aol.com)
> >>>>>>To: _Multiple recipients of list ADHESIONS_
> >>>>>>(mailto:adhesions@mail.obgyn.net)
> >>>>>>Sent: Friday, February 20, 2009 8:07 PM
> >>>>>>Subject: Re: Let's talk about symptoms!
> >>>>>>
> >>>>>>Kelly,
> >>>>>> I too have blockages. Most of the time I can go up to 3 weeks or
> >>>>>> more
> >>>>>>before having a bowel movement. Needless to say, that explains why I
> >>>>>> have so
> >>>>>>much nausea and vomiting. And for the most part, I go up to 3 or more
> >>>>>> days
> >>>>>>at a time without eating. And when I do try, other than a teaspoon,
> >>>>>> maybe a
> >>>>>>tablespoon, it usually comes back up. My question to my surgeon was "how
> >>>>>>long do I have to go without having a bowel movement before you consider
> >>>>>> it to
> >>>>>>be a blockage?" To this day, no doctor has ever answered that
> >>>>>> question. They
> >>>>>>know I am full of adhesions, (28 abdominal surgeries to date) and now
> >>>>>> they
> >>>>>>tell me the only way they will operate again is if I have a blockage.
> >>>>>> Well,
> >>>>>>if 3 weeks is not a blockage, then I have no clue what is! And what is
> >>>>>> so bad
> >>>>>>about it, I am very knowledgeable in medical /prescription areas..
> >>>>>> It is unbelievable what some doctor's will say in order to rid of a
> >>>>>>patient that they can't figure out or can't help or have no clue on how
> >>>>>> to treat.
> >>>>>> I am sorry, but to me, if they are a surgeon, then this is something
> >>>>>> they
> >>>>>>"ALL" should be able to deal with. They cause them every time they do
> >>>>>>surgery! (Venting for a moment, sorry).
> >>>>>> The worst part is they know about my blockages, but the doctor says
> >>>>>> that
> >>>>>>he wants it to be a "Life or Death" situation before he will do
> >>>>>> anything.
> >>>>>>Well, to me, going 3 weeks in that kind of pain is "DEATH" every day for
> >>>>>> the
> >>>>>>most part. When gas passes, that is the only relief for a blockage,
> >>>>>> when a
> >>>>>>doctor won't do anything at all. I have 4 kinks in my bowel from the
> >>>>>> adhesions
> >>>>>>(that I know of).
> >>>>>> Good luck to all of us and hopefully we will find help soon.
> >>>>>>
> >>>>>>Sincerely,
> >>>>>>Debbie
> >>>>>>
> >>>>>>____________________________________
> >>>>>>Need a job? _Find an employment agency near you_
> >>>>>>____________________________________
> >>>>>>____________________________________
> >>>>>>____________________________________
> >>>>>>
> >>>>>>--
> >>>>>>____________________________________
> >>>>>>(http://yellowpages.aol.com/search?query=3Demployment_agencies&ncid=
> >>>>>>____________________________________
=emlcntusyelp00000003) > >>>>>>____________________________________
> >>>>>> .
> >>>>>>____________________________________
> >>>>>>____________________________________
> >>>>>>
> >>>>>>____________________________________
> >>>>>>%3D62%26bcd%3DfebemailfooterNO62)
> >>>>>>
> >>>> http://www.adhesions.org/forums/message.htm
> >>>>
> >>> http://www.adhesions.org/forums/message.htm
> >>>
> >>> ________________________________
> >>>
> >>> ________________________________
> >>> ________________________________
> >>> No virus found in this incoming message.
> >>> Checked by AVG - http://www.avg.com
> >>> Version: 8.0.237 / Virus Database: 270.11.3/1967 - Release Date: 02/23/09
> >>> 07:17:00
> >>>
> >

m age.htm > >
>

e.htm


Enter keywords:
Returns per screen: Require all keywords: