On Fri, Feb 27, 2009 at 10:35 PM, Jenny <kummer_jennifer1@hotmail.com> wrote:
> Hi Lou, I just recently had surgery for hernia repair and of course
> lysis of adhesions, the Dr. did put a mesh in me. I was pain free
> (after recovering from the tremendous surgical pain) until about 2 or 3
> days ago. And my pain, although not as severe (yet) is there. I have
> also had some nausea and vomiting. I was wondering about the mesh -
> have you heard, or has anyone reading this heard of adhesions attaching
> to the mesh??? This would be my biggest nightmare! Also - on a slightly
> different note, has anyone ever heard of or had vaginal bleeding AFTER a
> hysterectomy (I have everything out, including ovaries!)
>
> Thanks so much
>
> Jenny
>
> At Fri, 27 Feb 2009, LOU COOPER wrote:
>>
>>HI Linda,
>>I think you are right about the use the spaygels, I have had 3
>>surgery's for adhesions all without
>>any barrier, # 4 surgery in 07 I had a very lg ins hernia a 8x4 mesh
>>was put in just under the ribs
>>this had a adhesion barrier with it, it has not worked and the
>>adhesions are back in full force
>>it feels like a rubber band pulling, I have heard bad stories about
>>these meshes and many people
>>have had them removed,
>>I do not know what is happening today so many people are getting
>>adhesions after surgery,age
>>makes no difference, I had abd surgery,5 in all the last one was
>>1984, with no problems.
>>My feeling is that some Drs are to heavy handed + to many ops in one day,
>>also the use of to much CO2.,this also my cause adhesions to form +
>>maybe saline,
>>It would be great if the gel was used as the norm with all Drs no
>>matter were we live,to have this
>>on the doorstep would save on the travelling which can be hell and it
>>would stop the suffering,also the Drs would be more helpful knowing
>>their is help out there.
>>The last time I went to my G.P, he gave me no hope,I said to him what
>>can I do now, all he
>>said do your own research and keep takeing the pills.
>>Lou
>>On Fri, Feb 27, 2009 at 6:22 PM, Linda <lindahalford@comcast.net> wrote:
>>> Hello Joy,
>>>
>>> Some people on this site have gotten relief after having laparascopic
>>> adhesiolysis using spraygel/sprayshield. I'm interested in finding out
>>> the percentage of success these doctors have had using this
>>> substance. Perhaps the doctor who has this website would know.
>>>
>>> As soon as I can get ahead financially, I'm going to Dr. Semertizides in
>>> Cincinnati, Ohio. For those of you who don't know, Angel Flight, Orlando,
>>> FL will transport patients free of charge to hospitals located over 100
>>> miles from home. They flew me to Scranton, PA where Dr. Redan and Dr. Reich
>>> performed laparascopic adhesiolysis on my abdomen. Unfortunately, the
>>> adhesions returned because at that time, the only barrier was interceed by
>>> Johnson and Johnson. Also, there's a "Cine MRI" that detects adhesions.
>>>
>>> I'm miserable with these massive adhesions throughout my abdomen. My
>>> abdominal wall feels like one big charley horse. Some days I feel I can't
>>> go on any longer but somehow the good Lord gives me strength to make it
>>> through another day. I'm an outgoing, happy person but these painful
>>> adhesions have robbed me of a normal life.
>>>
>>> Unless the doctor you're planning to do your surgery uses
>>> spraygel/sprayshield, it's doubtful your condition will get better.
>>>
>>> May God bless all of you and help you find a way to get well.
>>>
>>> Sincerely,
>>> Linda in Jacksonville, FL
>>>
>>>>> ----- Original Message -----
>>> From: Joy Thomas
>>> To: Multiple recipients of list ADHESIONS
>>> Sent: Monday, February 23, 2009 12:46 PM
>>> Subject: Re: Let's talk about symptoms!
>>> jetstamp,
>>>
>>> As for the name, I never heard "ARDS" before coming to this site. My
>>> doctors have all just called it "adhesion disease."
>>>
>>> On Sun, Feb 22, 2009 at 3:06 PM, jetstamp <jetstamp@yahoo.com> wrote:
>>>> At Sun, 22 Feb 2009, jetstamp wrote:
>>>>>
>>>>>At Sat, 21 Feb 2009, WendyEbbe3@aol.com wrote:
>>>>>>
>>>>>>Kelly and Debbie,
>>>>>>The Bee Gee brother died from a bowel obstruction? No one should ever
>>>>>> have
>>>>>>to apologize for venting how they feel. I know that I'm almost to the
>>>>>> point
>>>>>>where I don't want to live any more if this is as good as it gets. I'm
>>>>>> only
>>>>>>hanging on waiting to get an appointment to see a Social Security Judge
>>>>>> and then
>>>>>>find a Surgeon in Minnesota that has the skills and knowledgeable on
>>>>>>adhesions. Hoping that there is a Surgeon out there that can give me my
>>>>>> life back.
>>>>>>I've already lost a good job at Andersen Windows and I have two girls,
>>>>>> one is
>>>>>>in college and the other a Senior in High School. I can't make ends
>>>>>> meet on
>>>>>>disability. I'm so lucky my parents own the house I live in. I'm so
>>>>>> lucky I
>>>>>>still have them. My Mom takes me to most of my appointments. I always
>>>>>> dream
>>>>>>of winning the lottery or just coming into a lot of money so I could
>>>>>> start,
>>>>>>dang it I have a hard time remember things. I lost a lot of my mind
>>>>>> while I
>>>>>>was on Lyrica. I would like to set up some funding for research to find
>>>>>> a cure.
>>>>>>Maybe even to help out people who can't afford all the tests they put
>>>>>> you
>>>>>>through or even surgery. Maybe even educate these Dr's. that don't
>>>>>> believe they
>>>>>>cause pain. I'll keep dreaming and in the mean time, Take Care All!
>>>>>>Wendy Ebbe
>>>>>
>>>>>Wendy,
>>>>>
>>>>>I live near the Minnesota/Wisconsin border. I am employed full-time and
>>>>>have what I call fairly good insurance- not an HMO and I have the
>>>>>freedom pretty much to make apppointments with 'most' specialists
>>>>>without a referral. However, per my recent post I called 'HYPE!!' you
>>>>>can see that in my 25 years with this I have been totally unsuccessful
>>>>>in locating a physician who will even acknowledge the issue of
>>>>>adhesions- I've been to Mayo and been pretty much brushed off just like
>>>>>everywhere else.
>>>>>
>>>>>So, if either one of us ever manages to find a doc in our area we must
>>>>>be sure to let the other know about it. After my disaster last week, I
>>>>>am currently 'boycotting' the medical system (again!) and have no idea
>>>>>of how to search for a doc who would even remotely consider the issue of
>>>>>adhesions. Only people who will talk about them are physical
>>>>>therapists- who interestingly can feel them immediately upon abdominal
>>>>>examination- apparently no laparoscopy is needed for them to recognize
>>>>>adhesions! Also the interpreting physician of my last CT and MRI
>>>>>suggested adhesions- of course that makes sense because he is a
>>>>>radiologist and doesn't have to deal with the patient in
>>>>>addressing/solving them so it makes sense that he would have no problem
>>>>>being honest.
>>>>>
>>>>>--
>>>>>jetstamp
>>>>
>>>> P.S.
>>>>
>>>> I also have noticed when I search the term 'ARDS' most of what comes up
>>>> seems to be 'Acute Respiratory Distress Syndrome'- anyone else notice
>>>> this? Maybe we need a new name for the horrible symptoms adhesions
>>>> cause! We definitely do not need any more confusion about this.
>>>>
>>>> jetstamp
>>>>>>
>>>>>>========Original Message======== Subj: Re: Let's talk about
>>>>>> symptoms!
>>>>>>Date: 2/20/2009 10:23:27 P.M. Central Standard Time From:
>>>>>>_klmurray_61@msn.com_ (mailto:klmurray_61@msn.com) To:
>>>>>> _adhesions@mail.obgyn.net_
>>>>>>(mailto:adhesions@mail.obgyn.net) Sent on:
>>>>>>
>>>>>>I know what you mean. How do we know if it is a life or death
>>>>>> situation.
>>>>>>Remember the BeeGee brother died from a blockage and it seems like
>>>>>> someone
>>>>>>else that was famous did.
>>>>>>Some times I think maybe I better go and get it checked out but do not
>>>>>> want
>>>>>>to go and it ends up passing.
>>>>>>I am not in awe of any dr. anymore. I realize they don't sit higher
>>>>>> then we
>>>>>>do.
>>>>>>
>>>>>>>>>>----- Original Message -----
>>>>>>From: _BBLDEB@aol.com_ (mailto:BBLDEB@aol.com)
>>>>>>To: _Multiple recipients of list ADHESIONS_
>>>>>>(mailto:adhesions@mail.obgyn.net)
>>>>>>Sent: Friday, February 20, 2009 8:07 PM
>>>>>>Subject: Re: Let's talk about symptoms!
>>>>>>
>>>>>>Kelly,
>>>>>> I too have blockages. Most of the time I can go up to 3 weeks or
>>>>>> more
>>>>>>before having a bowel movement. Needless to say, that explains why I
>>>>>> have so
>>>>>>much nausea and vomiting. And for the most part, I go up to 3 or more
>>>>>> days
>>>>>>at a time without eating. And when I do try, other than a teaspoon,
>>>>>> maybe a
>>>>>>tablespoon, it usually comes back up. My question to my surgeon was "how
>>>>>>long do I have to go without having a bowel movement before you consider
>>>>>> it to
>>>>>>be a blockage?" To this day, no doctor has ever answered that
>>>>>> question. They
>>>>>>know I am full of adhesions, (28 abdominal surgeries to date) and now
>>>>>> they
>>>>>>tell me the only way they will operate again is if I have a blockage.
>>>>>> Well,
>>>>>>if 3 weeks is not a blockage, then I have no clue what is! And what is
>>>>>> so bad
>>>>>>about it, I am very knowledgeable in medical /prescription areas.
>>>>>> It is unbelievable what some doctor's will say in order to rid of a
>>>>>>patient that they can't figure out or can't help or have no clue on how
>>>>>> to treat.
>>>>>> I am sorry, but to me, if they are a surgeon, then this is something
>>>>>> they
>>>>>>"ALL" should be able to deal with. They cause them every time they do
>>>>>>surgery! (Venting for a moment, sorry).
>>>>>> The worst part is they know about my blockages, but the doctor says
>>>>>> that
>>>>>>he wants it to be a "Life or Death" situation before he will do
>>>>>> anything.
>>>>>>Well, to me, going 3 weeks in that kind of pain is "DEATH" every day for
>>>>>> the
>>>>>>most part. When gas passes, that is the only relief for a blockage,
>>>>>> when a
>>>>>>doctor won't do anything at all. I have 4 kinks in my bowel from the
>>>>>> adhesions
>>>>>>(that I know of).
>>>>>> Good luck to all of us and hopefully we will find help soon.
>>>>>>
>>>>>>Sincerely,
>>>>>>Debbie
>>>>>>
>>>>>>____________________________________
>>>>>>Need a job? _Find an employment agency near you_
>>>>>>____________________________________
>>>>>>____________________________________
>>>>>>____________________________________
>>>>>>
>>>>>>--
>>>>>>____________________________________
>>>>>>(http://yellowpages.aol.com/search?query=employment_agencies&ncid=emlcntusyelp00000003)
>>>>>>____________________________________
>>>>>>____________________________________
>>>>>> .
>>>>>>____________________________________
>>>>>>
>>>>>>____________________________________
>>>>>>%3D62%26bcd%3DfebemailfooterNO62)
>>>>>>
>>>> http://www.adhesions.org/forums/message.htm
>>>>
>>> http://www.adhesions.org/forums/message.htm
>>>
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