Some people on this site have gotten relief after having laparascopic adhesiolysis using spraygel/sprayshield. I'm interested in finding out the percentage of success these doctors have had using this substance. Perhaps the doctor who has this website would know.
As soon as I can get ahead financially, I'm going to Dr. Semertizides in Cincinnati, Ohio. For those of you who don't know, Angel Flight, Orlando, FL will transport patients free of charge to hospitals located over 100 miles from home. They flew me to Scranton, PA where Dr. Redan and Dr. Reich performed laparascopic adhesiolysis on my abdomen. Unfortunately, the adhesions returned because at that time, the only barrier was interceed by Johnson and Johnson. Also, there's a "Cine MRI" that detects adhesions.
I'm miserable with these massive adhesions throughout my abdomen. My abdominal wall feels like one big charley horse. Some days I feel I can't go on any longer but somehow the good Lord gives me strength to make it through another day. I'm an outgoing, happy person but these painful adhesions have robbed me of a normal life.
Unless the doctor you're planning to do your surgery uses spraygel/sprayshield, it's doubtful your condition will get better.
May God bless all of you and help you find a way to get well.
Sincerely, Linda in Jacksonville, FL
> ----- Original Message -----
From: Joy Thomas
To: Multiple recipients of list ADHESIONS
Sent: Monday, February 23, 2009 12:46 PM
Subject: Re: Let's talk about symptoms!
jetstamp,
As for the name, I never heard "ARDS" before coming to this site. My doctors have all just called it "adhesion disease."
On Sun, Feb 22, 2009 at 3:06 PM, jetstamp <jetstamp@yahoo.com> wrote:
> At Sun, 22 Feb 2009, jetstamp wrote:
>>
>>At Sat, 21 Feb 2009, WendyEbbe3@aol.com wrote:
>>>
>>>Kelly and Debbie,
>>>The Bee Gee brother died from a bowel obstruction? No one should ever have
>>>to apologize for venting how they feel. I know that I'm almost to the point
>>>where I don't want to live any more if this is as good as it gets. I'm only
>>>hanging on waiting to get an appointment to see a Social Security Judge and then
>>>find a Surgeon in Minnesota that has the skills and knowledgeable on
>>>adhesions. Hoping that there is a Surgeon out there that can give me my life back.
>>>I've already lost a good job at Andersen Windows and I have two girls, one is
>>>in college and the other a Senior in High School. I can't make ends meet on
>>>disability. I'm so lucky my parents own the house I live in. I'm so lucky I
>>>still have them. My Mom takes me to most of my appointments. I always dream
>>>of winning the lottery or just coming into a lot of money so I could start,
>>>dang it I have a hard time remember things. I lost a lot of my mind while I
>>>was on Lyrica. I would like to set up some funding for research to find a cure.
>>>Maybe even to help out people who can't afford all the tests they put you
>>>through or even surgery. Maybe even educate these Dr's. that don't believe they
>>>cause pain. I'll keep dreaming and in the mean time, Take Care All!
>>>Wendy Ebbe
>>
>>Wendy,
>>
>>I live near the Minnesota/Wisconsin border. I am employed full-time and
>>have what I call fairly good insurance- not an HMO and I have the
>>freedom pretty much to make apppointments with 'most' specialists
>>without a referral. However, per my recent post I called 'HYPE!!' you
>>can see that in my 25 years with this I have been totally unsuccessful
>>in locating a physician who will even acknowledge the issue of
>>adhesions- I've been to Mayo and been pretty much brushed off just like
>>everywhere else.
>>
>>So, if either one of us ever manages to find a doc in our area we must
>>be sure to let the other know about it. After my disaster last week, I
>>am currently 'boycotting' the medical system (again!) and have no idea
>>of how to search for a doc who would even remotely consider the issue of
>>adhesions. Only people who will talk about them are physical
>>therapists- who interestingly can feel them immediately upon abdominal
>>examination- apparently no laparoscopy is needed for them to recognize
>>adhesions! Also the interpreting physician of my last CT and MRI
>>suggested adhesions- of course that makes sense because he is a
>>radiologist and doesn't have to deal with the patient in
>>addressing/solving them so it makes sense that he would have no problem
>>being honest.
>>
>>--
>>jetstamp
>
> P.S.
>
> I also have noticed when I search the term 'ARDS' most of what comes up
> seems to be 'Acute Respiratory Distress Syndrome'- anyone else notice
> this? Maybe we need a new name for the horrible symptoms adhesions
> cause! We definitely do not need any more confusion about this.
>
> jetstamp
>>>
>>>========Original Message========
Subj: Re: Let's talk about symptoms!
>>>Date: 2/20/2009 10:23:27 P.M. Central Standard Time From:
>>>_klmurray_61@msn.com_ (mailto:klmurray_61@msn.com) To: _adhesions@mail.obgyn.net_
>>>(mailto:adhesions@mail.obgyn.net) Sent on:
>>>
>>>I know what you mean. How do we know if it is a life or death situation.
>>>Remember the BeeGee brother died from a blockage and it seems like someone
>>>else that was famous did.
>>>Some times I think maybe I better go and get it checked out but do not want
>>>to go and it ends up passing.
>>>I am not in awe of any dr. anymore. I realize they don't sit higher then we
>>>do.
>>>
> >>>>>----- Original Message -----
>>>From: _BBLDEB@aol.com_ (mailto:BBLDEB@aol.com)
>>>To: _Multiple recipients of list ADHESIONS_
>>>(mailto:adhesions@mail.obgyn.net)
>>>Sent: Friday, February 20, 2009 8:07 PM
>>>Subject: Re: Let's talk about symptoms!
>>>
>>>Kelly,
>>> I too have blockages. Most of the time I can go up to 3 weeks or more
>>>before having a bowel movement. Needless to say, that explains why I have so
>>>much nausea and vomiting. And for the most part, I go up to 3 or more days
>>>at a time without eating. And when I do try, other than a teaspoon, maybe a
>>>tablespoon, it usually comes back up. My question to my surgeon was "how
>>>long do I have to go without having a bowel movement before you consider it to
>>>be a blockage?" To this day, no doctor has ever answered that question. They
>>>know I am full of adhesions, (28 abdominal surgeries to date) and now they
>>>tell me the only way they will operate again is if I have a blockage. Well,
>>>if 3 weeks is not a blockage, then I have no clue what is! And what is so bad
>>>about it, I am very knowledgeable in medical /prescription areas.
>>> It is unbelievable what some doctor's will say in order to rid of a
>>>patient that they can't figure out or can't help or have no clue on how to treat.
>>> I am sorry, but to me, if they are a surgeon, then this is something they
>>>"ALL" should be able to deal with. They cause them every time they do
>>>surgery! (Venting for a moment, sorry).
>>> The worst part is they know about my blockages, but the doctor says that
>>>he wants it to be a "Life or Death" situation before he will do anything.
>>>Well, to me, going 3 weeks in that kind of pain is "DEATH" every day for the
>>>most part. When gas passes, that is the only relief for a blockage, when a
>>>doctor won't do anything at all. I have 4 kinks in my bowel from the adhesions
>>>(that I know of).
>>> Good luck to all of us and hopefully we will find help soon.
>>>
>>>Sincerely,
>>>Debbie
>>>
>>>____________________________________
>>>Need a job? _Find an employment agency near you_
>>>____________________________________
>>>____________________________________
>>>
>>>--
>>>____________________________________
=
>>>____________________________________
>>>(http://yellowpages.aol.com/search?query=employment_agencies&ncid==
emlcntusyelp00000003) .
>>>____________________________________
>>>
>>>____________________________________
>>>%3D62%26bcd%3DfebemailfooterNO62)
>>>
>
http://www.adhesions.org/forums/listcmds.htm
>
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