I feel we are like overweight people. The ones that watch their diet and exercise but are not losing weight. Doctors look at them like they are lying and placid them. My friend went through this. Testing showed she had no problems but she could not lose weight. She switched doctors and he ordered some tests out of the ordinary that found she had sluggish metabilism and a few other things. Once a doctor went outside the norm a solution was found. She ended up losing 60 pounds by getting the problems under control.
I feel like we have a cancer attacking us. The cancer being our adhesions. Our problem is that there are not enough doctors who know about them and probably not many being educated in adhesions. Doctors are taught that that adhesions don't cause pain and maybe if they do otc pain meds help. There are probably a handful of doctors in the world that understand. Finding those doctors are like finding a needle in a hay stack.
I am going through a HUGE depression right now. I am trying everything to get out of this funk but can't. I have gone to two doctors for help but they just don't seem to understand. Adhesions are a multifacited disease.
Please feel free to contact me at racostew@yahoo.com if you need to talk.
Sorry for the rant all. I am getting at my wits end. Alta
________________________________ From: Cuddy <barkbark@cox.net>=0ATo: Multiple recipients of list ADHESIONS <adhesions@mail.obgyn.net>=0AS=
________________________________ From: Cuddy <barkbark@cox.net>ent: Wednesday, February 25, 2009 11:54:19 AM Subject: Re: Dear Cheryl/Sally/pain meds worked out
I have Fitz-Hugh-Curtis Syndrome along with the PID. My pain specialist: "CANNOT UNDERSTAND WHY I AM IN PAIN!!" I originally did not believe in pain medication until now. I had the pain specialist (the one that understood I was in pain)take me off the percocet and drop me down to Lortab 10/500 because I figured if I suffer a little, I would not get "hooked." The last visit, the doctor told me he cannot keep "giving me pills" because he cannot see why I am in pain. (Keep in mind that it takes a referral to get into one of these clinics) My next visit is in March. The reason why I am writing is because if there is any other way to deal with this, please let me know. And, what is going to happen when they take me off of the Lortab all of a sudden? (I am barkbark@cox.net). I feel as though politics are involved and this is the price I have to pay because "Las Vegas" has a reputation. I am more afraid of that pain comming back more than I am afraid of dying. Please someone send me an e-mail.
At Tue, 30 Oct 2001, Sally Grigg wrote:
>
>Dear CHERYL, I'm sorry you're going through such problems, I was too for a
>little while, I have a wonderful local doctor, but he had decided to cut back
>on my meds to see what happened, well, what happened was pain, pain, pain.
>
>I've tried mind over matter, but it hasn't worked yet. I wish there was some
>way you could ommunicate with your present doctor that it doesn't have to be
>either this or that. I'm trying a combination of opiates, including the patch
>and oxycontin, plus a few other milder ones. The point is not to take more
>pills or medication. The point is to be pain free or relatively pain free with
>the minimum quanitiy of medication. When you mix them, it works best for me.
>If I'm feeling in so so pain, I take a less potent pill, If I feel like
>screaming I take a very strong pill. I'm on the patch continuously and it help
>tremendously. But it needs to be supplemented with other pills.
>
>Is there any way you can get this across to your doctor, without offending
>him. Mine gets kidney stones, and I really believe it has made him a more
>compassionate man. Everytime, he starts to withdraw my meds, and I start to
>begin to get upset, I believe he remembers his pain and listens to me and we
>work something out. So far, so good.
>
>Your doctor unfortunately sounds a little childish, sorry, but you probably
>already think this. He shouldn't be emotionally attached to his diagnosis, and
>he should be aware that extreme pain needs to be treated in any way possible.
>
>We're not in the way of clear lives with no medication, we just want to live
>somewhat normally without laying in bed all day and moaning and crying. I'm
>reading the book, Full Catastrophy Living, and So far, so good. Keep up your
>good spirits. Maybe if you wrote him a letter with the board editing it, he
>would understand. Good luck., Love, Sally
>
-- Dr.Cuddy age.htm