Re: ADHESIONS digest 831

From: Marlene Wheeler (wheelerski@msn.com)
Thu Jan 22 22:08:25 2009

Alie, First off, sweetie your not Crazy. Adhesions do cause a lot of pain, and can also be very dangerous if not taken care of. They can cause lots of problems from wrapping around other organs to prevent them from working properly, to bowel obstructions, etc etc. The unfortunate thing about adhesions is they don't show up on Xrays untill they are already causing these types of problems. I know you are in a position now that is very difficult with your X husband. NO YOU SHOULD NOT LOSE YOUR KIDS BECAUSE OF THESE THINGS!! If I were you I would first find a Doctor that specifically deals with adhesions. I don't know of anyone in Arizona, but there are Docs in other areas of the Country. My Doctor is in Pennsylvania, it is Clark Gerhart. He does have a web site and I'm sure would be willing to talk to you if you tell him your story.. I can see that you are in a sort of time crunch with the hearing etc., but I would think these Judges etc would take this all into consideration before jumping to taking your kids from you. Do you have family or anyone who can help you there? Get all the information you can get on adhesions ie talk to Dr G( he has a web site clarkgerhart.com) Also there are other Docs across the country who could help ie in Florida, Ohio, ?? These are the main ones I have heard of. I would not be alive (and I didn't want to kill myself.) if it weren't for Dr G. I ended up having to go to Pa, because no one here in Utah would do anything to help me. All they did was tell me that I wasn't bad enough and that, believe it or not, adhesions didn't cause pain !!!! I'm talking about supposedly some of the best surgeons?? here. Luckily my Gi Docs believed me. Let me tell you a little of my story and you can use it if you want for your hearing. I don't want to get any one in trouble so I'm not going to use names. I originally had Typical like you, other surgeries ie hysterectomy, laproscopic for endomitriosis( I found out later that people who have this are more prone to adhesions !!) I had adhesions that formed at this time that weren't much of a problem because of where they where.(not close to any major organs.) 5 years ago I became very ill ie from a stomach virus that turned into a night mare, I ended up having to have bowel surgery, thus the start with major problems. Laproscopic Choleycystectomy, and even gyn surgery that also developed (healing problems.) I had my first adhesions surgery with the doc that did the laproscopic surgery, and choley. I don't blame this doc at all, but I was pretty trusting that everyone knew what they were doing. I ended up having touble a short while later, and went to another doc ie supposedly the person to go to to take care of these things. We knew at that time the adhesions had come back. He was the one who told me they didn't cause pain (I figured he just didn't want to deal with me.) I went to another doc here who said they could cause problems but I wasn't bad enough. Let's put it this way I ended up in ER about 25 times that next six months or so waiting for someone here to do something. I had other test that showed I had a stricture, but they still wouldn't do anything. I'm a nurse so I just said to myself,I shouldn't have to live like this. I ended up doing all the research myself on Adhesions(by the way I'm an Or nurse I've seen these things.) Luckily I found adhesions.org and ended up finding Dr G. By the time I got to him the adhesions were wrapped around my right ureter and bowel. I had a partal obstruction. Needless to say I was a mess. My bowel had even started to atrophy, because they let me go to long here. I could go on and on about the research, and what I found out during this time. Ie about adhesions barriers, etc etc. But I don't want to bore you. I ended up having to have one more surgery with him 6 mo later. That was 2 years ago. Yes these things can come back there's no guarantee, but the last time he put a different barrier in and I'm Much Much better. now. I've been through a lot of the same things it sounds like you have. No one believed me, they thought it was everything from in my head to stress, to whatever. I would not be here today if it weren''t for a couple Docs that believed in me. I reciently went through a divorce also. Mainly due to my struggle with physical things ie adhesions. These things ruin your life, but their is hope. There are a lot of new barriers etc out there that are promising and when you have kids you do every thing you can, because you want to be there for them. Hang in there, and you are doing the right thing by putting your story on here. There are so many people around the country ie world that are going through the same thing you are. One thing I did find out during my research that you might want to know about that is exciting. There are barriers out there that are used in other countries ie Germany, etc that are not approved here in the US(another story in itself as to why!!!!!) There is work being done to help deal with these things. Let me know how you make out. We're all here for you! Moe.(nick name)

Date: Thu, 22 Jan 2009 18:47:12 -0600 From: alie106@msn.com To: adhesions@mail.obgyn.net Subject: Re: ADHESIONS digest 831

Hello out there,

my name is alie, I want to say if it wasn't for this site I would probably except my life was doomed for ever and want to die. I'm 37 and have had several surgeries that have left me in severe pain that I'm about to loose my job, my kids and my mind . I finally went to a new gyn yesterday and I was at the end of my rope, I have run out of options and I am in such pain I cant function and I was beginning to think I want to put a gun to my head. I have had two c-section an oblation my appendix removed a hysterectomy and cuff reconstruction and some adhesions removed. As I sat in the Dr. office with tears streaming down my face explaining my pain and I know not many doctors want to go in and remove adhesions because it can just come back, but that I can't work and because of this pain and how hard n it is to do the things I used to do and with even pain meds I have severe pain, that now my ex-husband is trying to get full custody of my girls and accusing me of being crazy and a drug addict. YES so on top of dealing with the pain and depression I an dealing with proving to a court that I have adhesions and trying to get them removed and that I'm not a drug addict and my pain is real and that I have had counseling even MMPI test to prove I'm not crazy " which I'm not" I think that the doctor finally got that if he didn't help me that I will end my own life ... He agreed to do surgery which made me very happy. Heres the problem, he gave me 30 percocet and said he will be on vacation till the first week of Feb, then he will do the surgery so I called back today and said "when is the surgery and since he is going to be gone can he leave me another script for meds since I cant handle that pain and he will be gone"? Well the nurse told me tonight that "no" he cant prescribe any more meds till he does the surgery so right away my anxiety went up just thinking I'm going to have to suffer when the pills run out and I get surgery. Talk about u nfair and no understanding at all. so on top of that now I have to prove my medical problem to a judge and my own lawyer because I get the feeling she doesn't even believe me... I am asking if any of you that read this and live in AZ and have suffered the way I have and have children, to please reach out to me and write letters about what you are or went through with adhesions. I cant loose my children due to this I love them more than anything in the world and I'm trying to get people to understand how bad adhesions are and what it can do to ones life. My court date is Feb, 9th 2009. If you write me a letter please send it to alie106@msn.com I need theses letters from you my friends please help me not loose my kids because of adhesions, its not fair and I will really loose my will to live.

thank you, I pray for all of you and please write a letter even if you don't live in AZ I need these to prove to the court what I'm going through and I'm not alone and I'm not making it up.

Thank you

Alie

> Date: Thu, 22 Jan 2009 18:17:16 -0600
> From: adhesions@adhesions.org
> To: adhesions@mail.obgyn.net
> Subject: ADHESIONS digest 831
>
> ADHESIONS Digest 831
>
> Topics covered in this issue include:
>
> 1) Re: An Update of Linda Halford's Surgery Today
> by lindahalford@comcast.net (Linda Halford)
>
> ----------------------------------------------------------------------
>=20
> ----------------------------------------------------------------------
> Date: Wed=2C 21 Jan 2009 19:24:48 -0600 (CST)
> ----------------------------------------------------------------------
> From: lindahalford@comcast.net (Linda Halford)
> To: adhesions@mail.obgyn.net
> Subject: Re: An Update of Linda Halford's Surgery Today
> Message-ID: <200901220124.n0M1OmI06104@mail.obgyn.net>
>
> >

>> >>----- Original Message -----
> >From: "Pam Markford" <PJtweetyRn@aol.com>
> >To: "Multiple recipients of list ADHESIONS"
> ><adhesions@mail.medispecialty.com>
> >Sent: Thursday, April 12, 2001 11:12 PM
> >Subject: An Update of Linda Halford's Surgery Today
> >
> >> Hello Everyone,
> >> I just wanted to post a quick note to let you all know about Linda
> >> Halford's surgery. Dr. Redan said "All went fine with Linda. Her
> >> surgery was quite extensive as she had a tremendous amount of
> >> adhesions.It was quite obvious why she had a great deal of pain and
> >> reaction from her "adhesion prevention barrier." Linda, we are all
> >> praying for you and will continue to pray for the strength that you will
> >> need to recover and get back to feeling like "The Old Linda", without
> >> pain!! Let us know if any of us can help in anyway. We will also pray
> >> for your comfort while in Scranton. God Bless and rest well!!
> >>
> >> --
> >> In Loving Friendship,
> >> Pam Markford
> >>
>
> Dr. Redan performed a second laparascopic lysis of adhesions on August
> 12, 2004. He removed massive adhesions and also removed my navel. I
> continue to suffer from excruciating abdominal pain and have taken
> every pain medication known. I had a morphine pump inserted into my
> abdomen and different medications were tried. I went to the highest
> dosage of morphine and became immune to everything. In 2007, I had
> the pump removed. I have tried alternative methods of pain management
> such as, physical therapy, acupuncture and herbs. My entire abdomen
> feels like one big charley horse and is very inflamed. My intestines
> feel like they're super glued together. I get very little relief from
> the Lorcet 10/650, Neurontin 300 mgs. and Flexiril 5 mgs. I lie in
> bed a big portion of my day because this is where I get the most
> relief from pain. The pain started shortly after December 1993 when I
> had a Tram Flap surgery to reconstruct both my breasts. I am so very
> unhappy and have no quality life. Please, please, please let me know
> where I may get help. I would appreciate hearing from you. Thank you
> so very much.
>
> Sincerely,
> Linda Halford, Jacksonville, FL
>
> ------------------------------
>=20
> ------------------------------
> End of ADHESIONS Digest 831
> ------------------------------
> ***************************

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