send me a copy of the letter and i will switch it up some and send me the link and I will forward as well. Great job! In a message dated 9/1/2008 11:22:01 P.M. Pacific Daylight Time, carynlruzich@comcast.net writes: Just to let you know . . . Oprah's website will not take my letter, but I did find a link to Dr. Oz, so I wrote him a letter and we'll see if I hear anything. I still would like to do more. If anyone has ideas, please share. I've even thought of writing our Surgeon General to see if I can get an answer out of him (or her). Caryn R
>-------------- Original message --------------
From: "IAS Admin (Tracy)" <tracy.joslin@adhesions.org>
> From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf
Of
> Marlene Wheeler
> Sent: Friday, August 15, 2008 9:42 PM
> To: tracy.joslin@adhesions.org
> Subject: RE: Will this never end?
>
> Sounds like a good Idea. Keep in touch.
>
> ________________________________________
> Date: Sun, 27 Jul 2008 17:54:02 -0500
> ________________________________________
> From: jmoore4877@aol.com
> To: adhesions@mail.obgyn.net
> Subject: Re: Will this never end?
>
> I am in. Let me know what to do!!!
>
> -----Original Message-----
> From: carynlruzich@comcast.net
> To: Multiple recipients of list ADHESIONS
> Sent: Sat, 26 Jul 2008 1! 0:24 pm
> Subject: Re: Will this never end?
> I think that's a great idea! I'll write Oprah because it's going to take a
> high profile celeb or show to do this disorder justice. How about 20/20 or
> one those national news shows.
>
> Until I found this site a few months ago, I really thought I was pretty
much
> alone. My mother had a lot of problems with adhesions from several bowel
> surgeries, but I thought that may just have been hereditary.
>
> Now I know it's a much bigger issue and the number of people suffering is
> unacceptable. Not only does our quality of life suck, but it hurts our
> loved ones, make life so much harder for us to function in the world and
> medicine has little to no help for us. And I think it's time something be
> done about it.
>
> So, I'll do my part and write Oprah and maybe look into ABC or NBC network
> news shows and write them a! s well. I'll reference this support group and
> hopefully more of you will follow through and do the same.
>
> When I was younger (I'm 47 now and have been suffering since my teens) the
> only reason I even knew anything about adhesions was because my mother
> suffered from them and had many surgeries just for adhesions. But if
you've
> never known anyone who has suffered from these horrible buggers you would
> think you're dying at times. I knew all about them and I still get feeling
> that way when they get really bad.
>
> So let's do! Let's start a campaign to get this disorder recognized and
who
> knows maybe even make change in the medical community. I, too, have had
> ignorant doctors tell me adhesions don't cause pain and it was all I could
> do to restrain myself. Obviously these doctors shouldn't be practicing
this
> kind of medicine.