Re: Is there any help for me?

From: Christine (
Sat Aug 30 22:13:00 2008

Hello Reba, I too can relate to be treated like a drug addict. My fam doc wanted to send me to an addictions councelor at a local rehab and I said NO NO NO. I am going through the same pain thing here except I've been hysterectomized, ovaries are both gone and I have to take esrogen hormones now, which contributes to my pain. I have also been diagnosed w/chronic pelvic & abdominal pain due to having chlamydia then PID then ovarian cysts. Pain started with the PID back in the 80s. I've had 5 abdominal surgeris and 2 laparoscopies. I posted my story yesterday. I feel for you Reba and hope & pray that you find a doc that will help you with pain meds at least. Best regards Christine

At Wed, 13 Aug 2008, reba72 wrote: >
>At Fri, 1 Aug 2008, Jenny wrote:
>>>I have had numerous surgeries for cysts, masses, and adhesions. And of
>>>cource that just makes the situation worse. So now 11 years after my
>>>left ovary and tube were removed they are telling me that I have a left
>>>ovary. how is that possible? I dont understand. I just had surgery in
>>>october of 2007 and they removed moore adhesions but the pain is back.
>>>Everytime I end up in the ER they treat me like a drug seeker.Some one
>>>please help me.
>>Hi Reba,
>>I too had the same problem. I had many surgeries for pain from ovarian
>>cysts and Stage 4 Endomitriosis -- this then turned into major adhesion
>>problems!! I had my ovary removed and tube and in 3 months it "grew"
>>back. I was in extreme pain - so I went to the Dr., who then sent me to
>>the ER, they did a CT Scan and saw the ovarian cyst. I thought the Dr.
>>had the wrong persons results, and made him go and check to make sure
>>that he had my info!! :) As it turned out it is called ovarian remnant
>>syndrome. A piece of the ovary can be left behind (especially those of
>>us who have adhesions!!!) Then because you still have estregen being
>>produced, it stimulates the left over ovarian tissue to start to grow
>>again. I ended up having another major surgery to have that removed and
>>all the adhesions that grew back.... My pain has come back sometimes
>>right away, sometimes within 3 months. I wish you the best of luck.
>>Keep an eye on the ovary, it could develop cysts and be causing you the
>>pain!!! I would suggest seeking an experience surgeon that deals with
>>ovarian cysts and laparscopic, if possible -- and if you can someone who
>>has dealt with adhesions. The ER can be a great place for relief, but
>>also frightening if they treat you as a drug seeker, I have seen my
>>share of both. Find another hospital, if possible. It may be worth a
>>little extra drive for more understanding people.
>>God Bless and Good luck!!! Feel free to email me if I can help you!!!
>Thank you for your reply. I know exactly what tyou are talking about
>with ovarian remnant syndrome. It was suposedly removed in march 06
>then again in oct 07. Here it is aug. and yet again I need surgery.
>Does it ever end. And why is the hospital that did all of theese
>surgeries the ones saying that I,m drug seeking? dont they ever look up
>the info you give them?

Hi Rachel...My name is Christine.....I am brand new here and this is my very

first post...I felt compelled to write you after reading this post....I have

had 5 major operations on my reproductive organs, the last one (total abdominal hysterectomy)being in September. I am 4 months post op from that and am still taking pain medication 4 to 6 times a day. I totally understand you and can't beleive you are still working.....I am unemployed and plan on staying that way until I get fixed.

ps I had a sceduled appointment to see a Gastro Interologist (my Gyno refferred me to him) but my appointment was cancelled afetr waiting a month because of bad weather here last week. I am so sorry that you are all

alone with this..I will pray for you Rachel ok..I only just found this website and am starting to beleive my doctors when they say that it's probably adhesions ..I also saw a urologist two weeks ago and am waiting for the results back from uirinanalysis and a pyelogram.. My heart goes out to you Rachel and will keep you in my thoughts & prayers


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