trying to get help

From: IAS Admin (tracy.joslin@adhesions.org)
Fri Jul 11 19:25:59 2008


From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf Of Kelly Sent: Monday, June 23, 2008 12:09 AM Subject: Re: trying to get help

Have you tried the University Of Minnesota Hospital?

From: WendyEbbe3@aol.com Sent: Sunday, June 22, 2008 10:55 PM To: Multiple recipients of list ADHESIONS Subject: Re: trying to get help

Hey All, I'm in Minnesota the home of the so called famous Mayo Clinic and so far I can't find a surgeon willing to even try operating on me. My last three surgeries the Dr. did a laparotomy instead of laporoscopy. I can't handle getting cut wide open again I wan to find a surgeon that can do it through laporoscopy. My regular Dr. tried to get me into the mayo clinic twice and they said they couldn't do anything for me. The surgeon I had last said she would call the Mayo Clinic and they would call me but so far I have not heard anything. The one thing I do know is that I can not go on like this for much longer. Anyone know of a skilled surgeon in MN? I wish everyone the best of health and hope that one day they will find a cure and we can all be pain free. Wendy Original Message Subj: Re: trying to get help Date: 6/22/2008 11:34:28 P.M. Central Daylight Time From:carynlruzich@comcast.net To: adhesions@mail.obgyn.net Sent on:

Terri,

Never stop trying to find help!

And I know how you feel about changing surgeons. I had a surgeon from the time I was 17 for about 30 years, then he retired. The partners in his practice were not as skilled as Dr. T, so they wouldn't touch me. One even had the nerve to tell me "They (surgeons) don't fix adhesions". I was furious and grateful at the same time.

Surgeons are very finicky about removing adhesions. After about 20 surgeries (give or take), the majority for adhesions, I know one thing for sure . . . whoever you chose as a surgeon, be sure he is highly skilled. Adhesion surgeries are extremely difficult and if you get the impression that surgeons don't want to operate, it's not because they don't want to help you, it's because they don't want to hurt or kill you.

I. unfortunately, was almost killed by an inexperienced surgeon and now, thanks to a colorectal surgeon, now have the doctor who pioneered the lapraoscopic removal of the gall bladder. Dr. H is one of the most respected surgeons in the Detroit metropolitan area and he is my surgeon. So please. never stop trying to find the best!

Best of Luck!

Caryn

>-------------- Original message --------------
From: "IAS Admin (Tracy)" <tracy.joslin@adhesions.org>

> Sender: terri_schmitz@yahoo.com (terri)
> Subject: trying to get help
>
> HELLO,
>
> I AM NOT NEW TO THIS SITE BUT HAVE NOT LEFT A MESSAGE IN A LONG TIME.I
> WAS WONDERING IF ANYONE HAS HEARD ABOUT DIGESTIVE HEALTH CENTER AT
> INTEGRIS IN OKLAHOMA CITY,OKLA.I LIVE IN OKLAHOMA AND MY INSURANCE WILL
> ONLY COVER ME IN OKLAHOMA AND THIS KEEPS ME CLOSE TO BE ABLE TO GET
> SOMETHING DONE.THEY TALK ABOUT THE NEW STUFF THEY HAVE AND NOT VERY MANY
> PLACES HAVE.THIS WOULD BE SO NICE TO HAVE SOMEWHERE TO GO WHERE SOMEONE
> KNOWS MORE ABOUT THIS.I WAS ABOUT READY TO GIVE UP AFTER 15 SURGIES THE
> DOCTOR TOLD ME ABOUT A WEEK AGO THAT I WAS GOING TO HAVE TO WAIT UNTIL I
> WAS IN REAL TROU! BLE TO GET ANY HELP.I REALLY LIKE MY DOCTOR BUT ALL HE
> KNOWS TO DO IS OPEN ME UP AND TRY TO FIX WHAT HE CAN AND THE OLDER I GET
> THE HARDER IT GETS TO GET OVER IT.
>
> I KNOW I AM NO DIFFERENT THAN ANYONE ELSE ON THIS SITE AND DO NOT FEEL
> LIKE ANYONE IS BETTER OFF THAN ME.I DO NOT KNOW WHAT I WOULD HAVE DONE
> IF I WOULD NOT HAVE FOUND THIS SITE,I COULD READ THE POST AND KNOW I WAS
> NOT THE ONLY ONE.I DO NOT WISH THIS ON ANYONE BUT IT SURE HAS HELPED TO
> READ THE SAME THINGS I AM FEELING.I QUIT LEAVING POST AND THOUGH I WOULD
> JUST QUIT TRYING BUT WITH THIS CENTER SO CLOSE I HAVE NEW HOPE.I KNOW
> MOST OF MY FAMILY GETS TIRED OF PLANNING AROUND MY PROBLEMS.
>
> I LOVE THE OUT DOORS AND LOVE DOING THINGS OUTSIDE AND I AM FAR FROM
> BEING LAZY AND SITTING AROUND MAKES IT SO MUCH WORSE BUT THEN WHEN YOU
> CAN NOT GET INTO YOUR PANTS AND CAN ONLY WEAR SOMETHING LOSE AND FEEL
&g! t; LIKE A SLOB.I DID NOT KNOW UNTIL I READ THE LAST POST THAT THE PANTS > PROBLEM WAS NOT ONLY ME UNTIL I READ IT ABOUT SOMEONE ELSE.IF SOMEONE
> ELSE KNOWS ANYTHING THIS ABOUT THE DOCTORS AT INTEGRIS I WOULD LOVE TO
> HEAR FROM THEM OR PUT UP THEIR SITE AND SEE IF THEY HAVE ANY OF THE NEW
> TEST RUN THEY OVER.
>
> THIS IS THE FIRST TIME IN A VERY LONG TIME I FEEL LIKE THERE IS HOPE.IT
> HAS GOT TO THE POINT THAT THE PEOPLE IN MY LIFE JUST DO NOT TELL ME WHAT
> THEY ARE DOING BECAUSE I SLOW THEM DOWN.I JUST WANT PART OF MY LIFE
> BACK, I AM NOT ASKING FOR TO BE FIXED FOREVER JUST SOME OF IT.PLEASE IF
> ANYONE FROM OKLAHOMA OR ANYWHERE KNOWS OF THE TREATMENTS OFFERED PLEASE
> LET ME KNOW.


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