HELLO, I HOPE THIS EMAIL FINDS YOU HAVE A GOOD DAY.MY IS NOT DOING SO GOOD AND IT SEEMS LIKE EVERDAY IS ONLY GETTING WORSE.SOMETIMES I THINK NO ONE HEARS ME ANYMORE BECAUSE THE PAIN I HAVE IS THERE EVERDAY AND PEOPLE DOES NOT KNOW ME WITHOUT IT.DO YOU EVER WONDER WHAT IT WOULD BE LIKE TO WAKE UP SOMEDAY AND NOT EVER HAVE THIS PROBLEM AGAIN.EVEN ON MY GOOD DAYS I KNOW THAT IT IS JUST A MATTER OF TIME SO IT IS ALWAYS WITH ME. I WONDER IF I DID NOTHING ABOUT THE BLOCKAGES WHAT WOULD HAPPEN AND HOW LONG IT WOPULD TAKE.I FEEL LIKE THERE IS NO END TO THIS AND IT IS ONLY GETTING WORSE.I AHVE BEEN LOOKED AT FOR THE LAST FEW YEARS AS IF I ONLY WANT TNE PAIN MEDS.THAT IS SO MUCH OF A JOKE BECAUSE THEY DO NOT HELP ANYMORE AND ONLY MAKES IT WORSE.AFTER AWHILE THERE IS NO WAY TO GET OUT OF PAIN IF YOU HAVE BEEN ON MEDS FOR VERY LONG.I KNOW IF I HAVE SURGEY THAT I WILL LAY IN THE HOSPTAL AND BE IN PAIN BECAUSE THE STAFF DOES NOT BELIVE ANYONE COULD BE IN PAIN WITH THE AMMOUNT OF MEDS THEY HAVE GAVE YOU. I WILL BE IN THE HOSPITAL FOR ABOUT A WEEK AND THEN SCENT HOME AND JUST TRY AND COUNT THE MINTUES UNTUIL THE PAIN IS BETTER FROM THE SURGEY.SOMETIMES I FEEL LIKE THERE IS REALLY NOT MUCH TIME BETWEEN THE TIME OF SURGEY AND ANOTHER BLOCKAGE AND MORE BAD TREATMENT.MOST OF MY FAMILY DOES NOT THINK THERE IS ANYTHING WRONG AND IT IS ALL IN MY HEAD.DO YOU KNOW OF A DOCTOR THAT HAS EVER WENT THREW THIS PROBLEM THAT MIGHT UNDERSTAND WHAT WE GO THREW.MAYBE THEY COULD SPEAK UP FOR THE ONES NO ONE WILL LISTEN TO. HOW IN THE WORLD DO WE GET THIS OUT THERE AND GET PEOPLE TO TRY TO UNDERSTAND.I FEEL IF I HAD CANCER THAT EVERONE WOULD STEP UP AND SAY YOU POOR THING LET ME TRY AND TRY TO HELP YOU.I AM TO THE POINT NOW WHERE MY DOCTOR JUST GIVES ME PAIN MEDS AND TELLS ME I WILL HAVE TO TWIST HIS AMR REAL HARD TO GO BACK IN.I CAN RUN MY OWN MG TUBE BECAUSE NOTHING COMES EASY FOR ME.DOES ANYONE KNOW IF SOMEONE FAMOUS HAS HAD THIS I WILL STALK THEM TO TRY TO GET THIS OUT THERE. I KNOW IF I LOSE THE DOCTOR I HAVE COULD COST ME MY LIFE MY IT IS ONLY GETTING HARDER.I AM NOT ASKING TO BE HEALED BUT JUST SOME OF MY LIFE BACK.I AM TRIED AND I LOVE MY KIDS AND GRANDKIDS BUT I AM JUST SO DAMN TRIED.I LOVE THE OUT DOORS AND MY PLANTS AND I KNOW THAT WE ARE ALL SOMEONES LOVED ONE AND I AM JUST ONE PERSON AND THERE IS SO MANY FAMILYS RUINED BECAUSE OF THIS WHAT IS GOING TO TAKE AND HOW MANY YEARS BEFORE SOMETHING IS DONE.SORRY FOR THE LONG EMAIL TODAY REALLY SUCKS. TERRI SCHMITZ 47 15 SURGIES