I just don't want to live like this anymore.

From: IAS Admin (tracy.joslin@adhesions.org)
Fri Apr 4 19:49:19 2008

From: trojanmom@cox.net [mailto:trojanmom@cox.net] Sent: Wednesday, April 02, 2008 7:54 PM To: adhesions@adhesions.org Cc: IAS Admin (Tracy) Subject: Re: I just don't want to live like this anymore.

I would like to offer the same sentiment. As I have said previously I have had multiple surgeries and hospitalization with an ng tube. By the grace of God I ended up at Celebration Hospital under the emergency care of Dr. Redan. I am 4 months post op. I don't know that the adhesions won't come back but, as of today I feel better than I have in 15 years. I have lost weight and my bowels are moving. I haven't gone back to a higher fiber diet yet I am adding small amts of these foods slowly(still scared) and I take miralax twice a week. Previously I was taking miralax and using a fleets enema every few days. What misery coupled with the pain and low residue diet.

I don't know what the solution is for you, but keep searching. I didn't know about this site till a month ago. I didn't realize there were others out there feeling physically and mentally like I did. Goodluck I am here for encouragement when you need it.l

---- "IAS Admin (Tracy)" <tracy.joslin@adhesions.org> wrote: > Sender: hairgoddess72@hotmail.com (Dianna)
> Subject: Re: I just don't want to live like this anymore.
> I just wanted to say hello and let you know that you are not alone. I
> have only been dealing with the pain for two years now, I go to see
> another doctor next week and I pray that he can help me find relief. My
> heart hurts when I read your message, I know the desperation and loss
> that you feel. It takes your life, doesn't it. I hope that you find
> the strength to keep trying to find an answer, they can give someone a
> new heart so why can't they fix us? Maybe with luck we will all find the
> cure that makes the pain go away, we just have to keep looking. Good
> luck and God Bless.
> At Mon, 24 Mar 2008, IAS Admin wrote:
> >
> >From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf
Of > >Jeanette Chamberlain
> >Sent: Tuesday, March 04, 2008 9:57 AM
> >Subject: I just don't want to live like this anymore.
> >
> >I have been dealing with adhesions since 2002 when I had my Endometriosis
> >removed through laparoscopic surgery. I have since had a full
hysterectomy > >and four more Laparoscopys to deal with the adhesion problems. I am
> >currently able to deal with the pain because of a careful balance of
> >medicines including gapabentin and morphine sulfate. Now to the problems.
> > 
> >I have extremely painful bowel movements/BMs (sorry for the bluntness but
> >how else can one describe it) I am grateful that I even have bowel
> movements
> >as this means that I am not completely obstructed. I suspect that I am
> >partially obstructed because of the pain I experience in two distinct
> >places on my intestines when I am experiencing increased bowel motility.
I > >take a stool softener and metamucil every day but it does not prevent the
> >painful evacuations. I take miralax when I have gone more than two days
> >without a BM. I used to eat a lot of meat but these days I mostly eat
> cereal
> >and easily digested food because I get so nauseated if I eat much else.
> Does
> >anyone have any suggestions as to what I might do to stop the BMs from
> being
> >so painful? I am at the point where I live in dread of having a BM.
> > 
> >I wake up in the morning nauseated. I take generic Reglan twice a day to
> >fight the nausea. After the nausea subsides a little I eat a bowl of
cereal > >sometimes fortified with some nuts. There is a small window of
opportunity > >between 11:00 AM and 3:00 PM where I can eat normally without getting
sick > >to my stomach. I usually can't eat anything after 4:00 PM or I get very
> >nauseous which means that I can't eat dinner with my family. Even if I
> don't
> >eat anything after 4:00 PM I still become from mildly to extremely
nauseous > >in the evenings. I discovered that I absolutely can not eat or drink
> certain
> >things anymore. I have never been a big drinker but if I even drink a
> little
> >bit of alcohol I really suffer for it with acute nausea. (I obviously
don't > >drink alcohol anymore and it really is no loss) I also have been
> >experiencing headaches that coincide with the nausea. Has anyone else
> >experienced a situation like this?  
> > 
> >I suspect that I might have fibromialgia as I ache all over most of the
> time
> >and my legs get weak. They have almost given out from under me a couple
of > >times. I need to go see my doctor but I currently don't have medical
> >insurance so we can't afford it. I am supposed to be going to a pain
> >therapist but I haven't been going for the same reason. I have applied
for >

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