hirschbrungs diesease
From: sara (sjryan83@aol.com)
Fri Jan 11 06:54:05 2008
hi i live in the uk and when my son was born it was the first time i had
heard of hirschbrungs. no one in my family has had hirschbrungs. my
son is now 2 years old and he has had been addmitted to hospital so many
times now 2 times for his op's and 3 times because he had bowel
infections where he had to be put on drips. he was also addmitted
because he had very low blood counts, he had a blood transfusion. ever
since his pull through op he has suffered from really bad nappy rash,
the doctors say its a fungal infection and it is like fighting a losing
battle. hes been on antibiotics and different kinds of cream. i would
like to find out other peoples experience with this diease.
i have noticed aswell that hardly anyone in mk where i live have heard
of hirschbrungs. the specailist that helps my son is in oxford jr which
is an hours drive from where i live. we have a hospital in mk but they
dont have a specillist.
i would be grateful to hear from anyone
thanks sara