Constant pain due to adhesions, endometriosis, and polycystic ovaries

From: IAS Admin (
Tue Dec 11 21:14:03 2007

From: [] On Behalf Of Sent: Monday, December 10, 2007 10:50 AM To: Multiple recipients of list ADHESIONS Subject: Re: Constant pain due to adhesions, endometriosis, and polycystic ovaries

Marilyn,   I read your posting about your daughter and am so sorry she is suffering.  I went through a VERY similar situation after the birth of my second child and DID have the hysterectomy at age 25.  Unfortunately for me, it didn't relieve the pain and more adhesions formed, of course.  In my case, they took the uterus at that time, then with each ensuing surgery after, they took each tube and each ovary; the last one was taken in 2006.  Now, at 39, my health is a mess.  My hormones can't seem to get regulated, my weight has gone up and down in swings of 50+ lbs, and from all the adhesions, I have had dozens more surgeries. Now, please, I am NOT in any way saying that's what will happen to your daughter, as we are all different.  Some form more adhesions than others, and my docs say I am the worst case they have ever seen.  It may just work for her, but there will be more adhesions, no doubt.  I stopped the narcotics also and take ULTRAM to keep the edge off the pain for now.

It's really a tough call.  When you're in that much pain, you are willing to do ANYTHING to make it stop.  Surgery, unfortunately is a temporary fix.  I have a great female doc here in Illinois who also specializes in adhesions.  He's worth the trip.  I've recommended him to a few others on the site who have seen him with great results.  You are welcome to contact me for his info. Good luck.   Jeanne Surdo  

>-------------- Original message --------------
From: "IAS Admin (Tracy)" <>

> Sender: (Marilyn)
> Subject: Constant pain due to adhesions, endometriosis, and polycystic
> ovaries
> We need some help!
> My daughter needs help to find a doctor in the Indianapolis area that
> knows something about this condition and will both help treat the
> condition and the pain. Any suggestions?
> She is relatively new to this problem compared to many of you on the
> board. She has been told by her doctor that the only solution to her
> constant pain is a hysterectomy. She gave birth to her second child
> aboy 6 weeks ago after having gone through IVF because her tubes are
> messed up due to adhesions. She is on narcotics to help her deal with
> the pain, but as many of you have expressed, she does not want to
> continue on narcotics, which only make her pain bearable. Her doctor
> does not seem to believe her that she is in such constant pain. My
> daughter is 29 years old and I am very concerned about her having a
> hystorectomy. She is so anxious to get rid of the problem, she is
> seriously considering the surgery. As I have been reading the threads
> on this board, I am feeling that tere are adhesions after the surgery
> and that surgery may NOT be the best solution. Are there other
> solutions? We haven't heard of any other treatments.
> Anything any of you with more experience can contribute would be much
> appreciated. I will send her to this chat board so that she can stop
> feeling crazy and so alone. Thanks for being here.
> --
> Marilyn - concerned mother

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