From: DawnB (
Wed Nov 15 19:22:28 2006

Hello, I am like so many of you, almost at "my wits end". I have also had multiple abdominal surgeries for adhesions and also for ovarian remnant syndrome and do well for a few months afterwards as far as the pain is concerned. My last surgery was in 8/05. I started to develop pain again about six months later and the last three months have gotten a whole lot worse, making it difficult to work and function again. I too, do not know how my husband continues to put up with all my problems - the pain, huge medical bills, my grouchiness, and the lack of ability to do hardly any activities that we once enjoyed together - all due to the pain of adhesions. I've put up with it in the last few months and finally broke down and saw my GYN a few days ago who basically says that he has no idea what to do with me at this point. He recommends that I go back to the GI doc as i may have a partial obstruction (AGAIN!) or it could be a cyst that grown back that wasn't removed during the last surgery from an ovarian remnant. <sigh> Here we go again with all the doc appts. and tests! One last option he says is a referral to a pain clinic. Does anyone have any experience with them?

At Wed, 8 Nov 2006, Ann wrote: >
>At Fri, 6 Oct 2006, Kelly wrote:
>>My name is Kelly I have had severe pelvic adhesions for 10 years and I
>>just can't do this anymore. I have done EVERYTHING some of these crazy
>>doctors have asked. I have been thin, I have been fat even more
>>depressing. I have not worked in 1 year my pain is unbearable and
>>doctors just think I am addicted to pain meds or I just need to learn to
>>"suck up the pain and go on" yes this was a quote from a DOCTOR! I have
>>had gastroenterologist do their work up-no findings as in no IBS,
>>colitis etc. I have done all the diets changing what I eat when I eat
>>the whole nine yards. I have had countless surgeries with about 3
>>months relief then back to the same. With these surgeries I have come
>>home with a catheter several time due to the doctor cutting through my
>>bladder-dont get me wrong I don't blame my doctor for that-NOTHING IS IN
>>I do not know how to do this anymore! Not only am I suffering my whole
>>family is as well> Bless my husbands soul I do not know how or why he is
>>even still married to me-I would not want to be married to me! My
>>children (now in college) ask everytime I talk to them which is everyday
>>"how do you feel Mom?" it is always the same answer. Now I just say "I
>>am fine" it is just easier on me,my kids, my family and the few friends
>>I have left.
>>I do not know what made me write this today..I guess I was online
>>researching another doctor that my doctor wants me to see and I found
>>this site, read Dr. Wiseman's info and this is may be the only doctor
>>WHO GETS IT! But I think it is too late for me I just can't do this
>>My prayers and thoughts are with everyone who is also struggling with
>>the Adhesion Monster as I call it I hope you find success where I have
>My thoughts are with you and I do understand believe me. Once upon a
>time I was a full time nurse & my favorite hobby was travel and I can't
>do either anymore between pain (other symptoms) and the lack of money!
>Adhesions have taken away so many things from my life. I too am married
>and often wonder why my husband bothers....Neither him nor I had any
>idea what we were in for. My last hospitalization was 15 days for GI
>obstruction and he was next to me the entire time, I say this to
>emphasize what we need to be happy for. MANY times I just want to pull
>the covers over my head and say the hell with it but you can't. This is
>often difficult but we have to find a doctor that is willing to listen,
>take our health care into our hands and fight for the respect we
>deserve. Believe me many of us have been told the pain is in our heads
>many times. I am not saying therapy may not be a good option for you,
>we all need help at times but a person knows when they are in pain!! I
>found a site today , the Institute for Traditional Medicine in Portland
>Oregon and they have an extensive article about adhesions AND the use of
>Chinese medicine - herbs postoperatively etc. It was very interesting
>reading, you may want to check the site out. (I found it by accident
>really, I went into google and listed abdominal adhesions and it was the
>second listing.) I do not know where you live but search out a doctor
>specializing in Internal Medicine (if you haven't) and if you have keep
>searching and bring back up material with you if necessary. Remember it
>is your body!! Some women say they have better luck with female doctors
>understanding but I have had better luck with male MD's, my main MD and
>GYN are both male and gotten me through many difficult years due to the
>adhesions so don't count out the men just because of their gender. Good
>luck and feel free vent anytime, it's not a bad thing.
>Ann (Georgia)

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