It's obvious from reading your post that you've already been through so much and are feeling a lot of apprehension and anxiety about where to turn next. My heart goes out to you.
I am also a woman who suffers from endometriosis. My experience with the disease over the 25 years I've lived with it has often been a struggle. At one point my life was reduced to pain, doctor's appointments, surgeries and more pain. It's always caused me enormous problems with adhesions and scarring.
I've responded to other endo patients on this forum with the same thoughts...if you've got a history of endo which is known to cause adhesions and scarring in most who have it, isn't it possible that you still have endometriosis causing at least a good part of your adhesions? We can go so far as having a hysterectomy, listening to the advice of the medical community telling us that a hyst is a cure, and still have endo and all that comes with it, pain, adhesions etc.
It took me a long time to understand that my local doc couldn't help me rid my body of endo. He is a wonderful, caring gynecologist. He'd done everything he learned to do for endo patients, offer Lupron,surgery to remove endo, Danazol, continuous birth control pills and hysterectomy. I had surgery with him which was completely useless. After that I decided to get online and find out if there wasn't something better.
It was then I learned there are doctors here in the U.S. who specialize in treating endometriosis. That's all they do, treat endo and pelvic pain, they do not deliver babies. They've made the decision to focus their entire practice on treating endo. By the very nature of their practices these doctors see a lot of women with severe adhesions and are quite successful at treating adhesions right along with treating endo.
It might be that endo is still causing you problems. Until all endo is removed by a doctor that knows endo and sees hundreds and hundreds of endo patients every year we're not likely to be free of the adhesions that usually accompany endometriosis.
It wasn't until I traveled across country for surgery with one of the nationally known endo specialists that I finally got relief. The doctor I saw is Andrew Cook. http://www.pelvicpain.com. If you're open to the possibility of seeking the opinion of an endo specialist Dr. Cook will do a complimentary records review and telephone consultation. He's helped women from across the country just like you.
Please don't give up Holly. There is help out there, you don't have to live with the pain. Maybe you just haven't seen the right doctor yet.
All my best, Debbie