Hi Teresa My name is Kim and .my story is a little different from yours, except that i find that you get a different diagnosis from each Dr. Im 34 and up until 4 years ago I was completely healthy and happy. Let me make a long nightmare short for you I have had several major abdominal surgeries in 3 years . In the past year alone i have been in the hospital almost eight months all together. Im in critical condition now and totally disabled.
They finally diagnosed me with crohns disease, but it took me 4 years of all different specialists that lied and insulted me and totally traumatized me. I am in severe pain constantly and from my own research and from my new specialist adhesions can only be diagnosed while they are inside of you laprascopically. there is no test and ive had them all that shows adhesions , but yet many Drs. lie and say you don't have them or you do.
In my situation I have found that all the Drs. ive been to see that I have so many critical conditions and Im a mess no fault of mine thanks to the medical system.If I were you I would defiantly continue getting second and even third opinions until you find the right Dr for you that you trust and believe in. I am very lucky to be alive today because of medical mal-practice im still in very critical condition and suffering , but Im at home with my girls 4 and 5. I must depend on TPN feeding through an IV for the rest of my life, but they will do more surgeries and fix other complications then they will be able to control my crohns disease. I have had so many Drs. tell me im lying im anorexic insult me and my family. Its been crazy, but finally with wonderful support from my parents that totally take care of myself and my children now and persistence in finding the right Drs. we have and Im on the road to recovery.
Ill never be myself again, but i will have a life and believe me i was fighting for my life everyday and i still give it my all. I have excepted my disability and all the complications but i am here for my girls and i will get allot better than this now that im on the right treatment. I do have many adhesions throughout my abdominal area and I have attacks daily that im laying in fetal position and I feel like im being strangled internally. I do have a wonderful pain management Dr as well. You should look into that as well. You need to have some sort of comfort and be able to manage the pain alittle to fight and ive found that most Drs. believe that there is no pain and don't treat it. I don't know where you are im in NYC and CT area, but would defiantly do research and continue to find the right dr. I wish you allot of luck Kim From: SkipAlot@nycap.rr.com (Teresa) Subject: New here. Need your help
Hi. I've looked through the archives and can't find anyone with a similar situation. I'm hoping you can help.
I started having right-sided pelvic pain in mid-March. Sometimes the pain is sharp and shooting, sometimes it's just a twinge and sometimes it's a constant deep ache. Over time, I've also developed pain near my navel, in both hips and on the left side of my pelvis, however, 90% of the pain is still on the right side. Teresa