Re: kristies response

From: Debbie Soder (dsoder2003@yahoo.com)
Mon Aug 4 09:48:08 2003


thanks kristie. Right now ive had no major gyno ops. My fibroids pressing on bladder and bowel. My appendectomy3 mos causing scarring. dont know whether to do just lysis or hyst or both or none. You got 15 pain free yrs. right now my quaility of life is terrible. Dont want to be on pain meds to survive. Such a gamble. Anyone with more input along with kristie please... Thnx --- adhesions@adhesions.org <extrafeetmom@yahoo.com> wrote: > Hi...I have something you may want to think about.

When I was 28 and > had my last baby, my doctor beged me to have a

hysto. I was scared and > I didn't want to. But I has so much pain and my

uterus was hanging out > (sorry so gross). So finally I gave up and had one

done at 29. My pain > went away for 15 years. Now its back. Don't know

why I didn't have > pain in those 15 years. ALSO----I really think it's

wise because in > most cases a person comes back from the hysto with

more scar tissue. I > had already had 2 C sections and no one said then

that my pain was from > adhesion......but then 15 years, pain came back in a

big way. > were thinking the pain was my overies left over. So

4 years go back in > to get them. Doctor said...easy surgery, just do it

lap....I am not > going to scare you. I did end up being cut from one

pelvis bone to the > other...Doc said he spent 3-4 hours scraping scar

tissue out. > My problem was C sections yes....but the doctor said

also it was so many > laps. I had 7 D&C and laps.... I know they alone

can do some damage. > I thought this would help but it looks like a dork

wrote it....Its late > and I have taken my funny pills...so I am off to

bed...hope it worked. > Kristie
>
> At Sun, 3 Aug 2003, Debbie Soder wrote:
> >
> >liz: I notice that you mentioned that your

hysterectomy ended your pain. I've been told by drs that I need one. Also have sometimes severe rectal pain and lower back pain (possibly from drain scarring in cul de sac during surgery). Many people advise me not to have hyster due to more adhesions. You say it ended your pain. Did you already have adhesions there? Did the hyster cause adhesions? How long ago was it? I'm interested because I'm trying to make a decision. Was also considering just having the fibroids removed and keeping uterus but was told fibroids will come back. Also told that uterus should come out when I get lysis so adhesions dont re adhere to uterus. In a total state of confusion and trying to make things right so i can possibly have a better quality of life. Any input anyone has re this would be so appreciated. Thanks. > >Sue <compstar@bright.net> wrote:
> >Yes, David, I totally understand everything in your

email. I am 50, and > >would go through tests and come up with YOU ARE

HEALTHIER then most half > >your age. that is what is so frustrating!.. I have

always been active, and > >physical, and I am now pushing my limits on GOOD

days, since sometimes it > >does seem to stretch the adhesions a bit. 3 times

now, I believe I have > >"ripped" the organs loose as I will have done

something, felt a "pull" and > >them get a circlular brusing pattern on my

stomach....but after the shock > >and fear that I was going to die from internal

hemorraging, I found I didn;t > >have THAT paticular pain anymore. I don;t advise

trying to rip the adhesion > >loose...but I have some days of such frustration, I

over do, and ooops! I > >feel a rip.
> >
> >yes, 28 yes..... same as my Hysterectomy...and yes,

pain in the pelvic > >region , plus I have pictures now to PROVE I am

full of the sticky mess! > >
> >Good luck to you.
> >
> >SueRinOhio
> >

>> >>----- Original Message -----
> >From: "Liz in Ohio" To: "Multiple recipients of
list ADHESIONS" > >Sent: Sunday, August 03, 2003 2:28 PM
> >Subject: HELP. a Newbie..my docs are IDIOTS!!
> >
> >> i've just found this forum (thank God). i've been

SICK and in pain > >> since March with debilitating upper abdominal

pain that i KNOW to be > >> caused by adhesions.
> >> i've "had" the usual. surgeries for

endometriosis. fibroids. > >> pre-sacrel neurectomy. and finally a hysterectomy

that stopped by > >> pelvic pain for good.
> >> now........it'upper abdominal. under my right

breast - underneath my > >> rib.
> >> my gallbladder was 'taken' in 1999 - and i SWEAR

it's adhesions. > >> i've had the tests. been in the hospital three

times for tests. and > >> EVERYTHING is coming up empty. i've already seen

two surgeons - even > >> the guy who took my gallbladder out - and they

ALL refuse to help. my > >> GI docs have given up on me and they want me to

see a shrink.......(DAMN > >> - that make me MAD)........
> >> so. last week i went to a pain specialists who

REFUSED to see > >> me........didn't want to get invovled. can you
> >> imagine?.................(what a JERK)
> >> in the meantime - i'm taking morphine - codiene -

for the pain and am > >> just
> >> SLAYED by the pain.
> >> my only HOPE is to see my GYN who has done about

10 surgeries on my thru > >> the years.........................
> >> how in the HECK do i convince these weenie

doctors that i need some > >> relief and it is

spelled........L..a..p..e..r..o..s..c..o...p...y!!! > >> any words of HELP are really needed!!
> >> thanx!!
> >> signed.
> >> Liz in Ohio
> >>
>
> --
> Let's be good to ourselves....Kristie
>

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