Re: Some side-affects actually help!

From: Jean (creative@enter.net)
Sat Aug 2 00:35:38 2003


Millie, That shouldn't surprise you- LOL! "We" must do our own research. My 1st Gastro was my "worse" doctor ever, the one who said I had Crohn's Disease and everything else in the book other than adhesions.

I see the commercial every day now too, still shocks me every time....unbelievable, that much advertising sure will put the word in people's heads now at least. JEAN

At Fri, 1 Aug 2003, Millie wrote: >
>Jean,
>I see that Zelnorm ad on t.v. every day. And I am surprised they stress not
>using it if you have adhesions.
>And the gastro who originally fired me in 1999, actually sent samples home
>with me when I went back to him last fall.
>And he KNOWS I had a hyst and have adhesions.
>Go figure that one.
>Millie.
>

>>>----- Original Message -----
>From: "Jean (from PA)" <creative@enter.net>
>To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
>Sent: Friday, August 01, 2003 3:06 AM
>Subject: Some side-affects actually help!
>
>> Nancy,
>> That's like with me and meds that cause diahhrea.
>> They always laugh at me because I "ask" for the ones that cause
>> diahhrea!
>> They told me that was a side affect of Prilosec when I went on them and
>> I said "Great", better than using dynamite!!
>> I actually enjoy the flu....as long as I'm not up-chucking anyway-LOL!
>> JEAN
>>
>> At Thu, 31 Jul 2003, Nancy wrote:
>> >
>> >My doctor let me try zelnorm and it worked well, for a while. She felt
>> >that the "contraindication" just told us that zelnorm wasn't a cure for
>> >the constipation that we know is caused by the adhesions. The symptom
>> >of consipation, however, was somewhat relieved when the food moved more
>> >quickly through my digestive system. I'd have to say it worked pretty
>> >good for me for several months before the effectiveness diminished.
>> >Plus, I'm sure that they adhesions have tightened in that same period of
>> >time. The first couple of days of zelnorm were rough, but after
>> >adjusting to the medication it was definitely better than without it.
>> >
>> >Be sure to discuss these issues with your doctor. I went into it with
>> >my eyes open and I was pleased with the result, at least for a while.
>> >
>> >--
>> >Nancy
>> >
>> >At Thu, 31 Jul 2003, Sue wrote:
>> >>
>> >>not causing adhesions... only if you already suffer from then! then you
>are
>> >>NOT to use it.
>> >>
>> >>sorry in a rush.
>> >>
>> >>--
>> >>SueRin Ohio
>> >>
>

>>>> >>>>----- Original Message -----
>> >>From: "Dixiepeep" <kbjarvis@yahoo.com>
>> >>To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
>> >>Sent: Thursday, July 31, 2003 3:29 PM
>> >>Subject: Re: Zelnor recognizes Adhesions
>> >>
>> >>> Just rediscovered the site. Nice new look. I know when the Zelnor
>> >>> commercial came on and said the word adhesion they may as well have
>said
>> >>> my name because it really caught my attention. It is the first time I
>> >>> have ever heard of a drug side effect causing adhesions.
>> >>> t Thu, 31 Jul 2003, april degregory wrote:
>> >>> >
>> >>> >At Thu, 31 Jul 2003, Jean wrote:
>> >>> >>
>> >>> >>Just thought I would make everyone aware (if they didn't already
>know).
>> >>> >>I saw a commercial on "TV" for the drug called Zelnor.
>> >>> >>I was in disbelief when they mentioned the people who should not
>take
>> >>> >>this drug.
>> >>> >>People with ADHESIONS was on the list of people who should not take
>this
>> >>> >>drug!
>> >>> >>
>> >>> >>They actually said the word ADHESIONS...and on TV where everyone can
>> >>> >>hear it (LOL)!!!
>> >>> >>Wow....they can say swear words on TV (since that is how it has been
>> >>> >>treated)....Tee Hee!
>> >>> >>JEAN
>> >>> >>
>> >>> >>--
>> >>> >>Jean (from PA)
>> >>> >>
>> >>> >Hi Jean,
>> >>> >I am a ard sufferer and was in the hospital for 45 days, I was unable
>> >>> >to move my bowels and they gave me Zelnorn and it nearly killed me,
>> >>> >cramping pain horrible and no bowel movement, then I asked for a
>print
>> >>> >ou
>> >>> >of the Zelnorn and saw that and was like , are they trying to kill me
>or
>> >>> >what. I am proven to have adhesions, a had small bowel obstruction
>> >>> >caused
>> >>> >from adhesions a year or so ago, and an adhesionlysis in January
>showing
>> >>> >adhesions in all four quadrants of my abdomen. Well it turned out I
>was
>> >>> >ha
>> >>> >ving a paralytic ileus, it was a nightmare. Had to have a continious
>> >>> >spinal
>> >>> >epidural for 7 or 8 days. Anyway a couple of doctors I saw were
>> >>> >appalled that
>> >>> >they tried this drug on an adhesion sufferer. Sometimes I think
>these
>> >>> >docs
>> >>> >do read these warnings, as I was a known ARd patient.
>> >>> >
>> >>> >--
>> >>> >anthea,
>> >>> >Do you have any information about clinical trials for spraygel at the
>> >>cleveland clinic.
>> >>> >
>> >>> >I know you dont know me , Im new to the site.....but not to
>ARD.......I
>> >>thought somewhere in the archives cleveland was mentioned. would
>appreciate
>> >>any info you might have
>> >>> >Thanks,
>> >>> >April
>> >>> >
>> >>>
>>
>> --
>> Jean (from PA)
>>

--
Jean (from PA)

Enter keywords:
Returns per screen: Require all keywords: