At Sat, 28 Jun 2003, Lisa wrote:
>
>Hello everyone,
>What has this board come to?? It is supposted to be a place to learn, a
>place to share hope and experiences, make new friends, a place to come
>and be happy that you are not alone... It has become an unwelcoming
>place, where you hear the same things over and over. People don't
>understand that we don't all think alike, and our realities are
>different.What is good for one, may not be good for another... everyone
>has the right to make their own decisions as to what is right for
>them... we need to educate them first, give them the info they need to
>make an informed decision, and not push what and how we feel on others!!
>I used to be a very loyal member of this board, but lately I've had some
>major problems with what has been happening here...so I don't check in
>as much as I used to sorry to say...lately things have gotten
>particuliarly nasty, and I felt the need to tell my side of things. I
>have been told my last post, supporting Robin, and letting everyone know
>that everyone that supports DR. Kruschinski does not think the same as
>others...they tell me it sounds like I no longer support and advocate
>Dr. Kruschinski...NOTHING COULD BE FARTHER FROM THE TRUTH !!! I support
>him and everything he has to offer the ARD patient 100%!! Nothing and no
>one is 100% effective, especially when it comes to ARD !!!
>I would like to start by saying that(this is all MY opinion) given the
>options available to the ARD patient today, to me it is a no brainer
>when it comes to who offers the best chance at becoming adhesion free!
>Dr. Kruschinski and his gasless approach, in my opinion is THE VERY
>BEST WAY TO GO !!! CO2 IS a factor in adhesion formation, whether it's
>alittle or alot, it doesn't matter to me...I wanted to have the very
>best chance of ridding myself of adhesions, and to me it makes all the
>sense in the world to take whatever help, whatever added pluses I could
>get when I had my surgery ! I will ALWAYS support and direct patients to
>DR. Kruschinski he is the best, and has the highest success rate, that
>speaks for itself...We need all the help we can get !! That being said,
>I do understand that everyone is different, realities are different, for
>many money is a big issue, not everyone can make the journey to see the
>great and wonderful Dr. Kruschinski...and I respect that(i may not
>agree, but it's not for me to decide)everyone must make their own
>decision, based on their reality!!
>I have debated long and hard about whether or not I should tell my side
>of things... I know many here on this board are throughly sick of
>hearing that DR. Kruschinski is the only way to go, I know I'm tired of
>the repeativness...and I'm deathly afraid that some will take my story
>the wrong way and think what Dr. K. offers won't help them...that is
>SO NOT TRUE!!
>I was the first to go to see DR. Kruschinski, that was almost a year
>ago...I came home adhesion free!!I continue to have some pretty major
>problems, I feel alot the same as before...upper abdominal pain that
>comes in waves, and constant(24/7) pelvic pain that can get completely
>out of control. I am back on pain meds... I think one of the hardest
>things for me right now is dealing with the idiot doctors here in the
>states...I've gone thru being told it's chronic pancreatitis, so I went
>to a specialist at Cleveland Clinic, tons more tests, and now I have 2
>doctors telling me my adhesions are back,(they couldn't get the
>colonoscopy in but 6 inches) one(the specialist) tells me I don't have
>pancreatitis of any kind, not to let anyone screw around with my
>pancreas, and he thinks I have diverticulosis. I have changed my diet
>numerous times depending on the diagnosis, nothing so far has helped...
>Do I think my adhesions are back?? That is the million dollar
>question... I don't know... I did have a 3rd look last fall. only one
>adhesion(small) was found...I can't honestly say I think they are back,
>but I can't say for sure they are not!!I know pain can remain after the
>cause is gone...something about the nerve pathways are so strong that
>they continue to fire...this is where I am now...persueing that
>possibility...I'm working with pain management, and am trying celiac
>plexus blocks to get some relief, although these blocks help my upper ab
>pain, it doesn't touch the pelvic pain...bummer!!!
>I know of many patients that I've helped get to Dr. Kruschinski are
>completely free of pain from adhesions and are off all meds...BUT I also
>know of patients that are still having troubles like me...NOTHING IS
>PERFECT 100% of the time!!
>I have heard from patients themselves that they think they MAY have
>adhesions back, but are not honest and up-front about it. That really
>bothers me..the patients that I've helped, I've told that this is not
>guaranteed that they will be pain free... this all is so new, nobody
>knows what the long term results will be..but I want to stress that the
>combination Dr.K offers is the best in my opinion. Dr Korell is highly
>skilled in adhesiolysis and uses spraygel too. He is considered one of
>the world's experts, and people have the right to seek his help and
>report their successes without being afraid of the consequenses!!
>So what I'm trying to say here is I support Dr Kruschinski and his
>skills, always will. And I support other patients of his that want to
>shout it from the rooftops, but there seems to be a right way and a
>wrong way to do this...I sincerely hope others will be willing to hear
>what we have to say about our experience with Dr. Kruschinski, and
>won't tone us out because they think they've heard it all... what you
>are hearing is from one or two patients, we don't all think the same!!
>Now that I have told my side, I hope the others I've talked with about
>this mess will be willing to speak up and tell us how they feel and
>their experiencesuch as it is..please we need to be objective and let
>everyone know exactly what is happening to ALL of us!!
>At the risk of sounding repeatitve I DO Support Dr. Kruschinski, always
>will, I'm more than happy to tell of my experience to anyone that wants
>to know.I will continue to help others to seek his help, HE IS THE
>BEST!!(my opinion...LOL!)but I will do it in my own way, as I see fit !
>Anyone that would like to hear more, or ask questions please feel free
>to contact me anytime !!
>Well that's my 2 cents...
>Lisa