At Tue, 17 Jun 2003, Karen Steward wrote:
>
>Hi Evelyn and Zac,
>
> Illness and suffering have no favorites. From the youngest to the old st,
>in all nationalities, many, many people suffer. My heart goes out to you
>both--there is never a rhyme or reason and our motherly, nurturing minds
>can't comprehend why OUR child is the unfortunate one, the one in pain,
>and robbed of the quality of life we see in other children. In our minds we
>know there are other children that suffer also, but often it seems it is
>only
>our child dealing with day in and day out battles that never cease. Our
>lives
>can end up feeling like sad rainy days each and every day with very few
>rays of sunshine and always another dark cloud looming ahead. The world
>goes on, and we sit back and watch. We aren't a participant, only a
>spectator,
>stuck in a cruel, unkind, hopeless existence. Each day when we wake, our
>minds immediately remember "oh, yes, another day in which to hurt"...... ..
>We exhaust ourselves as mothers, trying to take their little minds away rom
>the
>pain, if only for a little while. As they get older they begin to catch n
>to what
>mom (mum) is doing and they begin to feel sorry for their mom (mum).
>And a bond is formed that is more than a mother and her child, two broke
>hearts are bound together each looking to the other as they both cry out
>for help.
>
> Evelyn, I am so sorry for the pain that is heaped upon your son and t e
>sorrow
>you deal with each day. Cling to the hope that there is always tomorrow.
>Each day truly brings new opportunity and new hope. It is so very hard to
>see
>it when you are in the middle of the battlefield. All your natural mind an
>see is
>attack and enemy all around you..........I know all about those sparse t mes
>of "fantastic" days or years you speak of.........we are then lulled into
>thinking
>"It is over--we won" and then we are hit again......each time this happe s
>we
>begin to be afraid to ever rejoice, as we tighten up inside--knowing the
>victory
>won't last......... regardless, we must look beyond and believe, believe,
>believe
>the day WILL come for our child. Remain steadfast, unmovable, unshakeabl ,
>strong and firm in YOUR hope for your child. Surround yourself with book of
>
>hope and healing and encouragement. This will help you keep from losing our
>mind. A special song in your heart will help you and your son too.
>
> I know these are mere words written on a page........they don't give y u
>what you
>so desperately need...........I wish I could give that to you, as I know
>many others
>will feel the same as they read about your precious Zac boy..............
>but know
>today I shed a tear for you and many for that sweet Zac..........from one
>mom to another,
>I feel your pain and it tears at the soul.
>
> Blessings to you both,
>You will be in my continual prayer.
>
>Karen
>
>-------Original Message-------
>
>From: adhesions@adhesions.org
>Date: Tuesday, June 17, 2003 03:40:39 AM
>To: Multiple recipients of list ADHESIONS
>Subject: up- date on my 7 year old sufferer
>
> My son Zac and I have not posted nor read for a while
>and what alot of changes. Well done to all those concerned.
>
>--
>
> IN brief Zac was born with a malrotation or a deformity
>in his bowel and surgeon did life saving surgery to seperate
>his obstructed mangled bowel. Adhesions formed and at 2 years old they
>removed massive adhesions throughout his bowel.
>
> After about 1.5 fantastic pain/constipation free years
>his pain/constipation has worsened gradually year by year.
>He suffers almost daily from sore backs, neck, legs and
>ofcourse sore tummies. With lots of medication he does go
>to the toilet everyday but loading is always a problem.
>
>Right now we are waiting for another battery of tests to commence and
>way up the options for further surgery.
>He has difficulty concentrating and often daydreams at school. He is
>well behind for his age so it puts pressure on us to want to improve his
>current health status now.
>We also worry about his pain level 20 years from now and the decisions
>we make now will have a major impact on him later.
>
> I would love to have some support and feedback from anyone.
>We were using lazer treatment for a year but had to stop it as long term
>we did not know how it would affect him.
>
> Regards Evelyn
> watsayyou@xtra.co.nz
>
>--
>mums the word
>
>.
>