Re: New doc - what to look for??

From: Dawn (dawn@naisp.net)
Thu Jun 12 06:14:03 2003


Dear Elaine, Welcome, You are not crazy....if you have had prior surgeries you may indeed be suffering from ARD. A great way to check is to get your operative reports and see if adhesions were encountered during the surgeries. If you need help locating a doctor in your area who is sympathic to the plight of the ARD sufferer, a great resource is in the support section under worldwide support listed by county and states. Hopefully you will find and IAS contact person in your area. If not you could contact Dr. Wiseman, the founder of the site. He may know of a doctor that is sympathetic to and understands ARD. He has many emails to answer and is very busy but he eventually will get back to you...he always does. An advocate should be able to help you though. Hang on, there is hope. Much love Dawn >
>The way our insurance is set up, it's next to impossible to get a second
>opinion from outside our network. I saw my GYN this week. The one who
>has done two surgeries on me and thinks I'm a nutcase because of this
>left sided pain I have after he removed a cyst. He said he'd refer me
>for a second opinion. I found a doctor in a town near here that
>specializes in infertility and laparoscopic surgery. Would this be a
>good doctor to try? I thought with infertility, he might be
>knowledgeable in the scar tissue area. I just want someone to tell me
>why I hurt and if I'm going to have to live like this for the rest of my
>life. So far, the only thing I get is it is IBS or I need some
>antidepressant for "chronic" pain.
>
>Anyhow, the GI doc I saw was really nice. He said it did sound like IBS
>but he wasn't ready to say that is the diagnosis. He's running all
>kinds of tests on my poo and I have to do these smears for three days to
>check for blood. He's also doing some blood tests. I'm very relieved
>to have a doctor that will at least run some tests and try to find out
>why I'm hurting.
>
>He gave me Zelnorm to try. He said that it might help and it was worth
>a try. I took three separate doses and each time I hurt unbelievably
>worse for three hours or so after taking it. After the third dose, I
>decided I didn't want to try to keep taking it. It gave me indigestion
>so bad that it hurt in my back and under my ribs on top of making where
>I usually hurt feel worse!
>
>I'm to the point now that I almost think it's not even worth trying to
>find a doctor who is willing to try to find the answer. I guess I
>figure I've lived with it this long and I seem to be doing ok...I might
>as well just accept this is what it will be like forever.
>
>One last question...on my last surgery report, it says "Pelvic Adhesive
>Disease." I saw that after my doc appointment so I didn't get to ask,
>but I have to wonder - if it is a disease they put on surgical
>reports...what does that mean to the patient? And if it's on there,
>written by MY doctor, why does he look at me like I'm a lunatic when I
>ask if maybe that left ovary is stuck to my colon and that's why I have
>tremendous pain any time gas or anything moves through that left side?

--
I'm no doctor, just a fellow sufferer like you but I hope you consider me a new friend.

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