Re: Lillian--GERMANY
From: Karen Steward (kann@charter.net)
Tue May 6 00:02:19 2003
Hi,
I just have to add a little.......Melissa (daughter) had constipation,
pain and had been miserable for years on end. She had had 2 prior
surgeries in the US and became worse!
The first surgeon would not touch her bowels (only removed adhesions
from the female organs) and in the second surgery (different surgeon)
we paid for a bowel "specialist". However, try as I might, I never got to
meet this specialist and then I was told the bowels were "not
involved" after the surgery.........excuse me??? Why then have we had
ER runs that we knew were obstructions?
When we heard about Dr. Kruschinski, in Germany, we made plans and
were off. I am thankful to report that Melissa is back home, doing well
and everyday amazed that her bowels WORK. Dr. Kruschinski said there
was none of her bowel that WASN'T involved! She either had dense or
filmy adhesions on small and large bowel. She also had adhesions of
the stomach, liver & diaphragm! Melissa had been in pain since the age
of 13, she is now 27 and has little memory of pain free days. On the flight
home from Germany, she told me her belly felt relaxed, but she was
concerned that she could no longer "feel" her intestines! I had to assure
her she was not SUPPOSE to feel her intestines! When she fell asleep
during the flight, this mom shed many tears. It broke my heart to know she
had been "feeling" her intestines all those years and she thought that was
NORMAL! I can't thank Dr. Kruschinski enough for his expert surgical skills
and his caring attitude. He is excited to see the ARD patient become well!
All it took was a trip to Germany!
I encourage anyone dealing with this same misery to begin making your plans.
Life can be good. I am seeing it day by day.
Best wishes,
Karen
-------Original Message-------
From: adhesions@adhesions.org
Date: Monday, May 05, 2003 11:32:03 PM
To: Multiple recipients of list ADHESIONS
Subject: Re: Lillian.
At Sat, 03 May 2003, Spincon58 . wrote:
>Dear Connie,
My pain was back 7 days after surgery I am back on my pain meds.I am
working on finances to go to Germany. Unfortunately my insurance has
told me they would not cover so Ihave to fight it out on my own. I saw
someone asked about the long thin spagetti like BM's. Well if your
bowels are stuck like mine it looks like a grape vine of small
intestines attached to the top of my abdominal cavity in about 10
different places. My adhesions are mostly in my small intestines. So
imagine your food going through all those tangled up areas and ask me
why I moan in pain so.I have still pictures of my last 2 surgeries for
to show the other docs I go see and I want them to tell me that
adhesions don't cause pain. No maybe the adhesion itself isn't the pain
buster but the way my intestines are attached you can't tell me that
food passing in those intestines pulling and tugging isn't painful. My
best regards to you Connie. But when You have been through what I have
and know what is happening to you by now and also have pictures to back
you up. I think I can manage to explain my case to the docs and know
that I want this treatment or that and have the right to refuse as a
patient. Lillian
>Lillian,
>
>We are all learning from every single post that is written. I have
spaghetti
>like bowels all the time and I have adhesions. I had no idea that was one
of
>the signs. Something else you said it always gets worse. I had two
surgeries
>and I don't want to suffer like you did for nine years. Why is my Dr. so--
>afraid to talk to me about adhesions? It's so hard to get an answer from
the
>medical professional. I told my husband I want to go to Germany. I'm in the
>process of sending my surgical reports to Dr. K. Lillian , Are you pain
free
>after your surgery?
>
>Connie
.