Re: New here - my story - advice please

From: Elaine (noemail@email.com)
Mon May 5 20:21:32 2003


Thank you Lillian for sharing your wisdom. I've already told my husband unless my life is at stake (like a bowel obstruction), I just cannot have another surgery. Two in such a short time scared the daylights out of me and now I'm worse off than I was before the last one.

I've never had any real health problems before all this. So, being dismissed and treated like a lunatic so often in the past six months or so has completely crushed me emotionally.

At Fri, 2 May 2003, Lillian wrote: >
>Dearest Elaine,
>Your story sounds all too familiar. Welcome to this board where we are
>all basically in the same boat you are in.My heart goes out to you.
>There are no real answers at this time other than flying to Germany and
>getting a specail Abdominal lift gasless laparoscopy and Spraygel. A
>prosuct made in the US but not yet FDA approved. It is so unfortunate
>to say but we may not get Spraygel here for some time to come and then
>we don't even know if they will allow people without female organs use
>it. We are all here for you and will help even if its just listening to
>you vent. There are a few docs that take the time to help you with PAin
>management and medications and others just shoe you away because of lack
>of knowledge as to what can be done.I myself have been through 11
>surgeries for adhesions only for them to return with a vengeance. So
>naturally I want to explain to you that more surgery could cause you to
>be worse off. The long spagetti type BM's are all too common the effect
>of adhesions on the bowel. I know when you talk about the labor type
>pain you are not imagining it at all. I have those type pain and it is
>horrible to live that way. Fortunately I have good helpful and
>understanding docs myself now. But I went through 9 years of feeling
>all alone when my doc knew all too well what was happening and continued
>to do surgery only to make things worse for me. I am a medical
>professional, I have lost my job because I was no longer dependable and
>had 3 surgeries within 9 months to try to take care of my problem. May
>you find help and painfree days.
>Lillian At Thu, 1 May 2003, Elaine wrote:


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